Sep 17, 2012 - 6:21 pm
Asides from all my feelings, I would like to add this: This is just my opinion but I would like to share it to all the stage four's. Ed went through six months of chemo, which really did not do much and all along, right from the start, I asked his doctor to do a brains can because I believe he had brain mets right from the beginning. Ed declined to do the testing, therefore, we went straight into the aggresive chemo. After six months, after ed got dizzy and could not walk, I brought him up to the e/r and they did a brain scan, and yes, he had a golf size tumor on the back of his brain. We were sent to the radiologist, cancer doctor, who said he need two months, five days a week, of WHOLE BRAIN RADIATION, which I was totally against but they talked Ed into it. Into the middle of it, I would say about five weeks, he went from being somewhat able to walk and communicate, to not walking, not being able to talk, to not being in this planet anymore. He finished the radiation on this brain and then was sent home with "hospice".
It is my opinion that he never should of done whole brain radiation. The doctor did tell us upfront that it was only a 5% change of doing much but they did however, talk Eddie into it.
I think enough is enough and I feel that we need to be more demanding of these oncologist, that they put it in simple terms with their patients what they are up against and what are all the odds and how they are probably going to be after all the treatment is over.
This is just how I feel when you find out that you have terminal stage four cancer with prognosis of less than six months. I wish looking back, that Ed did not treatment and just live his life the way he was. I believe today, he and us would of be happier the last year of his life. His quality of life went straight downhill from the first day of treatment.
We all have to make our own decisions, I know this, but I just wanted to share my story.