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I’m now a Bagger!!

just4Brooks's picture
just4Brooks
Posts: 987
Joined: Jun 2009

Hello my friends. I know it’s been a long time since my posting but I’ve had a lot going on a lot of changes with my fight. After 2 years to pooping problems (as most of us Colorectal Cancer patients have) my Ostomy bag was put in last month and so far so good. Last week I took my 6 year old son to see a movie. I haven’t been to a movie in over a year! I hope to do other things like camping, going to the state fair and so on. So, in a way my life has restarted and I’m no longer locked within 10 feet of a bathroom. LOL and so far I’m still NED!!

Brooks

Annabelle41415's picture
Annabelle41415
Posts: 4229
Joined: Feb 2009

I've been wondering how things were going with you. So glad to hear that you are starting to do things again. Yesterday it was probably close to 25 times, but it was mainly confined to a period of two hours and that amount of times is unusual, but when I'm going through days like that, I've often thought about getting it re-reversed. So glad you are posting and thanks for the update. Congratulations on the NED too. Live Life!!!

Kim

coloCan
Posts: 1845
Joined: Oct 2009

Rather ironic that way back you were six months ahead of me.......steve

just4Brooks's picture
just4Brooks
Posts: 987
Joined: Jun 2009

Steve, I agree, and now I'm a bagger too

Lovekitties's picture
Lovekitties
Posts: 2926
Joined: Jan 2010

I know you were really limited before, so go enjoy life now!

Hugs

Maire who loves kitties

Sundanceh's picture
Sundanceh
Posts: 4268
Joined: Jun 2009

It's been a long two years for you - seems like a lifetime I'm sure.

Here's to your newfound freedom and continued good luck with your clear status.

-Craig

danker
Posts: 735
Joined: Apr 2012

Good news always welcome here. Hope there is more of it. Good luck to you.

PhillieG's picture
PhillieG
Posts: 4666
Joined: May 2005

Hi Brooks,
I'm happy to hear you are still NED and that you've resolved the bathroom issues.
It's tough to have to worry about bathroom issues. I'm glad you popped in again.
-Phil

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

I'm just so darned happy to see you back and doing well!!!!!
Winter Marie

steved
Posts: 836
Joined: Apr 2004

It is a brave step to make the decision to go from something that in our minds is 'normal' to a something that is 'abnormal' but clearly it was the right decision and is already having a huge impact on your quality of life. I am soon destined to become a double bagger (urostomy as well) and have to say after having had an ileostomy for a year back in 2004 that part of the process doesn't worry me too much. It quickly becomes so normal and is quite liberating compared to unpredictable bowel habits.

Congrats on the right decision,

steve

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

to see you my friend i think of you often.im sorry you had to become a bagger but if it works for you thats all that matters.still fighting my stage 4 just in my lungs now but having platelet issues.hope to see more updates from you...Godbless...johnnybegood

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Welcome to the club.
You'll adapt to it well. I dont miss all the toilet runs at all. Quality of life is much greater with a bag in my opinion.

abmb's picture
abmb
Posts: 311
Joined: Sep 2009

That's great to hear. I hope that you are able to do more now that you aren't tied to the bathroom:) Take care & God bless. Margaret

fatbob2010's picture
fatbob2010
Posts: 384
Joined: May 2012

Sounds like you made a good decision and that it has dramatically improved your quality of life. Congratulations on being NED; must feel good. Best wishes Art

luvinlife2
Posts: 172
Joined: Jul 2012

I'm really very happy for you Brooks!! Now go enjoy life again!!

Kathy :)

ps. Lovin the NED!!!!

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

Welcome to the club,I'm glad you are doing better.It's not so bad,but keep a few supplies handy.

maglets's picture
maglets
Posts: 2402
Joined: Jun 2006

ahhh that is great Brooks.....so happy for you and NED too

good stuff....hope you really start to get out and enjoy yourself

mags

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Cokgrats on NED! I agree quality of life is so important...enjoy your time with your son.

Alex

Kathleen808's picture
Kathleen808
Posts: 2299
Joined: Jan 2009

Brooks,

It is great to hear from you!! So glad you are getting some freedom back!! Enjoy all of it.

Aloha,
Kathleen

RickMurtagh's picture
RickMurtagh
Posts: 530
Joined: Feb 2010

Brooks, so glad to hear you have gotten your life back. Best news today! I had to have my reversal reversed also. What a game changer. Until last week I worked in a bank wearing a white shirt. The year before that never could have happened.

Watch your nutrition. I did not know this for a while, but the last 19" or so of your small intestine is responsible for absorbing fat soluble vitamins. Since yours is busy being tied up being a worthless jpouch (or did you have your jpouch removed entirely?) you need to make sure you are not deficient in all the goodies you need to keep a healthy immune system.

best wishes & peace

Rick

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