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DPNS did not work

Hondo's picture
Hondo
Posts: 5608
Joined: Apr 2009

As many of you know after 6 years from the last time of being treated with radiated twice to the head a new side affect develop the lost of being able to swallow anything. Doctor suggested DPNS, well Deep Pharyngeal Nerve Stimulation did not work to restore any movement of the tongue so that I can swallow again.

However I am not giving up I learned about another treatment called Laser Nerve Stimulation; I started it last week and so far did two treatments. Last night while brushing my teeth I notices some funny feeling in my very last tooth and for the life of me could not figure what it was; that is just it "feeling". I was feeling the back tooth in my mouth for the first time in two years, I don’t know if it was because of the Laser Nerve Stimulation or not, but it is something I am going to keep doing and see if it gets better. I will keep you posted on the treatment.

Take care
Hondo

Tim6003's picture
Tim6003
Posts: 1490
Joined: Nov 2011

Exciting Hondo ...very exciting ...man oh man I'm praying that nerve or nerves shoot baak to life and you will be swallowing STEAK!! :)

Tim

katenorwood
Posts: 1801
Joined: May 2012

Hondo,
I so hope and pray the new treatments are working for you ! You are such an inspiration ! Will be thinking good and positive thoughts for you ! How exciting....honestly amazing ! Katie

D Lewis's picture
D Lewis
Posts: 1518
Joined: Jan 2010

Very interesting news. Keep us informed. I had no idea these types of treatment existed.

Deb

Hard12Find
Posts: 197
Joined: Sep 2012

What a blessing, I hope it continues getting better.
Jim

denistd's picture
denistd
Posts: 483
Joined: Apr 2009

Happy to hear that Hondo, hope the whole thing comes back. Denis

sabriene
Posts: 27
Joined: Aug 2006

Hondo,

I am not sure you recall me but I started treatment for stage 4 which was about the same as your the first part of 06. I live in Branson, Mo. area if that will help refresh your memory. Anyway, myself never have gotten where I could really eat all that good. I recall at the onset you mention at the time you were having an issue with the jaw being frozen. I was telling the nurse after my treatment of your situation. She said "yes you must start right now exercising the jaw to prevent it from freezing up". I no today that would also have been me with same problem. You sure have my sympathy, and prayers. That laser nerve stimulation is a new one to me. Keep us posted on the outcome for if it helps I may also give it a try. I thank modern medical techology for keeping us both alive this long but I am sure you will agree it has not been an easy battle. I am sorry I haven't gotten back with you before but also went through a divorce after twenty two years of marriage. I just hope this treatment really helps. Roger

Hondo's picture
Hondo
Posts: 5608
Joined: Apr 2009

Yes I remember you well my friend, it’s been quite a while, I am glad to see you are still here with us and hope you are still C free. I am sorry to hear about the divorce, sometimes there are no words to say, but I am glad you pulled through it and doing well.

Take care and keep posting
Tim Hondo

CivilMatt's picture
CivilMatt
Posts: 2803
Joined: May 2012

Hi Hondo,

I am hopeful the laser does the trick. Today your teeth, tomorrow who knows.

Best,

Matt

sabriene
Posts: 27
Joined: Aug 2006

Hondo,

I am not sure you recall me but I started treatment for stage 4 which was about the same as your the first part of 06. I live in Branson, Mo. area if that will help refresh your memory. Anyway, myself never have gotten where I could really eat all that good. I recall at the onset you mention at the time you were having an issue with the jaw being frozen. I was telling the nurse after my treatment of your situation. She said "yes you must start right now exercising the jaw to prevent it from freezing up". I no today that would also have been me with same problem. You sure have my sympathy, and prayers. That laser nerve stimulation is a new one to me. Keep us posted on the outcome for if it helps I may also give it a try. I thank modern medical techology for keeping us both alive this long but I am sure you will agree it has not been an easy battle. I am sorry I haven't gotten back with you before but also went through a divorce after twenty two years of marriage. I just hope this treatment really helps. Roger

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Divorcing after 22 years - wow. Hope you're OK on that front, too.

Skiffin16's picture
Skiffin16
Posts: 8052
Joined: Sep 2009

Feelings, nothing more than feelings,

Feelings, feelings like I've never lost you
and feelings like I've never have you again in my life.

Feelings, wo-o-o feelings,
wo-o-o, feelings again in my toothers.

Awesome news Tim Man....

JG

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Morris Albert...1974.

God bless
Tonsil dad,

Dan.

nick770's picture
nick770
Posts: 195
Joined: May 2012

Thanks for the update, hopefully this new treatment will do the trick!

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Now I've got Carol Burnett in my head "Feelings wo-o-o wo-o-o wo-o-o".

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Very glad you're feeling yours. Hope additional treatments bring your more progress.

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

You keep blazing new trails. Keep going. Wac away at your obstacles.

Hondo's picture
Hondo
Posts: 5608
Joined: Apr 2009

I go this week for three more laser treatments; will up-date you all on Friday if any more feeling comes back. As you can see I am very excited because finally something seams to be working. I am not trying to put too much hope in the Laser Nerve Stimulation because I know my damage is very bad on the left side of the face, but at this point any feeling I get except for pain I will take it.

God blessing on all of you
Tim Hondo

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