Aug 09, 2012 - 12:33 pm
Here is my story I got my DX in February the doc said it is curable thank God I got engaged 9 days earlier and then we wee dealing with treatment. So we will marry in January.
The DX was small cell with some medium cells it is the CD 20 cell. I have been through 4 straight Retuxin treatments, then several rounds of CVP, 4rounds of Chop, now the last two are back to CVP. I am hooked up now as I write, the last one is on August 30. The doc tells me we will see how deep a remission I am in but the curable disease he tells me can come back. It is a matter of how long it could be a couple of years, mabe five years. I have been to the specialist that tells me he will extract Stem cells and if I have a recurrance I can be treated then get a transplant. For the first time I am scarred that I will never get rid of this disease. I am told that I will most likely liver my who life expectancy but I may have to deal with this over and over again since I am young, I turn 49 on August 26.
Is there anyone out there that has had 5 plus years an no reoccurrence? I just need to hear some success stories. My spirits are high and will strong I will not succumb to negative thinking. Please tell me your success stories.