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2nd dose of Doxil today

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Good morning dear pink warriors, I'm back from CO and refreshed from the wonderful mountain air. I spent over 20 hours at the top of pikes peak on Sunday for the international hill climb, I was 13,000 feet or higher:) Now today back to reality with my feet on the ground and heading to my second dose of Doxil:( I hate going to chemo but keep hoping this just might be the one. Almost every time I have chemo, I'm alone and it makes me sad, I feel like my family/friends are tired of it/me:( tomorrow will be three years that I've been fighting and I can't blame them if they're tired of it/me, because I sure am.
Sorry about that little vent, what I wanted to know is if anyone else is or has had Doxil? It's really hard on me days 7-10, and I'm wanting to quit taking it. I'm hoping someone ot there has some experience with it, please let me know how you do with it.
Miles of Love
~Kari

New Flower
Posts: 3914
Joined: Aug 2009

Fot this drug please post at ovarian board
They should have someone using it
Please know you are not alone we are here with you and for you
I sent you email yesterday
Hugs

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Kari, you are never alone and never will be. You've got a big bunch of supportive and rowdy pink sisters here for you, now and always. Remember that!

I am sorry this chemo is so hard on you, yet selfishly, I am glad you decided to go on it. I pray that it will help you.

Miles of love to you and miles of prayers,

Noel

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

double post

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Wow...20 hours at the top of pikes peak! I'm impressed, especially since the doxil is hard on you. Like you, I hope this is the one that will work.

I've been doing the cancer thing for 2 years now...and I get it about friends and family wanting off the roller coaster too. I haven't done it yet, but have you considered the ACS reach to recovery or road to recovery programs? Or other similar programs? I know it's not the same as family and friends there for you, but you might develop a new close friendship...and even though we can't physically be there for you, you are in our hearts.

As you know this is always a safe place to vent, so let it all out.

Hugs,

Linda

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I don't know anything about Doxil, but this could be your miracle. I hate that it has to be so hard on you, though. Enough already.

Yeah, I know what you're saying about people wanting off the "supportive friend, family member cancer ride." This disease can be so lonely at times. But, we're all here for you and like Linda said, maybe a good support group could help. I've been going to group therapy for 2 hours a week for over a year and it's helped to save my sanity. Check to see if you have a "Wellness Community" in your area. They have all kinds of classes--from knitting, journaling, yoga, meditation, Tai Chi to group therapy. It's only for cancer patients and everything is entirely free. It's absolutely wonderful.

Take good care. You are always on my prayer list every night.

Hugs, Renee

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Praying that Doxil will be your miracle. Hang in there as long as you can Kari!

Lots of love and prayers,

Diane

survivorbc09
Posts: 4378
Joined: Jun 2009

Glad you had such a great trip Kari. You deserved it! Praying for you on doxil and hoping the side effects will go away for you.

Hugs, Jan

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Good morning Kari. As always, I will be praying for you and I am so happy you got to get away to Colorado!

Keep posting to us Kari!

Love, Leeza

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

How did it go Kari with the Doxil?

VickiSam's picture
VickiSam
Posts: 8219
Joined: Aug 2009

Linda and Renee suggestions are awesome. I think we have it in the back of our
minds that with budget cuts, or our home town locations perhaps there are not
many programs out there for us. I pray and hope that your Oncologist, or
his Social worker, Hospital Adm can get you in touch with several agencies, or
groups.

I am sorry that you are alone while enduring those chemo infusions -- My vision
is that of you .. sitting getting infused .. wearing your 'F .. Cancer' Tee Shirt, wearing a sassy cowboy hat, and kick assss boots!

Our thoughts are prayers are with you, ALWAYS!

Vicki Sam

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

13,000 feet or higher? I am impressed Kari! But, I have always been impressed with you, and, even more now.

Wishing you good luck with the chemo and praying for you as I always do.

Keep us posted as to how you are.

Lots of hugs,

Lex

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

It's always great to see you on here Kari. I will be praying for you and please don't be a stranger. Keep us informed as to how you are doing on this chemo.

Hugs, Debby

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

I confess, Vicki you have me all figured out, just the wrong day. My F&@K Cancer shirt was proudly worn all day yesterday, the day of my 3 year news break. I absolutely cannot believe I've been fighting this long. But here I sit, still typing, still plugging along and hoping I can pass on some of my experience, strength, and hope to those who might need it, after all, it was so freely given to me :-)
Miles of Love
~Kari

VickiSam's picture
VickiSam
Posts: 8219
Joined: Aug 2009

I so admire your fortitude, zest for life, and ability to push your body to extreme
measures during chemo,in your fight to meet NED.

I do not pretend to know what you are feeling, or emotionally going thru. I do KNOW that
you are a fighter, a WARRIOR and a Mom -- and nothing will stop you from performing
those duties!

Plug along dear Friend, knowing that we all LOVE YOU so much --!

Prayers, Strength and Health.

Vicki Sam

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

If I could, I would be right by your side Kari during chemo. Picture all of us pink sisters always there with you, if only in spirit, you know you have all of our love, support and encouragement.

Wishing I could give you a big hug in person, but, how about a cyber one?

(((((( Hugs for Kari ))))))

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

I am so sorry Kari that you've been fighting this dam* disease this long. It is NOT fair, not at all!

If you can, please draw strength from your pinkies here and know that we are encircling you with our love, hugs and prayers.

Sue :)

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

How are you feeling today Kari? I pray somewhat better!

linpsu's picture
linpsu
Posts: 725
Joined: Mar 2010

We love you Kari, and hope that you are feeling better. You are such a strong lady, and we all look up to you for how you've been handling all that you have had to deal with. Many hugs and prayers and MUCH LOVE is being sent your way, dear Kari.
Hugs,
Linda

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

How is everything with you Kari? Lots of positive thoughts, cyber hugs and prayers!

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I have a F*(% cancer shirt too! My hubby got it for me and he has one too! Cannot imagine 3 years of fighting this. You are amazing Kari and the word fighter, survivor, determination, all apply to you!

Praying and sending hugs,

Diane

Jean 0609's picture
Jean 0609
Posts: 2305
Joined: Jun 2010

So glad to hear that you enjoyed Colorado. Good for you. Hope all went well with your chemo. I really wished that I lived closer, because I would be right there with you for your chemo.

xoxo,
Jean

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

Kari - do you realize how healthy you are (except for the cancer thing)? You spent that much time at the top of Pikes Peak? That is so outstanding. I don't know about Doxil, but I know this that you are strong enough to keep this fight going and you can handle the Doxil!

You might want to check and see if your cancer center has something like a peer navigator program like I volunteer for. They may have something informal via the infusion center or via their nurse navigator. Wish you were closer.

Suzanne

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Check with the ACS Kari about the Road to Recovery program, or, something like that. They usually have very nice people there to help for anything. Perhaps you could meet someone that has gone through something similar to you. I just hate that you go to chemo alone.

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Thank you for all the great advice! I'm going to check into my cancer center and local acs, thank you again. 2nd dose (monthly doses) down and I'm not feeling well, but I'm going in on Friday for more emetics, steroids, and fluids, in hopes to combat those horrible days (7-10). Thank you again for all your kind words, you have no idea how much it means to me to know you all are here:)
Miles of Love,
~Kari

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Yes, we are all here for you Kari! Never forget that! Sorry that you aren't feeling well. Hoping and praying that Friday, your onco can help you.

Hugs, Kylez

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I am glad to know that you're going to check in to having someone with you from now on Kari. I hope that the emetics, steroids and fluids on Friday will get rid of your side effects & that you will start feeling better quickly.

We are here, so, keep updating us as to how you are doing.

Hugs, Diane

MAJW
Posts: 2515
Joined: May 2009

Wishing you better days...hopefully getting the fluids tomorrow will alleviate the nasty side effects....I, too, understand about disappearing friends....my family is very supportive....but friends? Different story....most have gone by the wayside...and actually I don't really care...the one's that are still around are true friends....

Keep us posted....we can't be with you physically but know we carry you in our hearts...
Hugs, Nancy

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Thinking of you Kari and sending lots of hugs and prayers!

Lex

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Kari, how are you doing on the Doxil now? I pray better. Please keep us updated. You've got all of the pink sisters praying for you.

Hugs, Noel

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I am so happy that you got to go to Colorado Kari and that you had such an exciting and good time. You are an inspiration on here to us.

Keep fighting girl,

Leeza

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Always check for a new update. I wish you would post one Kari so we know how you are.

Hugs, Debby

New Flower
Posts: 3914
Joined: Aug 2009

I got a note from Kari. She is doing ok very tired recovering from her Chemo infusion.
Thanks everyone

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Thanks New Flower for this update from Kari! When you talk to her or hear from her again, please tell her that we are all praying for her.

Thanks!

Sue :)

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

I am glad that Kari decided to try Doxil. I am just so sorry it is bringing on the bad side effects. Wishing her all the best and thanks New Flower.

Give her my love!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Thanks for the update. I always pray for Kari.

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

♥ you Kari!

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