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Thought I'd add to the NED posts!

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

I switched ENTs. I was really unhappy with the one I've been seeing. I am so happy with my new Dr! He was really well versed in my type of cancer(ACC) and he wanted to have an MRI done ASAP b/c I had never had one and my cancer tends to spread along nerves. Spent over an hour in the tube because the MRI was for my brain and all head and neck soft tissue. Also had a chest x-ray at my oncologist appt. Everything is clear! I'll continue to see my ENT every 6-8 weeks for the next year and I'm seeing my oncologist every 3 months. This was a huge weight lifted off my shoulders as I'm sure y'all already know! Praying that everyone else also has NEDs in their future!

Skiffin16's picture
Skiffin16
Posts: 8087
Joined: Sep 2009

Totally awesome...wouldn't it be great to keep seeing these posts, one after another...

JG

osmotar's picture
osmotar
Posts: 954
Joined: Jul 2011

We have hit the trifecta today, 3 NED posts...YES!!!!!

boardwalkgirl
Posts: 263
Joined: Jun 2012

That is great news, I am hoping for one of those myself in the near future. So happy for you.

cureitall66's picture
cureitall66
Posts: 862
Joined: Aug 2012

meaganb,

So happy with your results of ACC. Congratulations.

I sure wish you could reach out and encourage a 24yr old male on here that posted around August 30..on about page 2. He really tugged at my heart. His post topic is "Just Got My Not So Great MRI Results". His post reads, and I quote:

" Cancer is still present in my brain and neck, and the tumor is still in my face. It has shrunk to about half the size it was though. But basically I am terminal? as there are no other treatment options currently available for adenoid cystic carcinoma. :( I did the 30 radiations.

i'm only 24, this sucksssss. what do you guys think of alternative therapies? any that may work for ACC?"

God Bless you and any others who can reach out to this young man and tell them there is hope!

Sam999
Posts: 305
Joined: Mar 2012

Hi Meagan, so happy for you. Wish you many more neds.

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Best three letters in the alphabet...NED..
May all your future scans be the same.

God bless
Tonsil dad,

Dan.

D Lewis's picture
D Lewis
Posts: 1533
Joined: Jan 2010

Thanks for sharing the great news. Here's to NED for EVERYONE!

Deb

CivilMatt's picture
CivilMatt
Posts: 2957
Joined: May 2012

Hi Meagan,

You being happy makes me happy. New doctor, add lots of scan info and good news all around. Meagan meet NED, shy but you got to love him.

Best,

Matt

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

NED is awesome news and I am so happy for you!
Feel good!
Billie

katenorwood
Posts: 1829
Joined: May 2012

meaganb,
Yeah girl you took positive proactive steps and got the best news ever ! As we both know scans forever...but saying this small in comparrison ! Yes please if you can contact spaz..please do ! Let him know there are positives and hope for our dx ! I tried and will continue too. We need to pull all our strenghths together for another that needs it very badly. But again wonderful news girl ! Katie

fisrpotpe's picture
fisrpotpe
Posts: 1338
Joined: Aug 2010

several ways this is wonderful news. with you being unhappy with doc's you changed by being proactive to a team of doc's you feel good about. most of our battles thru the fight are about attitude and when you feel good about something it helps.

more important wonderful news is meeting of NED

congrats

john

luv4lacrosse's picture
luv4lacrosse
Posts: 1392
Joined: Jul 2010

Hooray on the NED!!

All the best

Mike

Tim6003's picture
Tim6003
Posts: 1495
Joined: Nov 2011

Happy for you ... :)

Tim

Crazymom's picture
Crazymom
Posts: 295
Joined: Nov 2011

Congrats ....I love all this positive news. I have CT Skan on Thursday, 13th

Ann

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

Hope your scan is as clean as can be! NEDs all around!:)

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Yep! What we all want to hear.

phrannie51's picture
phrannie51
Posts: 3725
Joined: Mar 2012

never keep stuff like this a secret....it's the kind of news we all love to hear!!! Congrats honey....

p

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Great news! I wish you many many many many NEDs in the future!

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

All these NED's - made my day. Congrats!

Greg

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Glad that NED is out and about these days. Loved Krashpads song after NED. I can sing it in a baritone voice now...
Congrats.

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