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What Stage

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

What stage was everybody when they were diagnosed? I was III C

Eileen

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

stage 4

Anne

lovesanimals's picture
lovesanimals
Posts: 1285
Joined: Sep 2011

I was diagnosed at stage 2b after my debulking surgery in October 2010. Prior to surgery, my CA 125 was over 2,800 and it dropped to 7 after my surgery. I've been NED (no evidence of disease) ever since.

Kelly

dgalaxy
Posts: 11
Joined: Feb 2012

I'm stage 4 as well. I have a reoccurance in the lymph nodes of my chest and neck. Mine is a grade 1 (low grade). I believe you have a more aggressive grade though.

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I believe I have a very aggressive one also it seems to be moving fast I am just asking the Lord to slow it down and find a chemo that works I am fourty six and not ready to go yet

Love, Hugs, and Prayers
Anne

dgalaxy
Posts: 11
Joined: Feb 2012

I was 49 when I was diagnoised with this re-occurance. The original disease occurred when I was 24. I'm hoping that indicates just how slow growing mine is, although chemo is not going to put me in remission I have other options that may help.

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

3c, poorly differentiated.

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Kelly my ca 125 was in the high 200's before surgery. After it was 19. After chemo it was 10.

2tim. What do you mean poorly differentiated? Where did it spread to? Mine they found it microscopicly on 1 of the 27 lymph nodes they removed during debulking. Luckily everything else they removed and biopsied and all surrounding organs biopsied came back clean.....

jbeans888's picture
jbeans888
Posts: 313
Joined: Mar 2011

I was dx with III c

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Hey there.
I will try to answer what poorly differentiated is.

Grade 1 (well-differentiated cells) Look more like normal cells and respond best to chemo
Grade 2 (moderately -differentiated cells)
Grade 3 (poorly differentiated cells) Cells look more disorganized and don't respond as well to chemo
These are the most aggressive cells.

Been looking for my path reports. Can't find it at the moment. Starting to think it actually said moderately diff. Oh well it is what it is.

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

So am I the only stage four here I feel so alone lol just kidding but I am suprised that I am the only stage four

Anne

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

like many of us, I had no real symptoms until I developed a hernia which saved my life.
((((HUGS))) Maria

poopergirl14052's picture
poopergirl14052
Posts: 1180
Joined: Nov 2010

Had classic symptoms .pain, bloating etc....but never thought it was OVCA. I have learned a lot about this disease and I with it was out there before I got sick.....Val

kikz's picture
kikz
Posts: 1284
Joined: Jun 2010

Stage IIIc with the same classic symptoms. I waited a month to even contact my doctor because the symptoms were so minor. I was prompted to call because they just wouldn't go away.

Karen

lovesanimals's picture
lovesanimals
Posts: 1285
Joined: Sep 2011

mainly because my mass (tumor) was the size of a baseball. However, during surgery he discovered that, while the tumor had attached itself to my lower colon, it had not spread to the lymph nodes or other organs, so I was officially staged 2b.

Like many of you, I experienced "whispering" symptoms months before my diagnosis (pelvic pain, some bloating) but I didn't go to the doctor, assuming it was my irritable bowel syndrome or ovulation cramps or my uterine fibroid. I never thought cancer.

Kelly

Erixka's picture
Erixka
Posts: 19
Joined: Aug 2012

I don't have my pathology results yet...
Mine is classified as stage 3 because it was in both ovaries (14 cm and 10 cm), in my uterus, omentum and lymph nodes.

Alexandra's picture
Alexandra
Posts: 1271
Joined: Jul 2012

After going to the walk-in clinic doctor mid-March 2012 with abdominal pain, ultrasound showed a tiny cyst on one ovary. Doctor told me "no worries", lets watch it, have another ultrasound in 3 months. Suggested to take TUMS for pain, probably just heartburn.

6 weeks later with strong pains and bloated abdomen I drove myself to the ER. CT scan showed 9 cm pelvic tumor, ascites, mets to peritoneum and omentum. They tapped 3 liters of ascites fluid and cytology came back as adenocarcinoma. CA125 was 1083.

Congratulations and welcome to the exciting world of cancer! Grab a complimentary wig on the way out.

I have not had surgery yet, could be stage 4 for all I know.

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Ok Alexandra you just made me laugh so hard with your congratlations sentace.

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Grab a complimentary wig. Love it. You have a sense of humor that will help tremendously. I guess you know the American Cancer Society gives out a free wig to every cancer patient?

Alexandra's picture
Alexandra
Posts: 1271
Joined: Jul 2012

I know, I was just kidding. Also I'm in Canada.
Buying wigs was the most fun before starting chemo. I went a little overboard and now own 8 (2 human hair sheitels and 6 synthetic in assorted lengths and colors).

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

You go Alexandra.... 8 different looks. School starts Sept 5th and that means back to work for me. I am so excited. I haven't beeen there since January. I am a health aide in the health office at our high school and the doctor told me absolutely no work during chemo. I joke and say that I need to be to work at 7 so I can get up at 6:30 because I dont have to do my hair. I bought 1 wig and a baseball hat that has hair attached to the bottom then I got a wig from the cancer society. I wear the one I got for free when i go camping and we have campfires. If a spark hits it and it burns ok. I don't want my one I spent money on going up in flames.... LOL

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Glad you are going back to work. I just started back this past week. I told my husband it was the first day I didn't think about my cancer for 8 hrs.

I love my wigs too. I bought 2. It is so easy to get ready. Also now that the weather is cooler they are not too warm.

Alexandra's picture
Alexandra
Posts: 1271
Joined: Jul 2012

It's so great that you're going back to work. I miss my job, mostly my co-workers. I am (was) a buyer for a Tier 1 automotive company.

I took my car to the same mechanic shop on 3 separate occasions wearing 3 different wigs and determined that I was treated much better and charged less as a blonde than as brunette or redhead. Men are so predictable...

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

Yes I'm glad to be back at work. I missed the interaction with others. It had been 9months since I worked. I am a CT tech. Was worried I would forget how to do it bur it came back to me.

That's funny bout the wig color. All my wigs are blond. Now that my hair is coming back though, it is salt and pepper. More salt than pepper though.:)

kimberly sue 63's picture
kimberly sue 63
Posts: 408
Joined: Apr 2012

lllc --Involvement of both ovaries, one fallopian tube, omentum lesions, no lymph node involvement or any other organ involvement.

I find it interesting how everyone describes their staging. Here is what I have learned about staging.

Stage I: Cancer cells are found in one or both ovaries. Cancer cells may be found on the surface of the ovaries or in fluid collected from the abdomen.

Stage II: Cancer cells have spread from one or both ovaries to other tissues in the pelvis. Cancer cells are found on the fallopian tubes, the uterus, or other tissues in the pelvis. Cancer cells may be found in fluid collected from the abdomen.

Stage III: Cancer cells have spread to tissues outside the pelvis or to the regional lymph nodes. Cancer cells may be found on the outside of the liver.

Stage IV: Cancer cells have spread to tissues outside the abdomen and pelvis. Cancer cells may be found inside the liver, in the lungs, or in other organs.

Marnel's picture
Marnel
Posts: 42
Joined: Mar 2012

dx in March 2012, started chemo in April and finished the end of July! Waiting for my eyebrows to return (I've missed them the most)!

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Mamael - you and I were right behind each other. I started the end of February 12 and ended the end of June. What did you have? Mine was Cisplaltin/Taxol and I did Taxol twice in a cycle. After a month everything started growing. Eyebrows were the first thing I noticed. Now they re in full and I touch them up a little with color because they are light. Eyelashes are great. Looking good after about two weeks of them sprouting I could wear mascara again. They are thicker and better now than they were before cancer. Everyone said they can come in thicker and longer. Always wanted long lashes... My hair on my head is coming in quickly. My hairdresser suggested taking a folic acid vitamin to make it grow faster and doc approved the start when chemo ended so I have been taking that. Of course legs and arm pits too. lol.

2Tim - At least you have some pepper. I look like a dang Q-tip. LMAO.

2timothy1 7's picture
2timothy1 7
Posts: 337
Joined: Jan 2012

I like that analogy. What does LMAO. Since you teach & are around children a lot you probably are up on all those abbreviations. I used to think LOL meant "lots of love". Found out the hard way it does not. Responded to an email from lady who had lost a loved one with "LOL Shawnna" as I was signing off.

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Shawna yeah that probably did not make that person happy but it did make me laugh. LMAO is short for Laugh my ass off.... which I am doing thinking about the look on that poor persons face when she read your email.

Eileen

shellyanne
Posts: 4
Joined: Sep 2012

lmao is laugh my ass off .

Seraph98
Posts: 5
Joined: Aug 2012

I had my surgery May 7. Originally they called it 1B but after tests I was upgraded to a 2C. Prior to surgery my CA 125 was 47, after surgery it bounced up to 485, it's been coming down by half after each round. I am about to start round 5. Round 4 was a nightmare with me being hospitalized with a random fever for 3 days. I'm hoping for another lower CA 125 and a better time with Round 5.

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Welcome Seraph. My doctor told me after my surgery it probably would have gone up to. She said anytime the abdomen is bothered by something (even a uti) it could affect the number. I expected mine to be up too when I started chemo. Surprisingly it wasn't. It went fro high 200's down to 19 and now at 10 after chemo.... Good luck with round 5 and I hope the number keeps dropping.

Susan53's picture
Susan53
Posts: 177
Joined: Jun 2011

My first path. report after D&C and Laproscopic read right ovary bagged and removed, incased in tumor uterus was biopsied and right ovary and uterus were both Endometriod adenocarcinoma. Did not list grades but would have been a 3 if one had spread to the other. After my MOAS the path. report read Uterine stage 1 grade 2 Endometriod adenocarcinoma. I was a stage 1 grade 3 for the ovarian cancer and it was called Endometriod adenocarcinoma. I was also diagnosed with appendix cancers adenocarcinoma stage 1 grade 3 and goblet cell type (carcinoid) stage 1 grade 3 very aggressive type. My symptoms were mild and I was blessed that all 4 types of cancer were stage 1 with different grades. My CA125 was a 7 and had not raised at all with 4 different cancers. I can't use the CA 125 blood test as a marker. I can only go by how I feel and ct scans or a pet scan. I was diagnosed 8-9-10 and was considered NED late Feb. 2011 so I have enjoyed about 1-1/2 years with NED. I can sport my teal ribbon and my peach ribbon and the appendix has no color that I can find so I go with purple for all cancers. Sharon Hugs

driccia
Posts: 3
Joined: Sep 2012

1C -I was diagnosed in November of 2003 at age 44 CA125 was 875 before surgery. Was in remission for four years. It came back in 2007 had 4 recurrences since. Just had a CT Scan and CA125 is again on the rise. Boy oh boy how I hate the OC.

Susan53's picture
Susan53
Posts: 177
Joined: Jun 2011

What type of cancer was your ovarian cancer. mine was adenocarcinoma. Did you have chemo after your first surgery? I do understand how you hate the OC. I am with you on that one.

Kimmyanne
Posts: 21
Joined: Mar 2012

Stage 3c
Kim

zinaida's picture
zinaida
Posts: 220
Joined: Oct 2007

Stage 2C ; d-s 2007. :)

ptharp
Posts: 190
Joined: Oct 2012

I am a little late on the conversation. I was diagnosed with Stage IIIc. My tumor was encapsulated; however, there was this one lone lymphnode that had cancer in it next to the tumor that pushed me into Stage III.

I would like to know how everyone is coping. Do people with this actually go a day and not think about it?

kimberly sue 63's picture
kimberly sue 63
Posts: 408
Joined: Apr 2012

I think of it everyday, but what has changed since I was officially diagnosed is I don't fret or worry now every time I think of the cancer. I still have moments that it still overwhelms me, but I am determined to fight it and stay in remission!!Kim

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Ditto what Kim said. I feel the same way. I have cancer cancer does NOT have me... I am great for the most part. I just dont thin about it. When I do I get pains in my abdomen. Then as soon as I start doing something else they go away. Hmmm are they going crazy pains. LOL.

I have gone back to work amd just this week I ditched my wig... Things seem to be normal again.... It just seems like every time I turn around I am going to a doc. lol

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Ditto what Kim said. I feel the same way. I have cancer cancer does NOT have me... I am great for the most part. I just dont thin about it. When I do I get pains in my abdomen. Then as soon as I start doing something else they go away. Hmmm are they going crazy pains. LOL.

I have gone back to work amd just this week I ditched my wig... Things seem to be normal again.... It just seems like every time I turn around I am going to a doc. lol

I have accepted the fact that my cancer could return but I refuse to count the minutes till it does.....

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