Sep 18, 2012 - 7:30 pm
I am very excited to tell everyone I am going to Nashville to see about a clinical trial with the wonder drug...BMS936558 (also know as Fox's MDX1106). Got the call yesterday to come to sign some release forms in Nashville at 8:45 on Friday morning. They got all my records and I will be talking to a doctor about all the trials available to me.
For a short review, I was diagnosed with CCRCC in May 2011, had my kidney removed at Duke in July, and went back home to Atlanta in August. I took Sutent for 10 months for mets in my lungs. Had a great response for about 9 months. When remaining tumors showed growth in June, I took Inlyta for two months. Got NO response; in fact two nodules that had almost disappeared have begun to grow again.
So instead of going with another drug that cannot cure me and can only work for a matter of time, I opted to donate my body to science BEFORE I die (which I don't plan to do anytime soon, I might add). I feel especially lucky to be going for the cure. Not sure of all the details yet. I will know more on Friday and will report back and let you all know how it goes. Fox has explained in his threads how this drug works. And he also has been a real friend to me when the going got tough. These boards are such a safe and wonderful place to meet kindred souls.
I intend to FLY as my good friend would say!
Much love and prayers to all.