Sep 10, 2012 - 2:00 pm
I am new to the network, although I've reading the posts for a few weeks now.
My story - I was diagnosed Sept 2010 (age 60) with Stage 1, Grade 3 endometriod adenocarcinoma, had a TAH and 3 rounds of brachytherapy (internal radiation.)
Faithfully kept all check up with appts/Pap smears. Dr. kept telling me "if it comes back, it will be in the vaginal cuff" and that with a little bit of luck, I'd be "out of the woods" in 2-3 years.
I started having problems with left kidney backing up (hydronehrosis)this May & urologist found scar tissue blocking ureter. Then right side all kicked in. I was set to have surgery to repair this late in August, but when my husband and I went to appt, urologist told me the CT scan I had just had (Aug 17) showed changes from the one I'd had in May - as in, cancer was back - lesion on my liver, lesion on my lung, and "sprinkles" in abdominal/omentum area.
SO...all the stats I can dig up on recurrent (distant) endometrial cancer are really, really bad - like 1 year survival or less????? But my new oncologist (the one who did my surgery retired suddenly this summer) said, when I told him I understood my prognosis was pretty grim, "No, this type of cancer responds well to chemo/Megace."
So, I want to believe my dr obviously, but wish I could find some data to back it up!
I am in good general health, no hypertension/diabetes/cardio issues.
Ladies - anyone have any comments/advice for me?
P.S. I've been admiring the wonderful support you offer each other.