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Im on fire

ditto1
Posts: 634
Joined: Mar 2012

I tried to look at old post did not find a discussion on RAD Neck Burns so I apologize if its there. Since my last RAD on Friday my neck has been to say the least likely a 2nd degree burn, serious sun burn what ever it hurts and Im hoping to find out if someone can give me suggestions. Matt I will be getting the Silver Sifidain (misspelled)tommorrow from the pharmacy. I remember Matt you talking about the nightly mess on the pillowcases, Im there, it seems to be just scabbing and the Glucan Pro /on the cases. Taking more pain pills to offset, can turn the neck left to right and up and down but it does hurt and seems as if Im tearning the skin, although I know Im not. Warm baths in the morning seem to help to remove the overnite gunk. Doc thinks 2 weeks should be good so now Im coming to the experts. Any adivce to soothe the pain would be appreciated. Thanks as always.

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

That was very soothing for me. Oh and by the way, you can get 3 rd degree burns from radiation. I know when I turned my neck at times the skin would split and bleed, so painful. As for the salt water soaks you just use one cup cold water, one table spoon salt mix well and put it in the fridge for a while to chill. I just soaked 4x4 gauze in the water, wrung it out and placed them all over the affected area at least times a day. Sometimes I did it as much as 5 to 6 times a day. It felt so good. The silver cream does work good too but in the meantime use aquaphor just to coat it after the soaks. Honestly that will heal quicker than anything else so that's a good thing. It is so painful tho and I'm so sorry for anyone going thru it. I too had trouble sleeping because the goo would get all over the pillow, which I always covered with a towel. I have long hair so that was always up in a ponytail for bedtime. Just make sure you don't pick at your neck at all so you don't scar on the beautiful new skin you will soon have.
Good luck to you in the healing part of this journey.
Billie

ditto1
Posts: 634
Joined: Mar 2012

this is just what Im looking for, yes it could be 3rd degree just did not want to over state it, but your suggestions is what I need. How long did it take your neck to turn around to feeling normal and no longer needing all the Goo and treatments?

longtermsurvivor's picture
longtermsurvivor
Posts: 1830
Joined: Mar 2010

both with healing and with keeping the mess confined. i just used vaseline for this. slathered it on thickly, the put a 4x4 over it and taped in place. it will amaze u how good it looks in the morning.

katenorwood
Posts: 1853
Joined: May 2012

ditto1,
Mine was a short stint of rads, but did get 2nd degree burns that simply put....stunk ! I agree with B56. If no relief soon, get back in and tell them. I hope these rotten symptoms resolve quickly ! Will be sending positive thoughts and best wishes ! Katie

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Ditto1, it took about 2 weeks post rads to get major improvement. But no doubt it was worse after rads then during for me anyway. At 2 weeks I was only wearing the goo in a couple of places.

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

yep, exactly what I got.
silver sulfadiazine is the stuff. but the burn spread a bit in my case, took a couple of weeks to cool off. but just keep smearing that silver sulfa on it, very soothing.

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

Can you put anything cool on your neck?

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

Can you put anything cool on your neck?

CivilMatt's picture
CivilMatt
Posts: 3057
Joined: May 2012

Hi ditto1,

The neck burn was my worst pain, as blackswampboy mentioned, Silver Sulfadiazine Cream does the trick. It will form a temp skin over the burn and take away all the pain. It dries up and gets to looking kind of funky, but I would just smear more on. You do not have to remove the dried out cream, but I did so I was starting with a clean patch. I found two ways to remove the old stuff, one was carefully with a Kleenex (it almost flakes or peels off) and the other was with a cool to warm wet was cloth (and it melts off). You’ll figure that part out. The point is, it worked very well. I would spread it on like a turtle neck. If your burn is bad buy the 400 gram container and not the 50 gram size. Lastly, wear a tee shirt you don’t care about messing up and the same goes for a pillow case.

Good Luck,

Best,

Matt

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Just like Matt mentioned. There is also a cream called Rad-X that works even better than the sulfadiazine which does get funky. Don't get sulfadiazine in your drains because it will cause clogged pipes. My method was as bizarre as I am but worked wonders for me although it is quite painful to do. I kept a spray bottle of hydrogen peroxide that I would spray on all the burns and scabbing oozing nasty cracks in the skin. I would then let it fizz up and dab Kleenex around which would grab all the scabbing tissue off. It would bleed some from all the cracked skin but the end result was a very clean wound site. I would then spread on the Rad-X. Oncoman thought I was a bit nuts but couldn't argue with the results. This method is not for the faint of heart. I also wore rather large Hawaiian shirts just as Matt suggested.

CivilMatt's picture
CivilMatt
Posts: 3057
Joined: May 2012

Ratface,

Our pipes are clean. When I use a wet wash cloth the cream melts away and goes down the drain fine. When I use the Kleenex I throw it in the trash. I can’t say loud enough about how good the stuff worked for me. The neck burn was the worst pain I had and the cream made it totally bearable. So, too satisfy the plumber in me I say get some Drano to clean your pipes when using the Silver Sulfadiazine Cream. I kept the stuff on 24 hours a day, when I woke up for the 4:30am pee I would put more on. Now if you are talking a burn like Tim’s picture, then you’re into major burn and I don’t know what he put on his burn.

Best,

Matt

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

I sacrificed a couple shirts by removing the collars, and only used Aquaphor on the burning. Of note is that 3+-years later my neck skin in the rad areas is still redder than surrounding areas. Would advise taking other's advice on their ointment(s). Typical part of the treatment experience.

kcass

Skiffin16's picture
Skiffin16
Posts: 8099
Joined: Sep 2009

So are you a Red Neck or a Crusty Old Bird......LOL

I'm more a shorts and tank top sort of guy, when not at work... It kind of fits the Florida Life Style and fishing theme of course....

The Silvadene is awesome stuff as I've read... It's the go to treatment for many burn victims.

I was never in to the Aquaphor...way to thick and greasy feeling to me. I was lucky as my burns were never much more than a bad sun burn and peeling...must be that Florida Sun I get dosed with every week-end.

JG

hwt's picture
hwt
Posts: 1987
Joined: Jun 2012

Some how I dodged the burn bullet. My skin turned dark brown the week after rads completed and eventually peeled but never hurt. I figured it was because I always tanned easily and had an olive tone. That or I was due to catch a break. Years ago I had a severe grease burn on my hand from a clay cooker and ER prescribed silvadene...it was a life saver. I definitely recommend giving it a try.

ditto1
Posts: 634
Joined: Mar 2012

still sore but better, a messy week to keep the goo going on and off and on and off. Thank goodness for the Washer and Dryer and a great caretaker in Diane to keep me in clean towels, bandanas, and wash cloths to get thru this. Funny the first day I was able to use warm bath water to clean off the Goo, but the next day the warm bath was like throwing fuel on the fire, yesterday a combination of cool and warm both worked some discomfort until I took more pain meds and more Silver Goop. Woke up this morning and did tolerate a warm bath again. I told Diane its like food or drink what works one day does not work the next. Just keep trying. Hope to report more good news next few days. Friday will be one week out so I know I just have to slow down and take it one day at a time.

Skiffin16's picture
Skiffin16
Posts: 8099
Joined: Sep 2009

I loved the showers...and you can adjust the temperature...

Great for helping keep moist and sluffing off the dead skin.

JG

ditto1
Posts: 634
Joined: Mar 2012

when a warm bath in my case works its great. Im finding that at this point the dead skin has mostly sluffed off, and dealing with Bright Red new skin, but still painful. So as I respond and read posts this morning I have had 2 Hydro pain pills, handfull of Siver Goo and just a towel around my neck. So hopefully by this time next week we will be past the Red Neck part, even if the neck stays red thats cool as long as the neck stays cool, Pun im not sure.

ditto1
Posts: 634
Joined: Mar 2012

when a warm bath in my case works its great. Im finding that at this point the dead skin has mostly sluffed off, and dealing with Bright Red new skin, but still painful. So as I respond and read posts this morning I have had 2 Hydro pain pills, handfull of Siver Goo and just a towel around my neck. So hopefully by this time next week we will be past the Red Neck part, even if the neck stays red thats cool as long as the neck stays cool, Pun im not sure.

CivilMatt's picture
CivilMatt
Posts: 3057
Joined: May 2012

ditto1,

The shower was my main way of removing the “goo”. I said you would figure it out.

Keep moving forward.

Best,

Matt

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

Still don't know how I keep missing some posts ..did not see yours till today ...sorry I did not respond sooner.

Looks like you got it under control....I too used that Silvadene stuff (sp) ...but I also used a "mesh like" bandage (for lack of a better word)..I'm at work but I have a box still at home...it looked like "skin" ..I would put the Silvadene on and then layer on those skin looking bandages then wrap my whole neck...there's a picture of my neck in my expressions...

I might can find and post a picture of it bandaged up too....

Praying the pain subsides quickly....my neck was one of the worst pains I suffered as well...

Best,

Tim

ditto1
Posts: 634
Joined: Mar 2012

but so glad to hear from you. The others have given me good advice. Tim this is one messy time of this healing process. I have been on the Silver for about a week now such a mess, able to mix it with something not sure its like oragel for the neck?? Diane is now billing me for laundry service, its amazing how many towels and rags I go thru. (LOL just kiddiing dear) Seems most say maybe 2 weeks to come out the tunnel. I know yours was severe but when did you see the light? Seems Im taking more pain meds than at any other time, neck is red from just below my chin bone to about 3 inches out on my neck, shoulders and front of neck. I realize time is our best healer, and time is so slow, and then boom so fast. Either way Tim again thank you for responding. I feel blessed to have met you even under these crazy circumstances and you are special. Thanks

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

I wish the pain would end asap for you....hard to say. I believe (my opinion) from all I read from most I was a bit behind the class on the pain bus...so don't take what I share to the bank...it did take me about 4 weeks for the pain to ease up..I got behind the pain instead of staying ahead of the pain which they tell you not to do.

Being a big guy (well, at least I was big) I thought I was taking enough pain meds...but ended up wearing two fentynal patches and taking 6-7 narco a day along with advil ...so I too A LOT pain meds...the onco told me my burns and reaction to Erbitux were some of the worst he had seen (a good sign he said bc that means the tx are doing what they need to do)...

The good news Doug is it WILL END ...stay ahead of that pain...wear that silvadene all you need to. I posted a pic of me in my RV at the tx facility as my profile pics just for you to see my neck all bandaged up :)

So my light was 4 weeks ...but I bet yours will be soon ...

Prayer for you Doug ...

Best,

Tim

PS I remember every time we went to change the badages I would jus think I was going to die from the pain ...hated air to hit it ..really felt it was on fire..would shake so bad from the pain....(I share just so you will know I understand)

Also..on the amouunt of pain meds...just be careful you take as prescribed ...I got to thinking about how I said I took so many ....but I was a 320 pound guy....HUGE ...now of course I am 85lbs less and still shrinking :)

ditto1
Posts: 634
Joined: Mar 2012

yes I went thru the Im on FIRE sensations last week, complete with the shaking and moaning like a wounded animal. This week and the weekend better, last week unable to take warm bath by Wed, flame thower same day, took the Silver with ladacain mixed in per DR tx and Walgreen. Actually with the ladacain mixed in it goes on smoother, does not create such a cottage cheese effect but still in recovery as this morning. Good news some things that taste like what there are supposed to, not alot but Ice Cream Bomb Pop like things we had for me and my granddaughter. Yogurt taste like it is supposed to, Equate usually 2 to 3 bottles a day, yesterday 4, but that was in hopes to make up for very little calorie intake of the weekend. Keeping up with fluids water, etc. Always lean to caution on Meds, but seems to help now. Hope by the end of this week will no longer have the neck as my main issue. My thoart is not bad but my Voice is a struggle, thanks to all the kids who taught me how to text. Im going to shoot out a new post for Voice since this post will likely not draw many more responses. Again thanks Tim, I got your email from an old post so if its ok with you Im not much of a Facebook guy but maybe an email. Let me know if that offer is still open. God Bless you and your beautiful family

ditto1
Posts: 634
Joined: Mar 2012

thanks everyone for your replies. Using Aquaphor last few days since putting the silverdine away, actually found Aquaphor on older blogs being talked about, still greasy but not has bad as the mess from Silverdine, but Im sure it took the Silverdine to get me to the Aquaphor. So again thanks for your responses.

phrannie51's picture
phrannie51
Posts: 3818
Joined: Mar 2012

Another mountain climbed and beaten! Hope you stay as painfree as possible now that that hurdle is out of the way.

p

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

That's awesome that this part is now behind you. Now you can sleep at night and turn your neck without so much pain and the time is just around the corner when you won't have any goop on your neck at all.
Now you'll be able to focus on healing all the other parts. Keep us posted on how you're doing.
Billie

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