Aug 25, 2012 - 8:41 pm
I am so glad to have found this site, and overwhelmed with all the love and support I see here.
In late June of this year, I experienced significant rectal pain, accompanied by large amount of blood passing for an entire day. I anticipated this as hemmorhoids, but when the symptoms persisted over the weekend, I went to an urgent care center. From there it was a GI consult, colonoscpy with biopsy, diagnosis of anal squamous cell ca, tumor 7 cm in size, and CT scan with thankfully showed no mets, and enlargement to 2 local lymph nodes.
I saw the oncologocist and also had a surgical consult, with both docs agreeing that chemo with 5fu and mitomycin and radiation for 5-6 weeks as the best course of action ( I see radiation consult Tues next week, have mediport insertion on Fri 8/31 and start treatment Tues, 9/4.
I am a former nurse, and have done lots of research, and am admittedly VERY anxious.
I understand the best and the worse case scenarios, and am frustrated at the unknown.
I was very worried about my job, and trying to let them know if I could / would be working thru this all. I work in a 3 person office and the impact of being down 1 person is noticeable, plus I just started work there in April of this year. I was very relieved this past Friday however, when our General manager informed me that they just want me to get well, and that our corporate office in Europe is prepared to send help to tide my office over during this whole trial.
That said, I still worry. I am SO type A and like to plan out the future, and of course, cannot.
I had difficulty with diarrhea and burning with my colonoscopy prep and with the barium for my Ct. My rectal area burned so bad, from the acid in my stools and the area was very sensitive. I cannot begin to think what it is like to live 24/7 with a sever sunburn down there for weeks.
I am most afraid of the pain, and not getting pain relief.
I am afraid of losing control at work, either from N & V , diarrhea, or overwhelming pain.
i do not know if/ when/ how to go about looking at STD coverage, etc.
I could go on and on, but will end this for now, and again, appreciate your support.