Hi Sherri and William,
Please feel free to remove this post, if it is better handled in email.
I'm am working on a list of EC cancer centers (first priority) and list of doctors that can be posted on the web for all to reference. Currently the ACS and NCI do not provide EC specific listing only comprehensive cancer centers. They both provide a look ups by area and ACS provides a referral service, if you call them. But again the referral is just a listing of large cancer centers. ECAN will not post a list, but patient based groups can post the list with the usual disclaimer.
The request to patients/survivors have been posted on other discussion boards, and facebook walls.
If you already have a list from this discussion board, and you would like to share could you let me know ? If not , I would like to put up a discussion topics to ask this group as well.
Also, fyi, for sharing EC information on the web, there are several disconnects that are fixable. For example, the newbie and google search, doesn't get people to the right place, and as you know you don't have alot of time when you first hear the word. I won't bore you with all the IT planning jargon, but there will be a volunteer group of IT designers getting together to see what changes might be done.