CSN Login
Members Online: 17

How long did it take to eat spicy food

Sam999
Posts: 307
Joined: Mar 2012

I am 9 weeks post rad and can taste most things ( sweet is less) but cannot handle even 1% spicy. Anything spicy really burns my tongue. Flouride stings too.

How long will flouride sting and how long for spicy food.

I know everyone will be differnt but just looking for some examples so i know what to expect.

Thanks,
Sam

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Hey Sam, I'm 5 months post rads and eating most things (slowley). Tonight
I had pepperoni and sauusage pizza which burns the mouth a little but not
enough not to eat it. My taste is not all back, well it is on the first bite or two
then it goes away. The other day I had my favorate "indian chicken curry" which
was pretty spicy but not enough to bother the mouth.
I hope you can eat spicy food soon, just be patient.

God bless
Tonsil dad,

Dan.

CivilMatt's picture
CivilMatt
Posts: 3083
Joined: May 2012

Sam,

I am 24 weeks post and have been devouring tomatoes and cucumbers with salt , pepper, Cayenne pepper, little sugar and a few glugs of Olive Oil. This has really excited my taste buds (in a good way). It burns my tongue a little, but I like it. Matter-of-fact I just diced up a bowl of the stuff and decided to check posts while it marinated and there you were (lucky me). I live mostly on Smoothies, but try to venture out a little. Had a basic McDonalds hamburger the other day and it was just ok. My taste buds are slow (painfully slow) but getting better.

Good luck eating, but good luck (mostly) tasting.

Best,

Matt

katenorwood
Posts: 1862
Joined: May 2012

Hey Sam,
My rads hit my throat hard core. I'm around 9 months out. Pepper is still pretty harsh, and I use to love hot salsa on everything...but still can't handle. My advice is keep trying...and some foods will work, others maybe not. I'm just happy your tasting ! You are doing fantastic ! Keep on with what you're doing. Best of luck sent ! Katie

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

too much black pepper is even too much

anything with spices does not work

anything with vinegar does not work

all alcohol has some type of burn

flouride burns every time

don't think that will change for me, now 16 plus years post treatment

i sure hope it gets better for everyone

john

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

John,

I'm glad you mentioned flouride, cause I thought it was just me, some toothpastes and mouthwashes with a minty flavoer also a bit burny. I am a vinegar nut , aged balsamics..and like you not so much..so instead of using them I take a good whiff evry now and then not the same..but works for now.

Linda

CivilMatt's picture
CivilMatt
Posts: 3083
Joined: May 2012

John,

Honestly, that is what my rad onc warned me about (taste buds). She felt it necessary to treat both sides of my neck (and mouth) to kill the scourge. I did not understand at the time she told me. I commend you for being so honest and forthright.

Best,

Matt

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

weird, I use fluoride every day--never had any problem (also nine weeks post-rad).
but last time I tried to drink grape juice (citric acid), sting city.

lord, I would give back my first-born for a bowl of chinese dumplings with garlic and fresh chilis.

Klynten
Posts: 29
Joined: Dec 2011

I think from most of the responses here you can expect an individualized response from your body. I finished rads in March/April and didn't start eating any food until june, and everything was too spicy. I remember complaining that ketchup was too spicy. My first dental cleaning I made them switch out the paste cause it was too spicy to deal with. I just kept at it because when I started eating (which was a big deal for me) I couldn't taste much, but the spicier I made it, made it more palatable for some reason. I think it was just the fact my mouth was reacting to my food, which excited me. So I just slowly added things, lots of trial and error, and I never tried more than I thought I could handle, but I did push myself. I now can eat pepper liberally, mustard is still tough, most all spices are fine, lemon pepper I love! I wish you luck, everyone is different.

Clint

Sam999
Posts: 307
Joined: Mar 2012

Thanks everyone...looks like thai and mexican food will have to wait for some time :) i sure do miss it!

Problem with flouride is that since it needs to be kept in mouth for 30 mins, i have to numb my tongue twice with licodene. I hate licodene now since it taste very bad. Compared to what we went thru, these are small inconvenieces, no biggy.

Sam

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

can you get magic mouthwash with lidocaine? doesn't taste great, but tolerable.
I've had two different magic mouthwash recipes, both with lidocaine. currently using a mixture of lidocaine, benadryl, and maalox.

D Lewis's picture
D Lewis
Posts: 1546
Joined: Jan 2010

Hi Sam,

I'm 2 years, 4 months out, and my Prevident fluoride toothpaste still burns. I have NO tolerance at all for black pepper; it burns like crazy. Spicy foods, for the most part, came back really quickly - go figure. Within a very few months, I was eating salsas (yummy) and wasabi. As an aside, I'm still struggling with meat... Just can't get it down.

Deb (grateful for delicious Mexican cuisine and sushi)

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

As you can tell from responses, we are all different...

While like you, sweet took nearly two years to totally come back for me, it's back.

I am over three years post Tx, and have 100% of my taste back.

I can't say when the tolerance for spices came back, but they have.

Only advice I can ad is to keep trying every few months, more than likely most if not all of your taste will return.

Best,
John

CajunEagle's picture
CajunEagle
Posts: 363
Joined: Oct 2009

that this subject shows up today. I've been finished with treatment for stage 4, left tonsil for 3 years and 3 months. Last night for dinner, it was time for the final exam on all this eating procedures that seem to have been going on for ages. We went out to our ole Tex/Mex place and I began to tear into a full blown Taco. Yes, it had mild Salsa....but I felt only a little bit of burning sensation. Then consumed half of wife's Fajita platter, and it was just fabulous. Afterward, I went for a Bloody Mary with all the Tabasco, Olives, Celery, Spiced Green Bean, Lemon, and Lime, and passed with flying colors (okay, my eyes did water just a little). It's not that I care to do this every night, but great to know that the old options are still out there. Alleluia !!

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Yu da man....

Glad things are working out so well for you also...

John

amy_h414's picture
amy_h414
Posts: 98
Joined: May 2012

My husband finished treatment about when you did and he is eating some types of spicy foods but not all. If we go out for sushi, he will eat lots of wasabi which to me is very spicy but he loves it. But he ordered some Thai food recently that he couldn't eat. He'd requested it to be mild and even still it was just too hot. So maybe give different things a try, some might be more tolerable than others.

phrannie51's picture
phrannie51
Posts: 3848
Joined: Mar 2012

I'm still pouring my Boost down a tube, so my only contribution to the conversation is thanks to all for ideas in my near future :)

p

Mikemetz's picture
Mikemetz
Posts: 355
Joined: Nov 2011

I love spicey food and compete in chili cookoffs and salsa (not the dancing type) contests. So I was anxious to know how my taste buds would react once I graduated from Boost, yogurt and scrambled eggs. At first even ketchup was too spicey--so forget mustard for a long time. I was able to get back most of my tolerance for spicey foods, but nowhere near the level before my cancer treatments. My wife acts as my "canary" when we are offered spicey food, and lets me know if I am OK or not to try it.

I still can't drink high-tannic wines and vinegar burns my mouth badly, so I think the issue boils down to a food/beverage's acid level for me.

Gradually I think about 90% of my ability to handle and taste food has come back--it's just that certain foods are going to stay out of bounds for the rest of my life. Probably the same for most HNC survivors.

Mike

hwt's picture
hwt
Posts: 2002
Joined: Jun 2012

What I can eat without any issues one day plays havoc on other days. Having taco salad no shells tonight, no seasoning in the meat, very very light on the mild sauce (if any) and extremely heavy on the sour cream to offset. Learning to be creative.
P51, you make me laugh anytime the subject is food, I will be so happy to hear when you can eat again :-)

ditto1
Posts: 634
Joined: Mar 2012

today. Seem to be tasting better than I thought I would. As for spicy not sure, went out to eat with Diane and had a Wong Tong Taco at Applebees, I thought it was spicy she said no. Still have a little mouth irratation just finished a thrush episode so my taste and burning might be skewed. Looking forward to a trip to Taco Bell, so will see where I stand on tasty then.

phrannie51's picture
phrannie51
Posts: 3848
Joined: Mar 2012

after Taco Bell....every time I drive by it, my car wants to swing in and pick up a 5 layer Buritto....

Won Ton Taco? Is that Won Tons with taco filling? Tell me, what is that little delight, I'm so curious these days when it come to anything about food :).

p

TheOtherDitto
Posts: 57
Joined: Apr 2012

A won ton wrap is deep fried like a taco shell. There is spiced chicken and slaw in the taco - kind of an Asian taste. They taste best with a lime squeeze over the top before eating it. GREAT STUFF and very addicting!

phrannie51's picture
phrannie51
Posts: 3848
Joined: Mar 2012

drool going.... :)

p

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

I am 12 weeks out this Friday and while some of my taste is back, some of it is warped. I was always a lover of fruit and now when I try it almost all of it tastes like vinegar! If I have mixed fruit in front of my and close my eyes and eat it I can't tell what is what, it all has vinegar taste. Bananas taste normal to me but burn the heck out of my throat. I was always a spicy food lover before, spicy everything!!! Now not so much and I miss it. On the flip side some thing's that shouldn't taste spicy do and not in a good way. My poor husband has to try everything for me first. Ketchup and mustard are no-gos at this point but I'm hopeful that it will get better.I'm so thankful we all were able to have such wonderful treatments that is almost always successful in curing us but I sure wish more could be done to spare our taste buds.

CajunEagle's picture
CajunEagle
Posts: 363
Joined: Oct 2009

up to 6 months after tx. Twas never a big fruit lover, but in an effort to just eat fluid based foods to gain weight and get rid of the dang peg tube, I worked on eating fresh peaches....Cantalope....Watermelon....and that light green melon concoction that Chemo-brian will not let me remember it's name. :) All tasted like Vinegar. Oranges, Grapefruit and Strawberries were a no-no (maybe the wrong time of year). Went to Guam and Saipan about 10 months after tx and a lady there gave me a fresh Mango to try, and "Wow" that did the trick for me. It must have needed something to bust open the wall, because on the way home the fruits and salads on the flights home were terrific. Some really great tasting foods, and now I'm all over fruits and veggies. Ketchup.....I can eat now, but just don't care for it. I'm 65 and must have eaten at least 200 lbs. of French Fries in my life....covered in Ketchup. By leaving it off, I never knew what good fries tasted like, until now.

Larry

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

LOVE Won Ton Chicken Tacos. But they sting, and sometime hurt. But I'm sitting here, and would STILL love to have some. I recall gazing wistfully at the catsup bottle on the restaurant table, then the joy of getting my beloved condiment back. A few months ago, I did some backsliding, though, and now catsup stings again (I still eat it, but not as much). Some foods are painful - it's a trial and error thing.

As for salad dressings - I have noticed that the regular, shelf bottled stuff stings - the more expensive refrigerated all natural stuff does not burn.

If I eat food that's too spicy now - my ears burn and hurt - my son sometimes laugh, because if I overreach on the spice meter, I end up with tears in my eyes, holding one or both ears.

Reminder - water isn't too good for the spicy burn - try holding milk in your mouth.

On the other hand, thought, it seems my sour may be off. My kids gave me some (hee hee) "hydrating" gum that was so sour, it made them suffer, and they had to spit it out. They gave me some, and I thought it was pretty good,and kind of on the sour side.

I miss Grippos bbq chips, but I can eat mustard - go figure.

meaganb's picture
meaganb
Posts: 237
Joined: May 2012

Phrannie, I get so tickled when I read your posts about "lusting" after food! Hoping you get to actually enjoy some very very soon friend!

phrannie51's picture
phrannie51
Posts: 3848
Joined: Mar 2012

Lust is precisely the right word. I dream about it (last night I had a PLATTER of tuna sadwiches with tomatoes on them in my dream, with corn chips and hummus on the counter...don't ask me, I've never ate the combo)....:)

I'm obsessed and I don't care who knows it. I've also learned who to talk to about my obsession...hubby eats functionally, you can feed him anything, and he simply fuels himself...my neighbor, however, is the main cook for his family, and understands all the nuances to fine eatery. I LOVE talking food with him.

p

Greend's picture
Greend
Posts: 679
Joined: Feb 2010

Spicy foods almost cost me a marriage...my wife loves it (I did too before treatments) but it seriously hurt afterwards.

Bigfuzzydoug's picture
Bigfuzzydoug
Posts: 154
Joined: Jul 2010

About 90 days before I could eat spicey foods again. It was the carbonated beverages that got me. 6 months before I could even think about soft drinks. Tried some champagne about 9 months out and thought I had poured batery acid down my gulet!

Thank God beer was a different story! 2 months and I could once again enjoy that nectur of the gods.

Sam999
Posts: 307
Joined: Mar 2012

Wow! This was really nice info! Everyone's exp is truely different!

Phrannie, I will be so happy when you start eating. We will all have a cyber taco party in celebration :)

I am now trying to try a tiny bit at a time and it is working. E.g. I made my own salsa with only a tiny bit of chilli, that tastes good.

I will have to work thru flouride sting till it goes away! Magic mouth wash they gave me (walgreens) taste worst than lycodine, so sticking with lycodine which taste very bitter.

Also i find that I am very sensitive to outside food, have to keep trying.

Pam, i also noticed that shelf salad dressings sting ( even with no spice) but the refrigerated or home made does not!

A freiend bought me a home made very moist bread and that tasted so muh better! Still do noy like store bought bread.

Also cannot eat any canned food yet.

Sam

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Still take half a pain pill to eat, Mustard was teh burner for me, pepper even a flake on my eggs, hurts my throat.....it continues, over radiation, and openned nerves...live with it...beer is not a problem,,,,lol

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network