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Just took my first Tamoxifen pill

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

1 down...1,494 to go.

Frankie Shannon
Posts: 457
Joined: Oct 2011

Good girl, let us know how you do on it.
Hugs Frankie

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Trying not to be nervous about it. Trying to envision it doing it's little cancer-fighting job!

Frankie Shannon
Posts: 457
Joined: Oct 2011

Don't be nervous it will do it's job,i have been on it for two years.
Hugs Frankie

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

I will try to relax!

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Good luck!

Hugs, Leeza

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Leeza

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

I didn't do the math like you though...ha We're in this thing together.Linda

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Yay!
We truly are in this together! Thanks!

sdukowitz
Posts: 250
Joined: Nov 2011

Good luck! IVE BEEN ON IT SINCE DEC LAST YEAR..... I TRY NOT TO EVEN THINK ABOUT IT AND JUST GOT A CLEAR MAMMOGRAM AFTER ONE YEAR AGO DIAGNOSIS .... SO IM GONNA TRY TO KEEEP TAKING IT... SUE D

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

Post your "clear" comment on the thread you started before the mammo. Everyone is revisiting that pg looking for the news. So glad to find it here though. Linda

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Wishing you good luck too! If you do have bad side effects, you can always stop taking it. Hoping that you won't have any side effects!

Hugs, Angie

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Yay for clear mammos!

disneyfan2008
Posts: 5340
Joined: Oct 2010

I just started MY 5th year...

My gyno *rule of thumb, does not do regular internal ultrsounds (not sure of name of it) but my oncologist insisted. I had one every 4-6 mths followed by d & c...

I am happy she had me do this though hassle and time off work..

Denise

debi.18's picture
debi.18
Posts: 848
Joined: Jun 2011

Wow...I never realized exactly how many days it was. I started on it in January. Not many issues, a little joint pain and I blame it for not being able to lose my chemo weight.

Hugs,Debi

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

you are doing ok with it!

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

I insisted on a baseline uterine ultraound before starting. Now I will be sure to follow-up like you do!

Congrats on starting your final year!

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Sorry if I freaked anyone out by doing the math. I didn't even figure in leap years, so it is actually more. Why am I so fixated on the #? One day at a time...

Lynn Smith
Posts: 1265
Joined: Mar 2011

I didn't count the days days but counting the months.It will be 3 years in Dec since I started tamox.I was appehensive just taking that first pill.I was afraid of some serious reaction.

I won't have any female problems with uterus/ovaries since I had surgery to remove all that when I was 48.That's been a relief not to have that worry.

Hope you do fine on it and will be able to continue taking it the 5 years.I only have a loss of appetite since taking it.

Lynn Smith

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

...you are doing well on it after 3 years. I had to make a big leap of faith to take the first pill!
Loss of appetite? Never heard of that as a s.e. of tamox. If it meant drooping a few pounds, I honestly wouldn't mind that one.
Be well!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Yep, one day at a time! How are you doing on tamox now? Still ok?

Megan

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Hope all goes well:)
Miles of Love,
~Kari

carkris's picture
carkris
Posts: 4523
Joined: Aug 2009

I was like you, but have been on it two years and it is ok, think if it as starving anything that would cause you harm. My rads onc toldme it was more important than the chemo a targeted therapy. It is your friend. (LOL) it is at least what I try to tell myself.

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

...you think, carkris! Thank you for that!
And good info frm your rads onc!

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Your photo is beautiful!
X0

txtrisha55's picture
txtrisha55
Posts: 424
Joined: Apr 2011

I am from the Uterine Cancer boards. Wishing all on this drug the best but please make sure you do get tested every year with your gyn for any Uterine issues. We have a few ladies on that site that took Tamoxifen, do not know if that caused them to get Uterine cancer but they are thinking it might have help with the harmone increasing leading to Uterine cancer. Praying for good outcome for all the women on these boards. trish

SIROD's picture
SIROD
Posts: 2132
Joined: Jun 2010

You are correct TXTRISHA55,

Everyone on Tamo should have a good yearly check up with their gynecologist while on Tamoxifen. Occasionally this drug will lead to endometrium cancer, the lining of the uterus.

Tamoxifen is suppose to decrease the hormone. It's the side effect of this drug that can occasionally lead to another form of cancer.

It is a good reminder to all those who are new to the drug.

Doris

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Thanks Trish for reminding everyone on tamox that they should have a yearly with their gyno. It is very important!

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

And thank you so much for the concerned reminder.
This is why I insisted that I get a baseline uterine ultrasound and that my hormone levels were checked before I put the first pill in my mouth!
I will be sure to follow-up regularly!

Be well, Trish!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Very important advice Trish. Thanks! Attygirl, how is it going on tamox?

Hugs, Megan

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

So far I feel some hot flashes and some muscle achiness. Nothing I can't deal with, though. Gonna be sure to wear light layers and get regular massages!
Thanks for asking! Hope you are well...

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Oh massages! Now you're talking! lol So far so good sounds great! Very happy for you!

Love, Leeza

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

I'm told they can really help so I am shopping around for a good discount on buying a bunch at a time!

jnl's picture
jnl
Posts: 3873
Joined: May 2009

They do help! They can be expensive, but, if you shop around, like you said you're going to do, I bet you can find some at a reasonable price. Enjoy it!

Hugs, Leeza

desertgirl947's picture
desertgirl947
Posts: 423
Joined: Oct 2012

I started this drug in August. The plan is that I do this for 2.5 years and then it will be changed to another drug.

So far, so good.

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Why only 2.5 years? I thought everyone took it for 5 years.

Hugs, Debby

desertgirl947's picture
desertgirl947
Posts: 423
Joined: Oct 2012

I have no idea why 2.5 years for that. I do know the plan is to switch to another drug, but I forget what that is.

Ctine70's picture
Ctine70
Posts: 150
Joined: Sep 2012

Way to go! You will do just fine :)
Hugs Christine

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

S.E.s are manageable!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

This is good news! See, it wasn't so bad, right? lol

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Not so bad at all, Megan!
X0

disneyfan2008
Posts: 5340
Joined: Oct 2010

Feels like I just started taking tamox and I just started my my 5th year so now down to 10 more mths to go...

Denise

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Time really does fly...

TraciInLA's picture
TraciInLA
Posts: 1839
Joined: Jul 2009

I just hit my 3-year Tamoxifeniversary. (!) And I'm thankful that the only major side effect for me has been hot flashes.

Vitamin E doesn't help everybody with hot flashes, but it's helpful for some, and definitely makes them more bearable for me. I checked with both my oncologist and gynecologist first -- with their blessings, I take 400 IU (just the regular ol' generic drugstore Vitamin E pills), morning and night. I really notice my hot flashes getting much worse if I stop taking it, so plan to take it for my full 5 glorious Tamoxiyears. (!)

Definitely worth asking your doctor about giving it a try!

Traci

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

Thanks so much. Helpful once again! I will look into that vitamin E. I had a vicious hot flash tonight that soaked through my shirt!
Glad to hear you found some relief!

YellowKel's picture
YellowKel
Posts: 1
Joined: Nov 2012

I am newly diagnosed (Only 45 days ago). I know I will eventually have to be on the drug, and know there is a lot of research to do on it.

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

I am so sorry to hear about your diagnosis. But I am so glad you found us here.

I'm assuming you say that you know you will eventually be on it because your doctors have mentioned it to you as part of your treatment. I believe it was presented to me pretty early on as well. But it didn't become a definite until I knew that my tumor was estrogen receptive. Tamoxifen is only used for tumors that feed off of estrogen. Have you been told that yours is "ER+" yet?

There is so much to learn and research. I was particularly concerned about the effects of radiation and Tamoxifen. Thankfully, there are tons of resources out there. This network is a wonderful resource, filled with some very knowledgable people. But best of all, this network is a warm, safe place to bring your fears, concerns, and worries...and your celebrations. And trust, there will be reasons to celebrate on this trip.

Stay in touch...we will be with you every step of the way!
Hugs to you.

CypressCynthia's picture
CypressCynthia
Posts: 3956
Joined: Oct 2009

Atta Girl, AttyGirl :-). So proud of you. There is absolutely no doubt in my mind that tamoxifen saved my life. When I was diagnosed, way back in 1987 with Stage 3, my prognosis stank. Tamoxifen was considered "experimental" by many for premenopausal women back then It made sense to me and my oncologist, so I went for it and took it 7 years (back then we didn't know how long that I should take it).

Obviously, I am still here 25 years later. My mantra is to be as compliant as you possibly can. Sooo happy that you are doing this :-).

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

...to hear, Cypress Cynthia! You are a pioneer! Thanks for paving the way!
Just refilled my prescription...

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

It sounds like you're doing well now on tamox and I am so happy for you! I know how scared you were.

Hugs, Debby

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

I just refilled, too. Have been thinking about you since the storm and so good to see you posting. Hugs, Linda

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