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Just saw Dr and now have hospice consult

amy2951
Posts: 5
Joined: Sep 2011

I am Stage 4 Endo Ca, I have been on 5 chemo's and unfortunately none have worked. Needless to say, I am very upset, but strangely relieved I will not go thru the living hell from chemo and afterwards. Any words of encouragement or success stories is appreciated. Thank you

April
Posts: 34
Joined: Jul 2012

I'm so sorry to hear that you're going through this. Don't give up! I had a friend who had a bone marrow transplant at Georgetown Hospital. He had so many complications that it didn't look like he could possibly make it. I've never seen anyone so close to death that pulled out of it. It's been approximately 20 years now and he fulfilled his dream of becoming a Christian psychologist. He is still doing great. I will be holding you in my prayers.

nempark
Posts: 580
Joined: Apr 2010

Amy, April is so right. My 44 year old daughter has blood cancer and is still in treatment. Her induction treatment failed and after receiving a new chemo she got a serious sepsis infection. You cannot imagine how terrible this was. The rapid response team was called in and about three Docs told me that it was the end and due to low platelets that she could bleed to death and that I should not resuscitate her. That was two months ago. Do not give up. I hope you find comfort in our messages and try to get more medical help. Please keep in touch.

amy2951
Posts: 5
Joined: Sep 2011

Thank you April and nempark, I have been on this board since I got diagnosed last year, and finally decided to share. I appreciate your comments and stories, they are keeping me from getting too depressed. I am a fighter and will try and keep myself going. Willpower and the love of my family and friends plus faith will help me through this. I am not a religious person, but spirtual and I will take what ever wisdom you can give me

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I agree with everyone who has posted...DO NOT GIVE UP!!! Easy for us to tell you, but you have to pull up your big girl pants and keep the fight. Surround yourself with positive people, read books on mind-over-matter and the power of positive thinking. Whatever it takes to bring yourself up and smile and know you can endure this demon.

Have you considered a consult with a naturopath? This might be an option, as they heal the whole body and give it strength to fight.

Sorry you waited to respond as were behind the scenes, but know we're all here for you. Come back and keep posting and we'll keep pumping you up to continue the fight.

Cancer is not a sentence, it's a word!!!
Jan

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

I really wish there were some magic words to rid all of us from this scourge of cancer! I do know that TRUE peace of mind will go further to cure than we think. Dr.s are not God and five drugs or types of drugs are just the tip of the ice burg. Just try finding the deep peace and then look at your options again. Please hold on...WE need you to be with us! Best, debrajo

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

I really wish there were some magic words to rid all of us from this scourge of cancer! I do know that TRUE peace of mind will go further to cure than we think. Dr.s are not God and five drugs or types of drugs are just the tip of the ice burg. Just try finding the deep peace and then look at your options again. Please hold on...WE need you to be with us! Best, debrajo

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

I really wish there were some magic words to rid all of us from this scourge of cancer! I do know that TRUE peace of mind will go further to cure than we think. Dr.s are not God and five drugs or types of drugs are just the tip of the ice burg. Just try finding the deep peace and then look at your options again. Please hold on...WE need you to be with us! Best, debrajo

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

I really wish there were some magic words to rid all of us from this scourge of cancer! I do know that TRUE peace of mind will go further to cure than we think. Dr.s are not God and five drugs or types of drugs are just the tip of the ice burg. Just try finding the deep peace and then look at your options again. Please hold on...WE need you to be with us! Best, debrajo

HellieC
Posts: 425
Joined: Nov 2010

The other ladies are right - try to hold on. It must be a huge blow to have gone through 5 chemo's with no effect. It may be time for some additional consultations - a second opinion, or alternative practitioners who may be able to offer you other options.

I wonder whether hormone therapy would be an option for you? There are ladies on this board who are being held stable by such therapy, or in some cases, have returned to NED status against all the odds. I do not know whether your cancer is hormone receptor positive, but if it is (or sometimes even if it isn't), then hormone therapy may be a possible treatment that could help you too?

Do not despair of hospice help - they are there to help you to manage your symptoms. But accepting their help in this respect does not mean that you have given up the fight. You can, at the same time, continue to look for further cancer fighting treatments.

I am fighting my third recurrence of this beast and it is inoperable this time around. I am on hormone therapy but do not yet know if it working (they will scan me at the end of October). But my pain has gone, so I am hopeful!

Wishing you a return to good health
Helen

crystalblue1208's picture
crystalblue1208
Posts: 38
Joined: Apr 2012

Amy. I feel your pain and frustration because my younger sister, Amy, is also fighting the same devil (Stage4, Grade 3 Endo) in the hospital at this moment as I speak.
There is no magic word to cheer you up but I just want to let you know we shall never give up on hope. Miracles are rare but they do happen. Have you heard/thought of clinical trial? That’s one of the options suggested by my sister’s doctor.
I don’t know what is the best for you but I will be more than happen to provide you additional information on that if you’re interested.

amy2951
Posts: 5
Joined: Sep 2011

Thank you I am now inpt at hsp for pain management. When I come out I should be in much better circumstances the pain I was having was horrible. I think I will able to really assess the whole situation I can't thank u all four your caring and supportive thoughts

amy2951
Posts: 5
Joined: Sep 2011

Thank you I am now inpt at hsp for pain management. When I come out I should be in much better circumstances the pain I was having was horrible. I think I will able to really assess the whole situation I can't thank u all four your caring and supportive thoughts

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I'm glad you have relief from pain. My heart goes out to you. I pray that you remain pain-free and content with no worry or fear.

Hugs, Mary Ann

ConnieSW's picture
ConnieSW
Posts: 538
Joined: Jun 2012

I have been trying to think of the right words to offer you but everything seems inadequate. Just please know you are in my thoughts.

amy2951
Posts: 5
Joined: Sep 2011

Thank you all so much, Vitas has been coming out I truly feel well supported by all. This board is wonderful, and I wish I would have shared much earlier, thank you all.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Hospice is a wonderful organization with such caring staff. Are you in Naples, FL area? There is a Vitas there and I live close by. Curious.

All the best to you. Mary Ann

ConnieSW's picture
ConnieSW
Posts: 538
Joined: Jun 2012

Its been awhile since you posted. Just wanted you to know you are being thought of and hope your pain is still under control.

Connie

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