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Members Online: 20

Farewell, friend.

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

Please help us. You will be missed by many. Just know that all you have done for me will forever be appreciated. And for those who didn't get to know you, it truly is a loss. I hope you find peace and you will know how much you meant to me.

Thank you for your advice and your hand and your guidance...

~Jayme

ellamenno's picture
ellamenno
Posts: 142
Joined: Aug 2010

I wish you peace.

So long friend.

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Laurie-How did you know so early of these developments? I'm just curious.

ellamenno's picture
ellamenno
Posts: 142
Joined: Aug 2010

private message him I got a message that said I did not have access to that page. From there I discovered all his posts were gone.

Peace, Laurie

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

I haven't checked in for a couple of days so I'm out of tune with whats going on regarding William. Would you please bring me up to speed?

Dave

ellamenno's picture
ellamenno
Posts: 142
Joined: Aug 2010

William has either been banned or has voluntarily left the site. All his posts have been deleted and his "about me" and "expressions" pages are gone as well.

Sigh...

Ucsf_smile's picture
Ucsf_smile
Posts: 81
Joined: Sep 2011

Oh no!!!! This can't happen....
I'm confused and surprised. He along with so many others have helped me so much. My mom and I are forever grateful. I hope the deletion is reversible.

rose20's picture
rose20
Posts: 282
Joined: Jan 2011

It seems like my posts are being removed as well or censored perhaps because I am a friend of William and Loretta?

To all of you who believe in prayer, just keep praying, don't let this drag anyone down.

Keep up the fight with this horrible cancer.

When discouragement comes in just "look up." There is Hope.

As for my brother Jr. he is still with us.
His anniversary was just a few days ago and he and his wife are just thankful that he is here.

Remember he was given just a month to live in July but here he is.

One day at a time is all any of us can do.

Thank you to those of you who have stood by me and been like a family.

I am on the FB CSN Esophageal Cancer Group for those of you who do not belong you need to join in, at least there you can feel safe and free to voice your heart.

My prayers can not be censored, after all this is just a board, what is that compared to the God who rules this whole world!!

The world is changing so this is no surprise, but Praise God I know Who sits on the throne and He is there for each and every one you.

Come join us in Facebook!!

lenlee65
Posts: 47
Joined: Aug 2012

On my way!

ellamenno's picture
ellamenno
Posts: 142
Joined: Aug 2010

Can someone tell me the exact name of it?

rose20's picture
rose20
Posts: 282
Joined: Jan 2011

https://www.facebook.com/groups/140991832678744/

Just go to face book and type in "CSN Esophageal Cancer Group"

JimBing
Posts: 2
Joined: Aug 2012

I do not post, well I never have, but the FB page returns "The page you requested cannot be displayed right now. It may be temporarily unavailable, the link you clicked on may have expired, or you may not have permission to view this page"

I read most all the posts here and at a couple of other sites and have never found any of them "offensive" in anyway.

We all have different ways of dealing with this cancer. I have had chemo/rad and THE surgery. It all sucked. I am scared to death of it coming back an I want to read what others have been through, especially those that have survived as long as William has.

Jim

stephikindred's picture
stephikindred
Posts: 153
Joined: Mar 2012

I would like to join the Facebbok group as well.

mruble's picture
mruble
Posts: 179
Joined: Jun 2011

It's a terrible thing that William and Loretta have been banned. They have truly been an asset to so many of us. For those wanting to join the Facebook group, it is private, meaning you can't find it by searching and must be added by a friend. You,re welcome to send A friend request to Mary Lewis Ruble and I'll get you added.

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

I joined the Facebook group. Thanks!!! It is my belief that God is in control too, Rose. That is a great comfort to me personally.
I also think everything happens for a reason. Sometimes we do not know at the time why it happens. I miss William's sage advice and little stories and comments.

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

I didn't always see eye to eye with William (small matters always), but a permanent ban? That's outrageous! Willam and Loretta are nothing but helpful here. Between William and Sherri, we had our own encyclopedia of EC knowledge.

What a loss. CSN moderators must not realize what a treasure William and Loretta are to the site.

Hopefully this can be reversed. The Marshalls are a great resource and so comforting to newbies with William's long term survival.

Terry

Another advocate to return William to the board

oriontj
Posts: 390
Joined: Jul 2009

but that was fine. He was an inspiring resource to EC patients. He went above and beyond to help people.

I never cared for his manner in treating some not all newbies including myself. My husband is very stubborn and did everything his way. I stated that in 2009 and he was rude and insulting. He said I had been abused. Like what?

We worked it out. We lost a good man and woman when CSN did this. They should know better.

jan

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

Jan
I remember how you were treated by the Marshalls---I was very uncomfortable & confused by their responses to your situation. Your honesty & ability to forgive & move on are inspiring! I think we all need to treat each other with respect. That being said, I do not think it is right to ban them permanently.

oriontj
Posts: 390
Joined: Jul 2009

No he doesn't deserve this ban, not at .

I'm not the only one he treated harshly. There have been others.
It was as if you didn't treat him like he was the end all, he took great offense.that's when he became rude. He never liked me and I never liked him at all. He came off add pompous and mean spirited. I didn't fit his vision of a devoted care taker. But he never walked in my shoes. He didn't have any patience with this type of woman.

However, that didn't warrant a removal. I have no idea what church he belonged to. Don't think he ever mentioned it. I found all the scripture references tedious, so I didn't read them. Everyone had that choice.

But he was worse to some other outsole than he was to me.

mmr19
Posts: 88
Joined: Feb 2010

I can't believe it! Is there any way we can get William and Loretta back? They are a HUGE asset to this board. What a shame if their incredible knowledge and helpfulness is denied to those who need it.

Marta

rose20's picture
rose20
Posts: 282
Joined: Jan 2011

Do you all have a facebook account? I believe you have to have an open account with facebook. If you do let me know your name on facebook and I will add you.

If you do not have an account it is easy to open one up.

stephikindred's picture
stephikindred
Posts: 153
Joined: Mar 2012

Stephani Kindred is my name and thank you Rose!

MartinG5602's picture
MartinG5602
Posts: 22
Joined: Jun 2012

Please add my name

Barrie Gravel

Thank you, Rose

MartinG5602's picture
MartinG5602
Posts: 22
Joined: Jun 2012

Please add my name

Barrie Gravel

Thank you, Rose

NLMCEM
Posts: 52
Joined: Aug 2010

tried to find you on face book I am Carolyn Mancino

JimBing
Posts: 2
Joined: Aug 2012

I have an account, please add me
Jim Bingaman is my name and thank you Rose!

tgh30111
Posts: 7
Joined: Sep 2011

I'm Tammy Hounschell please add me.

TGerber
Posts: 3
Joined: Aug 2012

My name is Tracey Bliss Gerber on FB

NLMCEM
Posts: 52
Joined: Aug 2010

carolyn mancino

Helena50
Posts: 20
Joined: Aug 2009

Please add me. Helena Ferreira.
Thank you.

sideways's picture
sideways
Posts: 21
Joined: Aug 2012

Please add me too. Gregory Sydow

As for the Banning of William and Loretta, CSN should be ashamed of themselves. For the short time I've been here I read a TREMENDOUS amount of insightful, helpful, and encouraging posts made by William. He took time out of his busy day, along with Loretta, to call me, a total stranger, to help ease my fears and give me some quality much needed information.

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

Is that you?

sideways's picture
sideways
Posts: 21
Joined: Aug 2012

That's me with the diving pics :) I received 2 friend requests this morn, is one you?

Greg

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

That's me!

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

Lots of people with your name on FB. What's your picture of?

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