Sep 17, 2012 - 12:31 pm
Maybe I should know, after all I asked my RAD and ONC doc about the left side of my tongue but neither had a absolute answer. Its a sore that still persists 5 weeks after rads. I was dx with BOT with multiple lymph nodes. 33 RADS 2 Cisplantin 9 Erbitux / just not sure why my tongue was slightly disfigured on the left side, its also the side that swelled a couple of times and caused us to go to the ER when 1st dx. It swelled twice during treatment but now its just like a sore that wont heal and when I eat or drink its where I feel the discomfort. My question is to anyone who was dx with BOT did your tongue seem to be an issue, my RAD doc speculated that sometimes its the nerves at the base that may be affecting the tongue in the mouth. Just seeems the side of my tongue should be healing by now and its not. I go in for CT on 3rd of October so wont be long to see if the cancer was taken care of but still curious about the tongue sores. Any thoughts from you all BOT dx or otherwise will be appreciated.