Sep 05, 2012 - 8:16 am
I was initially diagnosed with DCIS on 1st June 2012, and told I needed a mastectomy with an immediate strattice reconstruction. My diagnosis was made after I found a lump on my left breast and I had a core biopsy, but the lump I found was not biopsied or scanned. My Doctor said that the lump was most likely DCIS too, and would be removed with the mastectomy anyway. Having had surgery I've been told that 'surprisingly' the lump was grade 3 and over 5.5cm, so I will need chemotherapy and radiotherapy. My Doctor has admitted that, had he known that I had an invasive cancer alongside the DCIS, he would not have performed an immediate reconstruction, as this will be damaged by the radiotherapy.
I am in a real panic because I, like most people, really struggled to come to terms with having a mastectomy and only managed to come through with the thought that once the surgery was over I could start to get my life back on track; I'd just been made redundant from my job before my diagnosis. I'm really worried about coping with chemotherapy and radiotherapy but, also if I can trust my medical team to get it right, as not only did they diagnose me incorrectly I've now got internal stiches (which should dissolve) poking through my skin as they weren't trimmed down!!
How do I know that I'm getting the right strength chemo'? Should I be asking for a double mastectomy? My Doctor says 'no' but I will have the constant worry that the cancer will appear on the other side. I'm so fed up of worrying about this and I'm only half way through my treatment. How do you all cope????