Sep 23, 2012 - 12:42 pm
My father had a partial nephrectomy in May to robotically remove a mass that turned out to be cancerous. The tumor was deep in the kidney and it took 6 hours to complete. He came home with a jp drain. He ended up having to go back to the doctor to get a catheter. He has had to measure the output of both the catheter and the drain and email it to the doctor each time he emptied them. Since then he has had 5 other cathethers put in and he still has the jp drain. It has been almost 6 months. The doctor keeps saying that its just slow to heal. He is in tremendous pain daily due to the catheter and can barely sit for long periods of time. He has lost a ton of weight and a lot of his vitality due to the continuing ordeal of bladder spasms with the catheter.
Has anyone else had these types of problems? We are now looking at getting a second opinion, and I would love to know whether you would recommend a cancer doc or going to a different nephrologist. Is there anyone in GA with a doctor recommendation to share?
I would appreciate any advice or help anyone is willing to give.