Aug 28, 2012 - 8:04 pm
Last Friday, I posted that the PET scan showed lymph node involvement, and the resident told me stage two.
I met with the doc today, and he said my pelvic area was full of swollen lymph nodes. He said staging was difficult, but he did say stage three. He said the prognosis was still very good, but would be slightly diminished if the lymph nodes are cancerous.
He said there's no way to know, so he has to treat the nodes as cancerous. I go to Duke, but I also got my first opinion from UNC. The doc at UNC didn not do a PET scan. I later asked the doctor at UNC why he didn't do a PET scan. He said that HIV can cause swollen nodes and can make the PET scan confusing. He also pointed out that I have been closely monitored, so the abd/pelvis CT scan was sufficient. He had told me stage one and "completely curable."
When he talks about me being monitored...for the past three years, I've had to have condyloma removed about every six or seven months. I asked the doc today how I could progress to stage three since I had surgery in December. He told me several ways. I think one was that a biopsy might not have been done of the cancerous condyloma.
Anyway...I don't know. I guess I just want to see what you all think. I've been feeling good and I'm still positive, but it just worries me a bit more.
As always, thank you so much for all you do.