Aug 28, 2012 - 2:35 pm
I just want to say how thankful there is a site that I can go to to be around people who understand what my husband and I are going through. I married my husband in May of this year and he had what appeared to be a cleft cyst on the right side of his neck. He had a needle biopsy in October 2009 that came back inconclusive and he had no insurance at the time so chose to do nothing about it. When I met him I was concerned by the large lymph node he had every day and once I got him on my insurance I had him complete a full workup including having the mass removed from his neck. The ENT told us that it really was just something cosmetic because if it were cancer he would be dead by now. I said I wanted it out and so my husband sided with me and he had it removed July 26, 2012. Can you imagine my surprise when then ENT came to the consultation room and told me that my husband had a lymph node the size of an orange removed from his neck and it was deemed cancerous. I was in shock. Since that time we have been looking for the primary tumor. Finally after numerous biopsies last Tuesday, the found the primary tumor at the base of my husbands tongue. He will have that surgically removed on September 13 and then after 4-6 will start concomitant chemoradiation therapy. Our doctor is acquiring a second opinion as to whether to perform a neck dissection as it appears the secondary tumor had spread into my husbands neck. My husband is just now accepting that he has cancer and I am coming to grips that we most likely will not have any children now as we are both now in our 40's and waiting two years following chemotherapy will make it very difficult to conceive. I have been quietly reading the forums since the initial mass was removed, but this is my first post. I don't know what to expect and I have to say I am a little afraid.