7 long wks-over

Wife finished her last radiation yesterday and chemo past Monday. Glad it's over but the last week has been the roughest she has faced. I feel fortunate to be among the living --I hid the dangerous weapons. Mouth sores/mucous seem to be major culprits along with some pain. On fentenyl low dose (12) with a hydrocodene boost when needed. Magic mouthwash just started. Still on all ensure diet.. Hopefully things will improve next week so food is an option.. For being 80 yrs old and having crohns to boot I do he it gets easier for her. So yesterday the bell rung and the graduation certificate was presented .Now the 3 myths wait.

Comments

  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    So glad it is over for her.
    So glad it is over for her. My last week was my worse too so hopefully she will start feeling better soon.
  • Sam999
    Sam999 Member Posts: 319 Member

    So glad it is over for her.
    So glad it is over for her. My last week was my worse too so hopefully she will start feeling better soon.

    She is doing pretty good. In
    She is doing pretty good. In last week of rad, i had to increase patch to 100mcg and went upto 150 mcg the following week. My last week of rad and two weeks following were thr hardest for me. Hope things go well with you. Keep reminding to take one day at a time and it will get better soon.

    Sam
  • Sam999
    Sam999 Member Posts: 319 Member

    So glad it is over for her.
    So glad it is over for her. My last week was my worse too so hopefully she will start feeling better soon.

    She is doing pretty good. In
    She is doing pretty good. In last week of rad, i had to increase patch to 100mcg and went upto 150 mcg the following week. My last week of rad and two weeks following were thr hardest for me. Hope things go well with you. Keep reminding to take one day at a time and it will get better soon.

    Sam
  • phrannie51
    phrannie51 Member Posts: 4,716
    I didn't have to deal with the mucous....
    but certainly so many on here have had to, and it was miserable. I can guarentee tho, that those mouth sores are nasty culprits, and they are high on my list of "What was the most painful part" of treatment. Now that both rads and chemo are over, her mouth is going to have a real chance to begin healing.

    Remind her that now, even tho she feels like hell...she doesn't have to show up anywhere on a daily basis...that sure made a difference to me.

    I'm glad you survived this, too... :) Sounds like it won't be long before you can put the crayons away, and bring the pens, pencils, sissors, and knives out once again.

    p
  • Tim6003
    Tim6003 Member Posts: 1,514 Member

    I didn't have to deal with the mucous....
    but certainly so many on here have had to, and it was miserable. I can guarentee tho, that those mouth sores are nasty culprits, and they are high on my list of "What was the most painful part" of treatment. Now that both rads and chemo are over, her mouth is going to have a real chance to begin healing.

    Remind her that now, even tho she feels like hell...she doesn't have to show up anywhere on a daily basis...that sure made a difference to me.

    I'm glad you survived this, too... :) Sounds like it won't be long before you can put the crayons away, and bring the pens, pencils, sissors, and knives out once again.

    p

    80!!!! Wow...my hero...
    I am sorry for the pain...this is the worst part...but 80!!! Holy cow she's my hero!! and only 1 Fentynal patch?? I had 2 patches and took 6-7 narco a day ....your mother is tough!

    Whispered a prayer the healing will come fast and the pain / mouth sores will be less and less...

    Best,

    Tim
  • jim and i
    jim and i Member Posts: 1,788 Member
    So happy it is over for her.
    So happy it is over for her. My husband suffered for a few weeks after treatment. I am praying for you both.

    Debbie
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    well done
    Hi vandyike,

    I am so happy for you. Seven weeks ago you wondered how I am ever going to do this. Now it’s time to rest up and heal.

    Best,

    Matt
  • hwt
    hwt Member Posts: 2,328 Member
    CivilMatt said:

    well done
    Hi vandyike,

    I am so happy for you. Seven weeks ago you wondered how I am ever going to do this. Now it’s time to rest up and heal.

    Best,

    Matt

    Tough cookie
    Congrats on finishing treatment. I'm sure your sense of humor helped your wife through some of those difficult days. I am a 61 year old female. Happy to say, the painful sores on my lips were better week 1 post rads and completely gone week 2. Other than a brief case of thrush everything progressively got better after treatment for me. I turned the corner with energy week 5 and was full of energy week 6. I did not have the issue with mucus. I will keep you & your wife in my prayers for an uneventful next few weeks.
  • Billie67
    Billie67 Member Posts: 898
    hwt said:

    Tough cookie
    Congrats on finishing treatment. I'm sure your sense of humor helped your wife through some of those difficult days. I am a 61 year old female. Happy to say, the painful sores on my lips were better week 1 post rads and completely gone week 2. Other than a brief case of thrush everything progressively got better after treatment for me. I turned the corner with energy week 5 and was full of energy week 6. I did not have the issue with mucus. I will keep you & your wife in my prayers for an uneventful next few weeks.

    Congrats!
    Wow what an accomplishment at 80yrs old! I can tell you for me the first 2 weeks after rads were the worst for me. The mucous was terrible and the sores were out of control. But, by the end of 2 weeks I started to improve. For now lots of rest and freedom from not having to do that dreadful daily appt. I hope she feels better soon. My oncologist told me to measure my improvement by weeks not days and that was some of the best advice.
    Good luck to you both.
    Billie
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Billie67 said:

    Congrats!
    Wow what an accomplishment at 80yrs old! I can tell you for me the first 2 weeks after rads were the worst for me. The mucous was terrible and the sores were out of control. But, by the end of 2 weeks I started to improve. For now lots of rest and freedom from not having to do that dreadful daily appt. I hope she feels better soon. My oncologist told me to measure my improvement by weeks not days and that was some of the best advice.
    Good luck to you both.
    Billie

    80-
    Wow, and Congratulations...and WOW!

    kcass
  • ditto1
    ditto1 Member Posts: 660
    Kent Cass said:

    80-
    Wow, and Congratulations...and WOW!

    kcass

    I agree
    this disease and treatments have brought many a grown man to his knees, and young tough women to tears, so your wife is a tough woman to make it thru this. Im just 1 day post RAD and one more Erbitux treatment on Monday, but right now sucking down a boost and have my neck covered with GOOOO to treat the RAD burns. Better today than yesterday, but still sucks. God Bless both you and your very very Tough Wife, and an inspiration to all of us.
  • vandyike
    vandyike Member Posts: 11
    Tim6003 said:

    80!!!! Wow...my hero...
    I am sorry for the pain...this is the worst part...but 80!!! Holy cow she's my hero!! and only 1 Fentynal patch?? I had 2 patches and took 6-7 narco a day ....your mother is tough!

    Whispered a prayer the healing will come fast and the pain / mouth sores will be less and less...

    Best,

    Tim

    Mother?
    My wife wasn't thrilled with a certain part of your post ----ha ha
  • vandyike
    vandyike Member Posts: 11
    Tim6003 said:

    80!!!! Wow...my hero...
    I am sorry for the pain...this is the worst part...but 80!!! Holy cow she's my hero!! and only 1 Fentynal patch?? I had 2 patches and took 6-7 narco a day ....your mother is tough!

    Whispered a prayer the healing will come fast and the pain / mouth sores will be less and less...

    Best,

    Tim

    Mother?
    My wife wasn't thrilled with a certain part of your post ----ha ha
  • VanessaSLO
    VanessaSLO Member Posts: 283
    ditto1 said:

    I agree
    this disease and treatments have brought many a grown man to his knees, and young tough women to tears, so your wife is a tough woman to make it thru this. Im just 1 day post RAD and one more Erbitux treatment on Monday, but right now sucking down a boost and have my neck covered with GOOOO to treat the RAD burns. Better today than yesterday, but still sucks. God Bless both you and your very very Tough Wife, and an inspiration to all of us.

    Woww
    80?? Wow, what an inspiration for all of us in this journey! Congratulations and God Bless!!
  • CMOD54
    CMOD54 Member Posts: 2
    7 long wks over
    Wow she is one tough lady congrats on finishing up treatment !
    I am 7 weeks into recovery, the first 2 weeks are definaty the
    hardest. It starts to get better slowly after that. Good luck and I
    wish her a speedy recovery.
  • BarefootBob
    BarefootBob Member Posts: 72
    Way to go
    Way to go! I love hearing that someone has made it to the end of one of their 'journeys' ..my rads start Wed. For six weeks. I makes me feel ok that if you can do it,anyone can. 80 yrs young, that is just fantastic. Hope the swelling and pain go away soon for you.


    Much love, bob
  • vandyike
    vandyike Member Posts: 11

    Way to go
    Way to go! I love hearing that someone has made it to the end of one of their 'journeys' ..my rads start Wed. For six weeks. I makes me feel ok that if you can do it,anyone can. 80 yrs young, that is just fantastic. Hope the swelling and pain go away soon for you.


    Much love, bob

    7 weeks over
    Well,all good things end. After last rad the mucuitus and mouth sores came back with a vengeance. Unable to put anything in her mouth including water. Was a basket case. Sunday we almost went to emergency room but since we had oncologist appt Monday we waited. Wham bang and she was being filled with fluids and appt made to put in a feeding tube which happens here shortly. Fluids have definitely improved her well being and her " let' s get on with the peg" attitude is unreal. Currently walking the halls waiting for the surgery. So another trip to take.
  • hwt
    hwt Member Posts: 2,328 Member
    vandyike said:

    7 weeks over
    Well,all good things end. After last rad the mucuitus and mouth sores came back with a vengeance. Unable to put anything in her mouth including water. Was a basket case. Sunday we almost went to emergency room but since we had oncologist appt Monday we waited. Wham bang and she was being filled with fluids and appt made to put in a feeding tube which happens here shortly. Fluids have definitely improved her well being and her " let' s get on with the peg" attitude is unreal. Currently walking the halls waiting for the surgery. So another trip to take.

    Oh no!
    So very sorry to hear about the mucuitus and mouth sores. The feeding tube will be a lifesaver. I'm praying for a quick recovery.