CSN Login
Members Online: 12

Decision about treatment

luvofmylif
Posts: 344
Joined: Sep 2012

We met with radiation oncologist and oncologist today. Basically we had some good news. We are being put in a study to do less radiation because he had surgically proven negative nodes on the left side, which means he will have radiation to the right side only. He will still need chemo though. Of course the dr explained some of the radiation will end up on the opposite side but all in all it will be about 60% less then if he would have had positive nodes on the left side. Because he had BOT laser surgery they will not radiate that area.

I am somewhat relieved but just hope that the cancer at BOT does not recur since that will not be receiving the direct radiation. So, all in all I guess the surgeries were worth it.

Best wishes for health to all of you kind people.
Joan

One other thing though, they wont' be starting treatment for another 2 weeks so that will be 8 weeks since surgery. The standard of care is 6 weeks so I am a little concerned about they delay. Worried what the cancer cells are doing....

CivilMatt's picture
CivilMatt
Posts: 2900
Joined: May 2012

Joan,

Good luck, sounds like the treatment clock is ticking.

Best,

Matt

phrannie51's picture
phrannie51
Posts: 3664
Joined: Mar 2012

it was like from the moment of Dx to the first treatment took so darn long, we all get into a bit of a panic about what is this cancer doing while I have to wait???!!! Trust me, it will be ok....the cancer isn't going anywhere real fast, and things don't change in the time it takes to set up treatments....

I was a wreck...my Dx was on March 5th, and I didn't get into treatment until April 21...I couldn't believe they were taking so much sweet time just getting me in to see the Radiologist and the Oncologist, let alone get going on treatment. The Dr.'s assured me that it would be ok....as did the folks here. This is the hardest place, the waiting phase...once treatment starts tho, it's like a whirlwind....

p

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

My dad was diagnosed May 30th, his treatmennt started July 25th!!!! We were freaking out because it lasted so long... Just two days before his tx finally started he felt a small lump on the other side of the neck (he had clean area before that) and doc said that this does not change nothing at all. She even said she expected that this could happen (??). She said to us that delay does not mean that cancer will progress that much (if at all).

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Waiting is sometimes the worst part of the whole ordeal.

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

It's good to have plan. I was another who experienced the panic and frustration of what seemed like a very long wait. All will be well.

Deb

hwt's picture
hwt
Posts: 1880
Joined: Jun 2012

I started late too because of the open wound on my leg (removed fibula to reconstruct jaw). My 1st CT w/contrast came back NED. First PET next Friday.

luvofmylif
Posts: 344
Joined: Sep 2012

Good luck to you with your scan. This is all new to me so not even sure when the first scans are performed post treatment. I guess worry will be the norm from now on all because of one phone call saying you have stage 4 cancer.

luvofmylif
Posts: 344
Joined: Sep 2012

Good luck to you with your scan. This is all new to me so not even sure when the first scans are performed post treatment. I guess worry will be the norm from now on all because of one phone call saying you have stage 4 cancer.

Hard12Find
Posts: 203
Joined: Sep 2012

Sounds like you and John got a much needed break, that is such good news.....we are all pulling for a positive outcome. I know what you mean wondering what the cells are doing. My first treatments were delayed a week due to infection around the peg. Feeling better and starting on Monday.
Jim

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network