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Chemo cancelled again due to Platlets

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Chemo cancelled again due to low platlets. Freaking out because every time this happens my CEA goes up. Next week trying again but it will be a month since chemo. Devasted today.

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

That's what started happening to me, Vicki...one week became two weeks, which became one month, which became two...and then we might get one...and then repeat...until...

We had to let this treatment go...the Oxy was hard for me to stay on...

Folfiri is better for the platelets...they don't fall nearly as far and while they still won't recover real well...they don't go down enough to prevent or delay treatment...the WBC's are more of a concern here...Neulasta or Neupogen solves those.

So, maybe the onc will consider foregoing the Oxy now...and move you straight to Folfiri, so you can knock down some of those cells.

Just may be time to switch gears is all....

-Craig

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Hi Craig. I'm on Avastin and Folfiri. Never had platlets issue when on Oxy. My husband read about Mellifolium 30. We are going to go look for it. How have you been? I know it's been rough on you lately coming on the boards but we need you and your great advice.

Big hug!
Vicki

smokeyjoe
Posts: 1428
Joined: Feb 2011

I've never heard of mellifolium and so I googled it....popped up in the prostate cancer forum someone talking about it....weird, I've been on blood thinners, and chemo. combination and my platelets are fine so far for the past two years....now all this low platelet talk has me concerned seems to be a frequent issue. Maybe Avastin related??

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Mine is 65.000 but still going ahead with chemo, my doc is quite aggressive on that!
Hugs my dear friend , hope you recovery very soon.

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

mine were in the low 60's and we still kept going...my onc kept the hammer down too.

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Hi there! It was at 60 today. praying it goes higher for Monday.

Momof2plusteentwins
Posts: 433
Joined: May 2012

So sorry about your platelet level. You said you haven't had chemo in a month, is your platelet level going up in the past month? What do the docs say? Sounds like a common problem, hopefully get that chemo back on track next week. Big big HUGS
Sandy

taraHK
Posts: 1961
Joined: Aug 2003

I've had trouble with platelets too, on my current regime (GOLF-A). We think its the Gemzar. I've had to move permanently from a 2 week cycle to a 3 week cycle. Seems to be working now. Unfortunately not much one can do for platelets (unlike WBC). This is only anecdotal but my oncologist suggested I try eating beef and button mushrooms (together) every day. I've been doing that. Who knows -- but can't hurt, right (unless you are vegetarian, etc.).

I wish you all the best.

I had to have two transfusions but haven't had to recently.

Tara

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Those platelets have caused me to skip treatments but not as long as you have gone. Unfortunately not much to do but wait for body to do its thing to rebuild. Did you say your plates are 60000? My doc wont give if less than 100000....what is your docs cutoff. Pray they rebuild soon. Jeff

tootsie1's picture
tootsie1
Posts: 5001
Joined: Feb 2008

I'm sorry.

*hugs*
Gail

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

seems a lot of us are having platelet problems.i have been off chemo for 2 months .went to onc yesterday and after all i have been thru lately my platelets are finally 67,000 after being 32,000 a week ago.it has just taken time and some trial and error medicines to finally get the go ahead to be back on xeloda again.try not to worry sometimes it just takes time for the body to recoup.just keep your mind in fight mode and you will be fine....Godbless...johnnybegood

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

I will keep you in my prayers...that your playlet count on Monday goes much, much higher.

Alex

Serena99
Posts: 8
Joined: Sep 2012

I was giving NuelastaI for 3 consecutive days when white cells count went down. After that I was going the day after the 5FU was disconnected for just 1 shot. Make sure you take Aleve and Claritin 1each, that morning before NuelastaI. This will help you not to have any bone pain.

Serena99
Posts: 8
Joined: Sep 2012

I was giving NuelastaI for 3 consecutive days when white cells count went down. After that I was going the day after the 5FU was disconnected for just 1 shot. Make sure you take Aleve and Claritin 1each, that morning before NuelastaI. This will help you not to have any bone pain.

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

last year i did folfox6 & when i went for chemo #11 out of 12, my platelets were 53,000 & i could not get chemo. talk about being mad! the next week they were up to 60,000 so i got my last tx. this year i am on folfiri plus avastin & right now i am doing #5 out of 12 & my platelets have been perfect. it is amazing how each of us responds to the tx. hang in there & i will pray hard for those platelets to start producing!
hugs
judy

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

Hey Vicki,

One of my doctor friends who is also a survivor told me to eat mashed potato if platelets go down as thats what saved his life during bone marrow transplant for leukemia. I did. And altho my platelets were borderline and my onc feared stopping of treatment, I didnt have to as the potatos spiked it up - why dont u try eating mashed or baked potato and see if it helps your counts.

hugs

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I am in... will have them tonight. What ever it takes so that I can chemo I will do. Its frustrating that there isn't anything they can give you to spike them up like when white blood cell count is low.

I start taking Chlorella and 4Life Transfer Factor along with multi vitamins, Vitamind C and D. All are suppose to help.

Thank you everyone for your feedback. I appreciate it!

Mashed Potatos for dinner it is then!

Big hug!

Vicki

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

Sending you prayers for the count.

Keep us posted -

eightpawz
Posts: 28
Joined: Sep 2010

My platelets always stay around 65/70, but went in the tank down to 39. A naturopath recommended a product called Real Build. It's like $80 a bottle, but it did help me. Pushed me up from 36 to 55 in 6 days.

Deena11
Posts: 193
Joined: Nov 2012

That happened to me four times during my chemo so it added another month to my chemo time. The second time it happened, I broke down in tears. I was so disappointed and upset. Then, I heard it wasn't terribly rare to have treatments cancelled because of that. I felt better that it happened to a lot of people and they coped. Hope it doesn't happen again to you! Good luck.

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