Sep 06, 2012 - 10:51 pm
As I understand, CSN has removed a member of this discussion group for proselytizing. I have reviewed your policy regarding religious postings. The two primary objections to any such postings were actual proselytizing for a particular faith and/or being disrespectful of another's religion. The member in question, never, in any of his posts, disregarded or abused this policy. To ask for prayer and to encourage prayer is not an violation of the CSN policy. Even Christopher Hitchens, an avowed atheist, was not offended by my well wishes and encouragement for prayer.
As caregivers and patients, our numbers are small; yet, esophageal cancer is the second deadliest form of cancer. Further, the rate of increase of incidence of this deadly cancer is one of the highest.
Do you or any of your monitors have esophageal cancer. Do you or any of your family members serve as caregivers of esophageal cancer patients. If so, you should know: The diagnosis is a shock. The treatment is brutal. The surgery is invasive. The recovery prolonged (if you are so lucky to get the surgery). The results are life altering. This site was a place of refuge, hope and information for EC families.
By removing a member who has spent the last 8 years giving hope for survival, you have done a disservice to all esophageal cancer sufferers and their families. You have deprived those yet to be diagnosed of valuable information and support. Of more importance, you have removed one of the most studied and consistent encourager and informer of the vagaries of the diagnosis of esophageal cancer.
The discussion group is now in disarray. Members leaving in protest. CSN refusing to respond to member queries and their calls for re-instatement of the removed member. You've asserted your authority. You've shown your power. What have you accomplished. You have left a void. Are you qualified and willing to answer each new, frightened soul who comes here seeking a glimmer of hope. Are you willing to look requested information and provide a knowledgeable response. You removed someone who was and did.
Further, without notice, you removed my "Sent" emails to the member in question. In your over zealousness to erase the existence of the banned member, you over-stepped your privilege in removing my emails. My emails were in no way in violation of your policy, and I request that they be recovered. So many people have been harmed by your thoughtless action. BMGky