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i am new here ,so thankful i found this

debbie steadham
Posts: 30
Joined: Aug 2012

i have to go for my 3 month check friday ,i get so nervous and feel like i cant be around people are talk to anyone .i just get on here and look at post i feel like you ladies know what i feel.my cancer was found in 2010 they said stage 4 ,i thank God i am here for i know what he has done for me.Would love to hear from some of you ,God bless

mom2greatkids's picture
mom2greatkids
Posts: 516
Joined: Jun 2011

Hi Debbie. Glad you found this group. Just sorry we had to meet this way. I was diagnosed stage 3c May '11. I had 9 month remission, then recurrence this summer. I am currently back in treatment. You will find the ladies in this group to be helpful, supportive and very loving. Feel free to be yourself. You can vent, cry, complain, whatever you need or want on this board! :) It's very scary. I had a chest CT yesterday to see if my pneumonia was gone. I'm nervous about that when I go back Thursday to see the dr. Like I sad, sorry we had to meet this way, but everyone will be here for you!

Carla

lovesanimals's picture
lovesanimals
Posts: 1277
Joined: Sep 2011

You're come to the right place for information and support. We all know how those three-month checkups can be scary and nerve-wracking. Praying for a good outcome to your three month. Please let us know how it turns out.

Take care,

Kelly

Alnik
Posts: 56
Joined: Feb 2012

Hi Debbie Im kinda new to all of this also. I know what you mean i do have a great support team at home but i do feel better talking with others that really get it. I have stage 3 went last week for my three month and ca125 was 8 i was so relieved but i still feel like im going to be livivg three months at a time just worrying about the next test i know that is no way to be but hopefully in time it will get better Good Luck with things on Friday

debbie steadham
Posts: 30
Joined: Aug 2012

i will post more from time to time,i do want to thank everyone for being here ,i wish we could be posting on what colour we should paint our bedroom or something ,lol..i guess we have to do the best we can with what we have..will let you know how friday goes.keep me in your prayers,you will be in mine..have a blessed night

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

Welcome and I'm also soooo glad that you found us. We all know how it feels as those check ups approach. Best of luck with your appt. this Friday and let us know how it went.
((((HUGS))) Maria

mopar
Posts: 1954
Joined: Apr 2003

Congratulations on your survivorship! As you will see, many ladies (and caregivers) here who are wonderful, very supportive, and helpful. This is a great place to vent, or just shoot-the-breeze - no judgement here.

Sending hugs and prayers for a good report at your check-up. I too, am thankful for all that the Lord has brought me through, not just this horrible disease (dx in 2000, recurrance in 2006).

(((HUGS))) & PRAYERS!
Monika

debbie steadham
Posts: 30
Joined: Aug 2012

Hello ladies,i have had some issues with my insurance so i switched ,same company just a suppelment i had to add,well the first suppelment i had added it was hard to find a primary care doctor that would except it,so i dropped that one and added the otherand guess what my cancer doctors office called today to let me know they do not except the one i have now,and my 3 month check is friday ..short notice huh...anyway i have been wanting to change doctors anyway so now is my chance.the thing is i am scared of being late on my 3 month check.i called my pcd to see if she can reccomend someone.she is a very sweet and caring doctor.so sweet sisters if you will say a prayer that i see someone soon..thank you and God bless... Debbie

debbie steadham
Posts: 30
Joined: Aug 2012

Hello ladies,i have had some issues with my insurance so i switched ,same company just a suppelment i had to add,well the first suppelment i had added it was hard to find a primary care doctor that would except it,so i dropped that one and added the otherand guess what my cancer doctors office called today to let me know they do not except the one i have now,and my 3 month check is friday ..short notice huh...anyway i have been wanting to change doctors anyway so now is my chance.the thing is i am scared of being late on my 3 month check.i called my pcd to see if she can reccomend someone.she is a very sweet and caring doctor.so sweet sisters if you will say a prayer that i see someone soon..thank you and God bless Debbie

poopergirl14052's picture
poopergirl14052
Posts: 1176
Joined: Nov 2010

I am sure your three month chech-up will be fine. Good luck in finding another Gyn/onc......Val

debbie steadham
Posts: 30
Joined: Aug 2012

i dont know why or how i posted the same post twice..sorry..like i said i am new to this.Thanks for the kind words it sure helps...God bless.....Debbie

lovesanimals's picture
lovesanimals
Posts: 1277
Joined: Sep 2011

I'm praying that you find and get that appointment with your new doctor very soon and get the three-month checkup out of the way. Please keep us posted!

Take care,

Kelly

Radioactive34's picture
Radioactive34
Posts: 387
Joined: May 2011

Hi, I am on occasionally. I hope to be on more often. I got a lot of support here while I was in treatment last year and would love to pay it forward. I doubt anyone else understands us as much as we do each other.

Insurance issues suck. When I was 3 months out I barely felt normal. I am glad the insurance change will give you the opportunity for another doctor.

:) We are here 24/7. We may not respond right away and some have more experience with some topics than others, but we are here.

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

was the day my life was turned upside down I found out I had ovarian cancer it was not tell much later that I found out it was stage four. I did not want to know at first because I wanted to fight like it was stage one so I did not ask until I was in remission so four months later I asked. I only stayed in remission for around five months so I am back in the fight but I still feel very lucky to be here at all for as sick as I am. I was also very happy when I found this place because I did not feel all alone anymore. I am sorry you are in our club but nice to meet you and please come back with any question you have the ladies on this site are great and they have helpped me very much.

Love, Hugs, and Prayers
Anne

debbie steadham
Posts: 30
Joined: Aug 2012

I want to thank you ladies for your kind words,I was making small talk with a women today and me having had ovc came up now mind u i dont know this woman but she started telling me the women she had known that died from ovc, and she knew that you die from this..I was hurt because it seem like she was trying to hurt me, and like i said i dont know her i have only seen her a few times before..but she sure brought me down.i couldnt believe someone could be so heartless and i pray that God will forgive me for thinking this.Anyway i kept thinking i will be glad to get back home where i can tell my teal sisters .when i came on i noticed where the lady went home to be with Jesus i didnt know her but i feel the lose..Again thanks and God bless and keep you all strong ,I pray for everyone on here and you are in my thoughts.

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

that you ran into this thoughtless woman. Unfortunately, it happens to many of us. I was getting a CT scan when I was first diagnosed and the tech started telling me how her sister died from OVCA and that she took up all her mother's attention! Try to surround yourself with positive, loving people.
((((HUGS)))) Maria

kellyh33's picture
kellyh33
Posts: 288
Joined: Jul 2010

Hi Debbie,
That lady doesn't know what she is talking about. Not everyone dies from ovca. My Mom knew someone that was NED and still is 14 yrs after being diagnosed. Someone has to be on the other side of the statistics, why not you! You have to learn to stay away from the negativity, the next time someone says something like thank them for the encouragement (insert sarcasrm) and tell they you are a survivor not a statistic!

lovesanimals's picture
lovesanimals
Posts: 1277
Joined: Sep 2011

I'm so sorry you had to run across that woman. I'll never understand why some people say hurtful things but I do know this: ovarian cancer does NOT equal a death sentence. My experience from this board alone has shown me that many late stagers (stages 3 and 4) live long and full-filled lives, successfully incorporating on-going chemo. Some stage 3 and 4 survivors become NED (no evidence of disease) and can stop chemo altogether. I myself am a stage 2b survivor. Come October, I will be NED for two years.

We're here for you and praying for the best possible outcome for you!

Take care,

Kelly

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Hi Debbie... Welcome to the group an I wish we could meet on different circumstances. I joined not to long ago. I was diagnosed in January with 3C oc after my hysterectomy. I started treatment in Feb and finished in June. I am now NED. I try not to dwell on a recurrence but not a day goes by that I do not think about it.. I return to work on Wednesday and am so excited.

People can be heartless. I was at a grad party for my neighbors daughter. Someone (An adult in her 60's probably) poked me in the port really hard and said what happened to you... My response was "Oh not much, I just recently finished chemo treatments for OC" and turned and walked away. when I looked over my shoulder at her there she stood in the buffet line staring at me with her mouth wide open.....

debbie steadham
Posts: 30
Joined: Aug 2012

I know when some people find out i had ovc they have this why of looking at me ,like you poor thing .I have never wanted pity i would rather
people look at me and say your a survior.Thats what we all are and we can live as long as anyone as for as that goes because no one knows ,so i put my trust in God the one that decides when we leave this walk of life.I think we are winners we have a purpose and that may be doing what we are doing on here to help each other i know you and some of the other ladies have helped me .I am happy to hear you are going back to work ,that is a great why to start getting your life back to normal as we know normal after ovc ,we can do this.....hugs....Debbie

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Hi Debbie
Welcome to the club. It's a membership none of us really wanted. However it certainly helps,to talk to each other. I know the Lord put us down here for that. I just finished chemo at the end of May. I think we all have had someone say something really stupid to us. People sometimes really don't know what to say. I'm sure I've stuck my foot in my own mouth a few tomes. Anyway you are right on when you said the Lord decides when we leave this earth.
Hugs to you
Shawnna

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