Aug 09, 2012 - 5:19 pm
We have been dealing with this nightmare since the January of this year. In January, a nodule about 1cm in size was found on my dad's right upper lobe, then a following MRI showed two tumors in the brain.. Since in these cases you must "prioritize" as we were told by the doctors, they focused on his brain first. He had gamma knife radiosurgery on the two tumors followed by 10 sessions of whole brain radiation (WBR). He finished his brain radiation back in the second week of May. The latest MRI shows that both of the tumors have shrunk to almost half in size, no new tumors and no swelling on the brain which is great news. It took him until mid-June to wean off the Decadron, he has been off of it for 2 weeks now and continues to have the mouth thrush, chronic fatigue and especially in the past four days extreme nausea and no appetite whatsoever. He had a needle biopsy done on the lung 2 weeks ago and it came back positive as we were expecting - non small cell adenocarcinoma. However the lung specialist keeps telling us that my father's case is out of the ordinary as there has been no growth or spread (Thank God) in the 1cm nodule located in the right upper lung. He had been pushing for VATS surgery up until our appointment today when we told him about my father's chronic fatigue and non-stop nausea. He says now he "doesn't feel comfortable going ahead with the surgery" and has referred us to a radiologist for lung radiation.
I am confused and frustrated as hell because first they tell us that he is stage 4 due to the brain mets but then they can't figure out "why the lung nodule is not growing" (as if it's a bad thing). My father does not want radiation as the effects of brain radiation have ruined him in the last 3 months... He still cannot taste anything and his mouth burns.. He sleeps all day long and has lost his appetite since stopping the decadron. I have been looking into radiation on the lung and I know it does have its own side effects concerning the esophagus even if its not as extreme as brain radiation.
The lung specialist used to talk as if he could be cured of the lung cancer with the surgery.. and now I feel like he is just giving up on my father because he has had a bad week. We are going to get a second opinion from another lung specialist sometime this month. But I just would like to have your views on what route you would suggest? Has anyone of you experienced anything similar to this?
I am thankful to God that the tumor in the lung is not growing or spreading, and I just want it to be gone but I don't want my dad to suffer if the recovery from the surgery will take him downhill.. Please share with me your experiences relating to anything I have said in here.
Thank you so much and God bless,