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the past two weeks from hell

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

The past few weeks have been really hard on me and now we are talking about a group home I am not ready to be in one but my mom and dad are afried they are not doing enough for me. I am only eating one meal a day and not much then and I ended up in the hospital two times in the past two weeks. when I do eat I lose m bowel no worning just all over me. I so don't want to move out but i don't want to put them through to much. So a lot of cring and a lot of fear right now please keep me in your prayers

Anne

garden gal
Posts: 212
Joined: Nov 2010

I myself will probably be edmitted today into the hospital, it all depends on the kidney numbers. Crosssing my finegers the numbers come down. The thought of a group home scares me, maybe betrween the DR's and you they come up with something that will work at home. Your in my prays. Do they know what causing the loose bowel movement? seems like the should be able to control that. What we have to go through. Does want you to just scream or cry. hang in there. Kathy

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

I'm so sorry to hear that you're having such a rough time. Have the docs been able to come up with any meds, etc. that would allow you to get the nutriton you need?
((((HUGS))) Maria

2timothy1 7's picture
2timothy1 7
Posts: 332
Joined: Jan 2012

Anne it hurts me to see you in such turmoil. How far into treatments are you? Do the drs say this will subside once treatments are over. Aren't you taking cisplatin? Funny how it affects us all differently. I was constipated for days with that stuff. I wish and pray for better days for you!
Shawnna

kikz's picture
kikz
Posts: 1267
Joined: Jun 2010

for all you are going through Anne. Are you still having chemo? Cisplatin did a number on me as far as bowel control. I had several incidents where I could not make it to the bathroom. I ended up in the hospital with low electrolytes. The doctor arranged for a porta-potty for when I came home. I never used it because I didn't have the last chemo and I got well in the hospital.

I pray they find the problem and get you feeling better. This is so hard on you and your parents.

Karen

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

I have been in chemo for over a year now with no end in sight now I have an infection in my leg that if it does not get better I will have to go into the hospital on Monday for IV antiboctics. so here is hoping the pill form works.

Anne

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

Dear Anne, I do wish there was something really profound I could say to make all you have been going through make since. I wouldn't want a group home either, but it does sound like your parents have reached their fear level. They are so afraid they will break and make you feel worse. I don't have a solution except to turn the whole thing over to God and let him take the burden off of you. I will keep you in my prayers and in the meantime let go and let God work. Love, debrajo

lovesanimals's picture
lovesanimals
Posts: 1225
Joined: Sep 2011

I'm praying with all my might that something can be worked out that allows you to stay at home. We're here for you anytime you need support.

Sending you prayers and lots of big hugs,

Kelly

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

mom thinks dad for the first time saw how sick I really was and that is why he is saying group home. She does not want me in a group home and has told him so but he is afiead that if mom is down sick she is also on disability with migrians and fybromyalga and something happens no will know until he get home. He does not understand what going into a group home will do to me I use to run one and no matter how good the manager is once they go home the workers can be so crule I had to fire several for abusing my clients. So it scares me to go into one.

Anne

JoWin615's picture
JoWin615
Posts: 132
Joined: Feb 2011

I am so sorry to hear about your dilemma. The thought of having to leave your home has got to be causing you a lot of anguish and stress. Would your insurance be able to cover some kind of intermittent home health care? This might take some of the burden off your parents, and allow you to stay at home.

Prayers and strength,
Jo

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

no I have ahccess and they will not cover home health care

Cafewoman53's picture
Cafewoman53
Posts: 734
Joined: Jul 2010

I hope you do not have to leave your home but if it happens could it be just a temporary solution? You have gone thru so much lately there has got to be a break for you soon.
Colleen

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

thanks colleen I am still looking for that break now I have an ifection in my leg that if it is not better by Monday anther stay in the hospital

poopergirl14052's picture
poopergirl14052
Posts: 1148
Joined: Nov 2010

Maybe you can get help with home care nurses and nurses aides. Is a group homer like an assisted living home? I hope your legs heals..do have drainage and it need wound care..there is home health care for this also...just a thought my dear girl.....Val

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

there is not drainage my leg just swealled up and I have a red spot near my foot I don't know I got the infection there is no cut or anything. as for home care nurses or nurses aid my insurance will not cover it and I don't have to money to pay for one. I am to healthy for someone to come into the house but sick enough for group home does not make since to me. I am staying home and have my leg up I will know Monday if I have to go into the hospital

Anne

2timothy1 7's picture
2timothy1 7
Posts: 332
Joined: Jan 2012

Just wanted you to know I am praying for you tonite. Let us know how your leg is.
Hugs to you
Shawnna

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

thanks for your prayers

debrajo's picture
debrajo
Posts: 732
Joined: Sep 2011

Anne, we have recently been made aware of a program called(don;t freak)hospital hospice. My sted-dad went there for three weeks before he went into a skilled living home. At the hospital hospice they gave him a priviate room, snacks, three meals,Ensure, wound treatment, counsiling,chaplan services,aids, nursed(lvn,rn), losts of rest, and tons of petting and being loved and cared for. It is a short-term care that gets you back on your feet and gives everyone a little space and down-time. Whats really nice is Medicare pays for all of it. The one here is called Horbor Hospice Hospital here in Texas. Maybe they could help you get some over-due rest. Just a thought, best, debrajo

jbeans888's picture
jbeans888
Posts: 313
Joined: Mar 2011

Anne, I just want to let you know I am thinking about you and praying for you. I hope you can find some help that will be beneficial financially, medically and emotionally. I only have Medicaid and it's a pain to get assistance for things. So I know how u feel

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

thank jbeans888

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

that sound like something I would do if I knew I was coming home in three weeks but I dont have Medicare I have to wait two year to apply for it. I have AHCCSS I will have to check and see if they would pay for it.

Anne

AnneBehymer's picture
AnneBehymer
Posts: 739
Joined: Jul 2011

sorry repeat of the message above

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