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Partial nephrectomy 5/12 continued complications-atlanta ga

maryellenatl
Posts: 2
Joined: Sep 2012

Hello everyone,

My father had a partial nephrectomy in May to robotically remove a mass that turned out to be cancerous. The tumor was deep in the kidney and it took 6 hours to complete. He came home with a jp drain. He ended up having to go back to the doctor to get a catheter. He has had to measure the output of both the catheter and the drain and email it to the doctor each time he emptied them. Since then he has had 5 other cathethers put in and he still has the jp drain. It has been almost 6 months. The doctor keeps saying that its just slow to heal. He is in tremendous pain daily due to the catheter and can barely sit for long periods of time. He has lost a ton of weight and a lot of his vitality due to the continuing ordeal of bladder spasms with the catheter.

Has anyone else had these types of problems? We are now looking at getting a second opinion, and I would love to know whether you would recommend a cancer doc or going to a different nephrologist. Is there anyone in GA with a doctor recommendation to share?

I would appreciate any advice or help anyone is willing to give.

Many thanks,

Mary Ellen

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Mary Ellen, how old is your Father? We have a member here, flatlander, who had similar problems for a lengthy period. I hope he may see your posting and respond. I'm no expert, but I think a second opinion would be a good idea and I would have thought a urologist would be more appropriate than a nephrologist at this stage.

I'm in Scotland so can't help re doctors in your area but I strongly recommend that you join the KIDNEY-ONC list and put the same question there. You are certain to get a lot of useful replies from that source.

maryellenatl
Posts: 2
Joined: Sep 2012

Hi there, thanks for your comments. Where do I sign up for the kidney list serv that you referred to..

foxhd's picture
foxhd
Posts: 1864
Joined: Oct 2011

Maryellen, that all seems like a long time to me. I would be under the impression that the Dr. expects nature to run it's course and your father will improve. However, With this much time gone by, I think it is time for a second opinion. Especially if he is missing something. A follow up will be very cost effective. I would recommend going to someone affiliated with a different hospital to avoid any conflict of interest.

NewDay's picture
NewDay
Posts: 170
Joined: May 2012

Hi Mary Ellen,

I agree with Tex that you may want to see a Urologist. I am seeing a Nephrologist for ongoing management of my remaining kidney, but I see your father's problems as being complications after surgery and I assume it was a Urologist that did his surgery. I also agree with Fox, that I would see someone at a different hospital. I think doctors hesitate to criticize a colleague's opinion, but that loyalty often does not apply across different hospitals. My Urologist was Dr. Pattaras at Emory and my Nephrologist is Dr. Knowlton. He practices at Northside and St. Joseph. I hope this clears up for him soon.

Kathy

pjune127's picture
pjune127
Posts: 127
Joined: Dec 2011

I was diagnosed in May of 2011. I was not comfortable with the surgeons here (I needed a complete nephrectomy of my right kidney and my vena cava was involved) and thankfully went to Duke for treatment. I had a urologic oncologic surgeon and a cardiac surgeon do my surgery in NC. I currently see Dr. Thomas Seay at Atlanta Cancer Care. He is an oncologist and recommended Dr. Greg Knowton if I needed a nephrologist. Right now I haven't needed one, but he is who I would contact. I highly recommend Tom Seay if you have the need of an oncologist.

Feel free to ask me any questions.

I wish your dad the best!

Paula

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