Sep 22, 2012 - 10:05 pm
Pete_lost_at_sea posted something that got me thinking. A nurse that he interviewed said in her experience, colon cancer patients with peritoneal mets usually had about a two year survival rate. I searched the net a bit and saw that she is probably right. I'm not caught up in survival rates because I believe everyone is different and their bodies handle cancer and treatments differently. But I am curious to learn about your experience with your own peritoneal mets.
Does anyone else currently have peritoneal mets or did anyone have them and successfully beat them? I just want to know what your experience has been not what you think my treatment should be (although I do appreciate that people care enough to add their 2 cents). I have had a consult for HIPEC but unless I have a complete sacrectomy at the same time, HIPEC is not the answer for me.
My peritoneal mets were discovered in December 2011. My onc tried Folfiri/Cetuximab Jan - June 2012 but it did not work in stopping progression of the mets. You can check out my profile and see what other cocktails were tried before the mets showed up. I'm currently on a trial drug Morab4 or a placebo - not sure. I don't feel like these mets are taking over my life and health. I am doing well overall. I have some discomfort in my abdomen about once a week, kinda like it's achey. My belly did get a bit large and I have been taking water pills for the acites (water building up in abdonminal cavity).
Any input would be appreciated.