Aug 05, 2012 - 3:52 pm
I wish I had found this website BEFORE going through my surgery, but it's better late than never! My google searches really scared me, but I am glad I did, for it eventually led me here. (I also prefer to be scared and semi-informed than clueless.)
I just turned 32 last week. For 5+ years (that is, I remember it being at least 5 years, perhaps even 8-10 years), I had experienced some degree of pain in what I thought was my left ear. Usually when I drank something cold or drank itoo quickly. Had trouble sleeping on my left side at times. I had gone to an ENT over this time period who said everything looked ok, and that it might simply be sensitivity.
I had an intra-oral procedure done to remove the tumor. My stay in the hospital was rather short, only two days. The tumor was in a "good" spot so the surgery was relatively minor. The recovery over the next week was more painful than expected, and I lost around 10 pounds from not really eating that much. (I have gained 5 pounds back, and am happy to maintain :) )
About 1-2 weeks post surgery, I had some trouble with bleeding. Not heavy bleeding, but enough that I would end up with big clots in my mouth, only to clean it out and restart the bleeding. I ended up back in the hospital two times, where all they could really do was clean it up a bit. Thankfully, it stopped at the end of the second week.
As for the diagnosis, thank God it seems to be a good one. It was stage II, medium grade mucoepidermoid carcinoma, with clear margins and no sign of metastasis. The radiology oncologist said that radiation was not recommended. (We discussed it at length. He didn’t think I was too crazy for asking whether I should have the radiation regardless, but was convinced that it shouldn't be done.)
As of this week, it has been three months since my surgery, and I am doing great. It still seems like my mouth is dry at times, but it has been improving.
Further scans be done in about Sep 2012...