Sep 13, 2012 - 5:23 pm
Well folks, that was an enlightening experience. They tell me that all in one day was extremely unusual but look at this schedule:
8:30 Met with head of Head/Neck department (he's a surgeon, that's important you'll see later)
I'll get their final suggestions for therapy tomorrow (Friday) as they are presenting my case to the tumor board this evening. That said, the preliminary attack suggestion is surgery is contraindicated here as full radiation is going to be necessary (pretty interesting coming from a surgeon and given that this was strongly recommended by the surgeon I saw here in Dallas). So, it looks like Induction Chemo followed by a full course of Chemo/Radiation is what it will be. This course of treatment corresponds to a treatment plan I got from Baylor Cancer Center here in Dallas.
So, it seems my only decision (and they said it really is mine as they say the data is inconclusive on the effectiveness of induction) is induction or no induction. I'll need to make it quickly as everyone (Dallas & Houston, which ever I choose for treatment) wants to start in the next two weeks.
They did a pretty good (frightening) job of laying out what is to come. Induction will probably not be that bad, but I'm not all the sure about wanting to deal with it and the pump. Chemo/Radiation until around day 14-18 will seem like no big deal and then the hammer will start to fall. Pretty lousy things to deal with through the end of the treatment(s) (6-7 weeks). One thing that I'm really glad that I was told (by a Chemo doc in Dallas) was that my darkest time emotionally will probably be after treatment is over and I don't seem to feel any better for some weeks. He said most Doc's don't really tell their patients that and I thought that that was something that would be incredibly important to know. How else could you have your expectations in place. Thinking I'd start to get better shortly after treatment ended and it not happening, would be really hard to get through.
More to come when I have something to say. I'm thinking of starting a blog from the first day (port insertion) as it might be valuable to someone who comes after me.
Take care everyone and thanks for all the support and ideas/suggestions/observations.