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Remission in Stage IV is long term possible?

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Does anyone know how long someone in Stage IV can go into remission? Is there any people that go into remission for years?

jams67's picture
jams67
Posts: 927
Joined: May 2006

I had surgery in '05 for stage 4, followed by chemo. Avastin had just come out about that time. I have not had a reoccurance since then.

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Thank you for responding. I needed any bit of hope I can get. Thank you!

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

I believe that all the statistics for the 5 year survival rates for Stage IV.... are 5 years old

therefore, anyone who answers this question in a Negative fashion, is living in the past.

the response that Avastin had just come out in 05 tells you exactly that.

I believe that Avastin and Erbitux are drugs that can give us all the hope and believe and reason to fight. new drugs and new treatments come out often, therefore our job is to fight for 5 years at a time... and more stuff will come out to help us should our cancer return.

There are several people that I've heard from that were Stage IV'ers... yet have been NED for 5, 10, 15 years. Yes the statistics tell us that very few life that long... but I believe that the positive people on this web site all have a REASON to fight and we are all learning more options and ideas on how to live to keep the cancer at bay.

I believe that if you believe you are going to beat this stuff... that you will.

fight, live and love

joe

Nana b's picture
Nana b
Posts: 2707
Joined: May 2009

I am going on 4 years in remission.

Joe, you rock, love the attitude.

Health, love and laughter

luvinlife2
Posts: 172
Joined: Jul 2012

I've met a few people who have lived with a stage 4 colon cancer diagnosis but in remission. Several are in their 7th and 8th year. Another man was 11 years in remission but had recurrences in the ribs by the liver. Two ribs were removed and he was ned again for another 3.5 years. He's got 1 little spot in his abdomen now that he is on chemo again but it seems to be working.

janderson1964
Posts: 1497
Joined: Oct 2011

I have met people who are over 10 years. I went 4 years before my most recent recurrence.

dorookie's picture
dorookie
Posts: 1681
Joined: Jul 2007

Im stage 4, in remission since November 2008, almost 4 years with no reoccurance thank God! Iknow several stage 4'ers that have many more years to include a few past ten years.

There is always hope, please do your best to stay strong, and keep whatever faith you have.

Hugs
Beth

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

I needed to hear this today.
Was cleaning out papers and lots of memorabilia from my kids high school activities, as well as reading some of my medical reports.
It made me cry....
These posts helped me pull through the day.
Thank you for your inspiration....

herdizziness's picture
herdizziness
Posts: 3387
Joined: Apr 2010

I plan on being long term, 2 1/2 years so far, was given 6 months tops with chemo. So Yep, I believe in the long term, it seems when we lose so many that we all get in a funk and start thinking about our mortality and our mortality rates of those with stage IV.
I like to think that each before us has paved the way for us to last longer through various chemo combinations, diets and etc., and I thank them for this, and I hope fervently that I will be a long termer, passing advice down. There are many long termers among us, like Beth etc., they continue to give the rest of us hope.
Here's to your long wonderful life!!
Winter Marie

lesvanb's picture
lesvanb
Posts: 905
Joined: May 2008

My docs always were optimistic of my prognosis. NED one year after chemo ended 5/09. Been NED 1.5 years after SBRT in Jan '11 to lungs. Just had VATS and hoping for another stretch of NED. Cancer is not preventing me from doing what I love to do - ride horses and be outside; and I work hard to stay as healthy and strong as I can to support that.

Hang in there!
Leslie

mikew42
Posts: 113
Joined: Mar 2004

To answer your question, I think theoretically indefinetly. I was NED for almost 7 years (original diagnosis Jan. '04 Stage 4). Recurrence in liver in Dec.'10. (liver resection and chemo in 2011).Just saw my onc. Friday and now it has been 1 1/2 years for the second round of NED. I know of others who do not post anymore that were diagnosed before my 2004 diagnosis and have not had a recurrence. Very long term NED can happen.

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Reading all of these post are making me very happy! I think this is discussion I will be reading over and over!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Great question, it's brings out the sparkle in our group.
Whatever my treatment having hope makes me smile.
It's simple for me!

Been super healthy for 2 years now.

Hugs,
Pete

Ps as words and descriptions I don't like remission, or Ned. They always imply it's just about to come back or stop.
For me, I say I am WELL today, my focus is on using this great day wisely.
For me WELL IS POSITIVE.

Whenever I say outloud I am well, well I just cannot stop that smile. Even if some cells make my onc nervous.

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

i did not know you were stage 4. glad you are doing well...Godbless...johnnybegood

scared99
Posts: 72
Joined: Jun 2012

This post is amazing!!! When my mom was diagnosed with stage 4 with confirmed mets to liver and sacrum the oncologist said the goal is to treat the condition like a chronic illness. I took to the net and found cancer stats from 2000 and earlier. I love posts like this!

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I just love this string! I fully intend on being in remission for a very long time. When it finally comes, that is. Reading these posts has really strengthened my resolve to kick cancers butt and kick it very hard!

scareddaughter24
Posts: 61
Joined: Nov 2011

lets keep bumping to hear all the positives :) makes my day when i log on and hear from you guys.
I dont want to sound selfish as i know the reality is not everyone beats this *****... and some people live long times without ever seeing a NED scan in their lives.. but the ones/ loved ones of those who are beating this beast need to keep posting...keeping giving hope... and keep supporting!!!!

sailor_on_a_lee...
Posts: 51
Joined: Jun 2012

Since my diagnosis on June 13, 2012 I've been scouring various information sources including this web site and others like it.

Despite the dire predictions of two-years following diagnosis, I keep seeing more and more people on these boards who are beating those odds. Granted some by only one-year but many, many others who are going out eight, 10, 12, and even a couple of third-party references to people who have survived 20 years.

I think something that would be very valuable from a morale point of view would be if the ACS or CRC Alliance or other group would collect some data and see what's really happening in terms of Stage IV Colon Cancer. In my unscientific opinion, I'm seeing way too many who are outliving the averages for the average to be correct.

scareddaughter24
Posts: 61
Joined: Nov 2011

I am coming across too many people on this site alone who are doing far better than what you commonly think when you hear advanced cancer.... and this is one site alone. Imagine others on different boards, or the many others who dont even post because they arent into the internet or " this sort of thing" praise god and modern medicine i say.

scared99
Posts: 72
Joined: Jun 2012

Just imagine how many people we never hear from. Id imagine there are alot of people who got the stage 4 diagnosis and never posted or used the internet. Id imagine some of the people that went NED no longer post. I know when my mom was diagnosed I kept asking my dad how long did the doctor give her. My dad said they didnt even give an expected life span. The doctor said we can treat this like a chronic condition thats the stage medicine is at with regards to colon cancer. I hope the doctor is right and my mom is around alot longer.

janderson1964
Posts: 1497
Joined: Oct 2011

I totally agree. It seems that tbe statistics only talk about 5 year survival rates. I want to know about 10+

biglaur's picture
biglaur
Posts: 65
Joined: Apr 2010

Dx Sept '06, mets to liver and lung...after resection, folfox, stereotactic radiation, a VERY difficult clinical trial, then Xeloda...I have been off all treatment since Jan '09. I have my "9 month" ctscan Friday...always a touch nerve wracking...but my blood work looks good, CEA remains undetectable so I'm not as crazy worried as I sometimes get before a scan. Living life...can't say the cancer isn't always at the back of my mind...but I don't let it spoil my days...weeks...months...! Hang in there all you good people fighting the fight!

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