Sep 05, 2012 - 3:16 pm
My husband completed his treatment for HPV+ tonsil concer w/spread to lymph nodes December 14th 2011. Treatment plan included removal of both tonsils, 7 weeks of radiation and 2 chemo sessions. He had a clean pet scan in April and was feeling pretty good. At the end of April his voice changed and throat was hurting. They put him in the hospital and said he had a lot of radiation junk and also a small bone. They removed everything and he felt great again until July.He woke up one morning and blood just started shooting our of his outh. Rushed him to er and they did emergency surgery. ENT believed he had necrosis - blood loss and bone death due to the strong radiation. This probably explained the episode in Aptil as well. They said he was not healing as quickly as he should be. So they recommended 30 HBOT sessions. Just finished them and had another procedure yesterday. The ENT took 3 biopsies and they all came back clean. He stated that he believes he is cancer free and is seeing some improvement in healing but not as much as would have hoped. So now he is sending him back for 20 more HBOT treatments. Question - has anyone had this kind of problem? We are coming up on a year and still dealing with the inside of his mouth not completely healed. If he isn't any better after these 20 treatments they are going to send him to University of Iowa City Hospital. He is now getting treatment in Des Moines at the John Stoddard cancer treatment center. I really like all of his doctors and his ENT studied at MD Anderson in Houston. Sorry for rambling - but has anyone heard of this before? It's a bummer - you are NED but still dealing with the other side affects.