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Neurologist for Neuropathy?

marbleotis's picture
marbleotis
Posts: 482
Joined: Mar 2012

Has anyone seen a Neurologist for their neuropathy? Did it help?

marbleotis's picture
marbleotis
Posts: 482
Joined: Mar 2012

This will help me alot.

ron50's picture
ron50
Posts: 1279
Joined: Nov 2001

Unfortunately he was unable to help me at all. Right from the start he apologised and told me that he found it very difficult to diagnose chemo related neuropathy. It is the same with kidney disease,I have had three kidney biopsies to try to diagnose my protein loss. They all come back positive but don't relate to any known kidney disease. My neurologist said it was the same with neuropathy. He ran a series of nerve transmission tests on me but said the results were pretty inconclusive. That was around seven years ago ,my neuropathy has worsened and I have been trialed on lyrica,neurontin and endep. I finished up on high doses of lyrica and neurontin and noticed very little benefit , the side effects were unpleasant and they cost me a fortune . The pharmaceutical benefit scheme in Australia only covers their use for epilepsy. Ron.

Jaylo969
Posts: 826
Joined: Jan 2010

I am 2 1/2 yrs out from last chemo tx. The neuropathy got somewhat better after I finished up chemo but this past summer it has gotten bad again. Last week my onc told me that it wasn't from chemo that it is getting worse again and she suggested I see a neurologist. I declined for a couple of reasons.

1. I went to a neurologist at her suggestion for my back/compressed disks. It took 7 wks to get an appointment, my back wasn't hurting anymore, he had an emergency and could only give me 10 mins. and took that time to tell me he couldn't do anything and it will get worse. Maybe I can go to physical therapy( in his office of course ) and that might help. Declined that.

2.I am sick to death of being sent from specialist to specialist and dishing out $50.00 a visit to be told that nothing can be done or being sent from one specialist to another specialist to another and ending up no better and sometimes worse.

Have you tried alpha lipoic acid? My primary keeps suggesting it to me but I haven't got there yet.

Best wishes and if you go to a neurologist please let us know the details and if it helps you.

-Pat

abrub's picture
abrub
Posts: 1531
Joined: Mar 2010

Pat, the Alpha Lipoic Acid did help me significantly (tho not completely.) It's worth a shot. Ideally you'll see results in 4-6 weeks.

Alice

Jaylo969
Posts: 826
Joined: Jan 2010

Thanks for the recommendation, Alice. I'll try it.

-Pat

marbleotis's picture
marbleotis
Posts: 482
Joined: Mar 2012

I never heard of alpha lipoic acid

Jaylo969
Posts: 826
Joined: Jan 2010

http://altmedicine.about.com/od/alphalipoicacid/a/alphalipoicacid.htm

I have never learned to do the clickable links for this site.

I have also heard that doctors are starting to rx Cymbalta for neuropathy.

-Pat

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

I tried accupunture Sept 7th but didn't notice any improvement. I figured it would take several sessions before I might notice anything but it wasn't cheap so I had the accupunturist submit a claim to insurance. Well yesterday I got the rejection letter from blue cross blue shield. So I may never know if accuputure works on my bad neuropayhy. Pray we find something that will help. I use a compound on my feet and it help for a few minutes and its not cheap. Jeff

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