Sep 03, 2012 - 4:11 pm
Back from meeting with a roomful of surgeons, oncologist and various hangers on and finally have a plan for surgery. For those that don't know I had rectal cancer in 2004 with recurrence last year. After various treatments was told there was no curative options and moved onto a palliative regime. Then a new publication of radical surgery was published and the local team thought I might be a candidate. It is clearance of all pelvic organs and a hemipelvectomy-taking off half the pelvis and leg. Have spent the last month or so being rescanned and fighting beaurocracy and now have a plan.
Will be admitted on the 17th and operated on the next day. A surgeon from Denmark is coming in for four days as no one in this country has done the op so he will mentor them. It will start with looking at para aortic nodes which if involved marks the end, but if not they will proceed over a number of days keeping me asleep. I will be in. Itu for some weeks and hospital for 2-3 months. Mobility will be by wheelchair or crutches for first six months but might have a chance at a prosthesis after that.
I feel ready and now want things to start. I accept it is a huge cost but it is my only chance at a long term cure (yes I am using that word on this board). They can't quantify how likely that is but it is a real chance but so is considerable morbidity and complications. At present my leg is getting sorer and weaker quite quickly and I am already on quite high dose morphine. I still work full timeout my quality of life is dismissing and will only continue to do so without something radical.
So that is the plan. It is as definite as it can be (I'll only truly believe it is going to happen when I am on the table) and feel it is the right decision. I am of course also terrified but mixed with hope that feels tolerable for now.
I welcome your thoughts and supports,