Aug 31, 2012 - 12:43 pm
Still no more chemo as my immune system is wiped out. I have to agree on this, the last few months I was nauseated and exhausted for 5 of 7 days, and the other 2 were not good, but tolerable, with one infection after another.
Results of the scans were frustrating for everyone to say the least. Pet showed no evidence of Metabolic activity. This should be great news, however, the last 2 showed the same and followups with ct and bone scans showed new tumors and growth in the liver. On this one, we decided to follow up with an MRI to the hips and pelvic where there is increased pain.
Hurts to sit, stand, lay down, and walk. The MRI shows damage, excessive fluid and edema throughout the pelvic, hips and spine, to the bones, muscles and soft tissue. The radiologist suggests some of it could be bursitis caused from radiation damage, some from tumors, some from bone damage from tumors too numerous to count (this always makes me laugh) or it could be from something else? Ibuprofen will hopefully help the swelling.
MO wanted tumor measurements to determine growth and risk for fracture. None of this was noted. The only comparison made is that scans are consistent with previous scans of mets. No mention of the lesions in liver, connective tissue or risk for fractures.
He is skeptical of the pet scan, but I am getting weekly Herceptin infusion again just in case. Pain dr is also skeptical as the last sentence on the pet scan notes tumors too numerous. Good news is no hip fracture, but the scans didn't really answer anything. He will hopefully be going over the scans with my ro!
So I am just going to get back to living and hope for the best. Going with family to Idaho and Yellowstone for 5 days then hopefully to Sacramento in October. Just trying to figure everything out. This uncertainty has been so hard on my family, just trying to find a peace through all of it.