Sep 24, 2012 - 1:56 pm
Hello everyone. I just completed my 7th FolFox treatment. This round my platlettes were low so the doctor did not include the oxaliplatin this treatment. He is also planning to reduce the dossage.
It seemed like the neurapathy symptoms were negligible by the time the next treatment rolled around. However, this treatment it seemed like some of the neurapthy symptoms (tingling / numbness in figers and toes) did not go away. How do you know when this might become permanent? Also, the doctor's / nurses asked if it was severe, like causing problems walking or holding things??? My answer was no - but their question really scares me. I want to avoid permanent and/or dibilitating neurapathy if at all possible; however, I really don't know how to do this??? Is it like one additional treatment may put me over the top? Or is it a gradual increase in the neurapathy where if it is too severe I can yell stop??
He is going to reduce the Oxaliplatin in future treatments; I hope it will be enough to avoid the dibilitating and/or permanent neurapthy.
I also noticed that without the Oxliplatin this round side affects were minimal compared to previous rounds, e.g. I didn't crash and sleep for two days like previous rounds. I did sleep more but not as bad...
Is it normal to have to reduce Oxliplatin? What are your experiences in later rounds of FolFox treatments?