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Latest CT Results

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

First off, I would like to welcome all the newbies who have joined this group recently. If I have missed someone, I apologize. I hope your journies will be as smooth as possible and that you find the support you need.

I had my 6-month follow-up scan on August 13th. and saw my medical oncologist yesterday to discuss the findings. Everything looks good--no evidence of recurrence or metastatic disease! The same little blips in my liver and lungs that have been seen on the last few scans are stable and unchanged, so that's all good news. My oncologist refers to them as "freckles" and is not concerned. However, he wants me scanned again in 6 months and I already have the date set and the contrast chilling! I really hate getting all this radiation and wish he would let me go a year between scans, which he will do once I hit the 5-year mark in September 2013--only one more year to go! I asked him how long he will keep following me and he said "for awhile." As much as I'd like to have no more scans, no more doctors appointments and no more lab work, I appreciate the fact that he is monitoring me so closely.

I will be a 4-year post-treatment survivor on September 9th. I hope this is seen as an encouraging example to all of you--it is possible to beat this disease! Of course, I don't have a crystal ball, but I am just appreciating life one day at a time and hoping that I will remain NED. Thank you to everyone who has given me so much support--I truly appreciate it!

z's picture
z
Posts: 1272
Joined: May 2009

Great news! You know this gives me encouragement and hope to see you at 4 years ned. As you know I have scans every 6 months as a lung cancer was found and removed on 9-23-10. I have been scanned at 3 months then 6 months. Now the dr said I could go to a year and that would be next May. To be on the safe side I will have a ct scan at 6 months in Nov. After that one I will scan once a year. As you know the earlier cancer is caught the quicker we stop it. The scans are less damaging than the cancer would be. I wish you well. Lori

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

Congrats on your great news! Don't you just love NED!!! At my last 6 month appointment in May, my medical oncologist said I would have one more PET scan in November and then as needed. I have a lot more "following" since I'm just a little over a year post treatment.
Speaking of radiation - when I went to the dentist this week for cleaning, the gal put the lead apron on me and I said something about more radiation. I had just had a full mouth x-rays the last time and told her. She looked at my chart - no x rays that visit! I know dental x-rays aren't as much radiation as the scans but I think I've had enough...
Thanks for always offering words of encouragement! You are appreciated!!

Ann

StruTanToot
Posts: 108
Joined: Aug 2012

I'm so happy to hear your news! I start treatment on August 27, and hearing that you've done so well strengthens my resolve to beat this thing.

Best wishes to you.

lizdeli's picture
lizdeli
Posts: 522
Joined: Jul 2009

Congratulations! I feel the same way about the scans. I hate all the radiation but I'm glad I am watched so closely. I still go back every 3 months, scans and probes every 6 months. Going for my next scans at MD Anderson on 9/17 & 18th. My doctors said they will determine at that time if I go to 6 months. September 11th is my 3 year mark. Routine colonoscopy next week. Yuck. But at least I don't need to fly to Houston to do that test. A former colleage of one of my doctors at MDA is in Denver so I'll be seeing him. This doctor also worked at MD Anderson so I feel good about that. I'm already in scaniexty mode but we all know how that goes.

I'm so thankful you are doing well! Wonderful news.
Hugs,
Liz

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

I'm in agreement with you--more scans equal more radiation, but they also give us the peace of mind that we need! I'm glad you are being followed so closely and I think we can both feel fortunate to have doctors who are determined to not miss anything! I am sure you next trip to MDA will yield all good news for you. Hitting the 3-year mark is awesome! Too bad we don't live close to each other, as we could throw a big party! About the upcoming colonoscopy, I know the prep is not fun, but you'll get all good news and it will be worth it! Hugs!

Angela_K
Posts: 374
Joined: Jan 2011

You have been and remain such an inspiration to us all. Congratulations!

rds711
Posts: 113
Joined: Dec 2011

Martha, this is such wonderful news! Time to celebrate! Wishing for you continued NED, after all you got more races to run :) Thank you for all the support you have given to me and may God bless!

Randy

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

Thank you to everyone for the messages of congratulations and all the continuing support! It means a great deal to me, as you all understand why getting good news makes us euphoric!

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

You are right--I have more races to run! My running partner and I are trying to talk ourselves into another marathon, perhaps early next year. We'll have to see how things go and if my knees hold out!

And I thank you for all the encouragement and support you give to me!

eihtak
Posts: 887
Joined: Oct 2011

Your support, encouragement, and knowledge mean so much to all of us. Several times I have gone back to re-read an old post of yours when I have had a question and you so often have had the answer or info on where to find it....thank you!!!!! Congrats on your results, and I pray the freckles remain just that for a lifetime (or fade away all together).

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

eihtak, you are very kind and I thank you so much for the congrats on my scan results. I'm glad we can be here for each other!

RoseC's picture
RoseC
Posts: 513
Joined: Jun 2011

Yay Martha!!!

I'm right behind you - I have my four-year-checkup in October.

You are SO VERY HELPFUL and kind and courteous.

What a blessing this site is!

sandysp's picture
sandysp
Posts: 852
Joined: May 2011

From day one you were there for me and have been my inspiration. I can't thank you enough. I have had lots of cancer tests lately and they are all coming out good. With you running ahead of me, I have lots of hope this will continue. Thanks so much and congratulations.

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

I so very much appreciate the congratulations and kind words. I am very blessed to have all of you in my corner, cheering me on! Yes, even after almost 4 years of dealing with this disease and doing very well, I still need a pep talk now and then! Thank you one and all!

Sundanceh's picture
Sundanceh
Posts: 4341
Joined: Jun 2009

Congrats, Martha

:)

-Craig

PS You too, Liz!

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

How are you doing? I hope all is going okay.

Sundanceh's picture
Sundanceh
Posts: 4341
Joined: Jun 2009

I just set a personal record of 15-months clear...in year 8!

Only went one year clear before...and that was in Year 1.

One doesn't expect to be scoring their biggest victories so late in the fight...one would expect to be slipping or just hanging on - not moving forward. Eight years is a long time in the fight - and mine has been mostly active.

We've lost over 300+ on the rectal board since I joined...so many of them were dear friends of mine...folks I had spent time with face to face...and with their families...

We've lost several recently...and it always makes me reflect on why I am still standing - when all of my friends that I joined up with and shared my life with are falling around me...

Well, it can certainly be an empty feeling...

I still expect to recur at some point...having it 3x now, it's hard to run for long...it's a weird feeling, because as I said, I've never gone this far clear...I find myself walking down the Path of the Unknown...

Each new day now sets a new record...I'll just walk as far as I can...while I can...I'm a big believer that Time Will Tell...it always does.

Take care and congrats!

-Craig

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

None of us knows what the future may hold, but like you, I continue putting one foot in front of the other on that Path of the Unknown.

Thank you for the congrats and I say back atcha for being a true survivor who continues to amaze and inspire so many of us!

Hugs--
Martha

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

A belated congratulations on your 4-year post treatment! Your survivorship anniversary was the day before my birthday. The encouragement you provide to others is inspirational. I celebrated another birthday which is a blessing. My family gave me a wonderful surprise party. Two of the nurses who cared for me in the hospital attended. I'm 15 months post treatment.

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

Thank you so much for the congrats and your kind words. I'm so glad you enjoyed your birthday celebration. How nice of your family to surprise you! I never used to get too excited about birthdays, but since having cancer, I see them as true gifts! I will soon be headed to 60 and I can hardly believe it. I'm so glad both you and I are here to celebrate our special days! Hugs!

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

You're welcome! Yes, birthdays are true gifts especially since what all of us have endured. This was the big 60 - lol! When I was younger I used to think 60 was old, but now I think 60 is the new 40 - lol!
I'm glad we're both here, too! Wishing everyone many more birthdays!

Ann

shirlann54
Posts: 161
Joined: Aug 2011

Congrats,On your 4 year,s Martha.In Jan it will be 2 years for me.

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

Thank you so much! I hope you are already planning a big celebration for your 2-year anniversary. According to information I've read, after one hits the 2-year post-treatment mark, the chances of recurrence drop significantly. Now that is something to celebrate!

sephie's picture
sephie
Posts: 544
Joined: Apr 2009

we are close in age, i am 60 next year. i am 3 years post...so glad you are doing well. hugs sephie

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

Yes, next year I will turn 60 too. It's hard to believe, but I am so thankful to have made it this far! I hope you are doing well too!

z810840b's picture
z810840b
Posts: 212
Joined: Jan 2010

Hi sister - so glad to hear your news...i had my 4 year anniversary aug14,,,United and strong!!! Hugs Alyse

mp327's picture
mp327
Posts: 3114
Joined: Jan 2010

Well, congrats right back atcha! That's wonderful! I hope you celebrated and did something special for yourself. We are now marching headstrong into year 5 and I know we will both make it!

I hope the hip has mended and that all is good with you. Please let me know when you get a chance. I'd love to hear from you! Hugs, Martha

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