Sep 03, 2012 - 9:23 pm
This is just my personal opinion but since I was first diagnosed about 18 months ago with EC I did a lot of research about the disease. I started working with the old Univac Computers back in 1965 and have used a computer is some shape or form since then so when I say researched I mean RESEARCHED. One thing I noticed but have not really followed up on because my personal fight with EC got in the way, is that years ago this disease was prevalent in the Far East and kind of rare in the US. But it seems to be occurring more here now. So the statistics are skewed somewhat by this because sadly, the more people who have the disease the better our medical people will get at treating it and I think it is occurring more because(once again, my opinion and no one else's) it has some ties to acid reflux which has some ties to stress and tension. So while you may be diagnosed as Stage III or IV and the statistics may look grim, everuy day advances are being made, new treatments are being tried and developed. Knowledge is power too. I read a post a few minutes ago urging everyone to not be shy when discussing things with your Drs and their staff. When I was in the hospital after surgery at one point I got on my beside phone called the Radiology dept and threatened to get an attorney and file suit against a Radiologist because the Dr was dragging his/her feet about reading my swallow test and I also once called the Director of Nursing (same hospital stay) and complained because I was in pain and cramping really bad, could not get a nurse to answer my page and I could hear a couple of them talking and joking in the hall outside my door. That particular phone call got some quick results. So do not be shy when dealing with these people, most want to help but they see so many people it is hard and difficult for them to remember and know everything about you. It is up to you to keep that information in and on their minds. And Never Ever Give Up!