Sep 28, 2012 - 11:32 am
This is my first post and I’d like to say that I am so sorry about all the heart-wrenching stories I read on these boards. My heart goes out for everyone who needs to be here.
I am an extremely concerned husband of the love of my life, and I am scared beyond words about her. Our story briefly is that she has been diagnosed with stage IV severe Endometriosis early in her life, when she was 19 years old. She is 35 now. She likely had the disease before, but it was only diagnosed at that age. She had 2 laparoscopic surgeries to remove the endometrial adhesions, some on her ovary, and some in the belly elsewhere. The disease was widespread. She also has an endometrial nodule in the cul-de-sac that cannot be operated on. Long story short, of course we could not get pregnant, so we finally ended up trying IVF. She had 3 rounds of IVF with very poor results. We were just about to give up, and had a final consult with our doctor this Tuesday. He did another vaginal U/S and discovered an “irregular shaped cyst” on her left ovary. He said he did not know what it was, and he ordered some tests. I almost fell of the chair when I saw CA 125 was one of them. My darling took the tests. The AFP came back low, but her CA 125 is high, at 274! I know that endometriosis can elevate CA 125 and I also know that taking the test during her period is also not a good idea, but 274 sounds like a lot. I read and re-read the Internet for the past 3 days and I cannot find the answer: if one takes the CA 125 during period (3rd day) and has severe endo, can she have such elevated results on the CA 125 without a malignant condition? Please, please, please give me some hope that she is free of this monster. She has been through so much already with the failed IVF’s and all the suffering from severe endo pain through her life. I am absolutely scared sh1tless (sorry) about this.
Many thanks and God Bless,