Aug 04, 2012 - 8:33 am
I wanted to post some good news. Jeff just had his latest ct scan, he is 10 months out from surgery. He is NED!!! He has a nodule in his lung that they are monitoring. It has had no change in 6 months, and they are now fairly sure it is a burst airway, probably from a bout of pneumonia. We know Jeff is very blessed, I have made many good friends on this site, and have lost several over the past year. I wish someday there would be a cure for all EC patients. We pray and hope that Jeff will continue to be in good healt, we have started to talk about having a family again. For those who are just starting the journey, I know how scared and anxious you are. You can get through this, and you can have a normal life after surgery. Jeff works out three times a week and just started strength training. He is able to eat anything he wants, just in smaller portions, and is slowly gaining some of the weight back. My advice to everyone who is preparing for the surgery, GET A GOOD PRIMARY CARE PHYSICIAN!! When the surgery is over and Chemo is done you will need the help of a good doctor to oversee your nutrition and fitness. Jeff had a serious thyroid condition from the radiation treatments, that would not have been found without his awesome family doctor. The oncologist will treat the cancer, but you will need someone to heal the person after the cancer is gone!!
Best wishes to all of you and hugs to old friends :)