Aug 03, 2012 - 5:51 pm
Hi, I've just joined and would like to connect with other medullablastoma survivors. I am 33 years old and was diagnosed with a grade IV medullablastoma when I was 31. I had surgery which removed what the naked eye could see of the tumour. I had chemo before, during and after brain and spinal radiation. Overall I'm doing ok. My stomach is poorly most of the time though and I've had an endoscopy and blood tests and the doctors keep telling me that it's from the radiation. I get frequent headaches but all of my mris have been clear thankfully. I was told told that this type of tumour has a very high recurrence rate within the first 5years. I am constantly worried about the tumour coming back. Is the anyone who has survived a recurrence.