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Cancer has found me again!!! Help!!!!

wags
Posts: 6
Joined: Jul 2012

Hello, this is my 3rd Cancer. I had so much radation back in the 80's that it has given me breast cancer. My case is very different, I have a implant stim in my back, which means they can't do an MRI on me. The doctor told me they are not sure what they will see when they go in. They told me that the best option will be a double mas and they are not sure if they will be able to do reconstructive surgery since I have had so much surgery from my Non-Hogkins back in the 80's. I am 49 years old and I know that I must do the right thing with 4 kids and 6 grandkids that need me. I am just really confused about all of this and they want to do surgery on August 21st which I am not sure I am ready for. I am seeing my doctor again on the 2nd just to ask more question. I think I sent the reconstructive doctor looking into something they have never seen, I see him again on the 7th. The radiation oncologist told me he won't do anymore radiation. I am just trying to wrap my head around all of this and figure out the right thing.

salls41's picture
salls41
Posts: 340
Joined: Apr 2012

I am so sorry you have to go through this! This is my first and hopefully last time for me. I was dx in Nov 2011 with triple negative breast cancer. I did 6 rounds of chemo (TAC) and had a bi lateral Mastectomy. I am currently in the reconstructive phase. I can not say how I would feel in your situation, I can only offer prayers and positive thoughts to you! You are at the right place for support!
{{{Hugs}}}
Sandy

wags
Posts: 6
Joined: Jul 2012

Thanks so much for the Hugs Sandy. My thoughts and Prayers are with you also.

MAJW
Posts: 2515
Joined: May 2009

Glad. You found us, but hate the reason....this site is full of loving, caring women....we're all in different stages and phases...from those newly diagnosed to those like me, stage IV...I was dx in 09 with triple negative bc...I've had 3 types of recurrence..none in the breast...go figure! But I'm doing well with my current chemo....we're all different even with the same type...

Please keep posting, ask anything, vent, whatever you need, we'll try to help...

Hugs, Nancy

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Welcome to the site. I am very sorry you are here because of bc but we are all here to help however we can.

I wish you good luck, am sending prayers and lots of hugs.

Hugs, Noel

survivorbc09
Posts: 4378
Joined: Jun 2009

I am so sorry. Sending positive thoughts, prayers and lots of hugs!

Jan

CypressCynthia's picture
CypressCynthia
Posts: 4015
Joined: Oct 2009

I am so sorry that you are dealing with cancer again. My thoughts and prayers are with you tonight. Please let us know how you are doing.

ksf56's picture
ksf56
Posts: 203
Joined: Apr 2012

I'm so sorry you needed to find us but welcome to the masses of fine folks here. I can't imagine how shocked you are right now - you must be crazy with all that's happening. For me it was like being on a merry-go-round that's going to fast and you can't get off. I wish I could help more but I will offer my prayers to all those here and hopefully they will help!

Best to you!
Hugs!
Karen

wags
Posts: 6
Joined: Jul 2012

Thank's everyone!! It is nice to know that I am not alone. I do feel like I am on a merry-go-round also. I just want to sleep all the time and not wake up because it hits me in the face!!! I know I must do the right thing, but I am so scared!!

Double Whammy's picture
Double Whammy
Posts: 2334
Joined: Jun 2010

Wow! What was your second cancer?
So sorry you've been hit with this again. Each time has got to take a piece of you with it. I've had 2 primary cancers, breast and endometrial. There are others who have had several as well. What on earth?
Glad you found us. This group really helped me 2 years ago when I was diagnosed. I still feel so connected and hang around to give hope - I'm a 2 year survivor and doing great.
Please keep us along as part of your journey.
Hugs,
Suzanne

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I was first diagnosed in Dec. '09 and in Jan. '12 moved to Stage IV with bone mets. Now I have an upcoming recheck with possible biopsy after a breast MRI showed a "suspicious mass" in the same breast. I know what you're feeling. It all just stinks. Just when you think you can breathe again--BAM. We're all here for you, sweetheart. Glad you have another doctor's appointment to ask more questions. Write them down and try to bring an extra set of ears. I don't know about you, but sometimes I get so nervous, my mind doesn't function well when I'm face to face with the doctors.

Take good care and keep us posted. We care.

Hugs, Renee

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

You can do this! I know you can! We will help you however we can wags!

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I can't even wrap my head around hearing those awful words 3 times. I am very sorry that you even heard it once. You are never alone again, you've got the pink sisters! Keep us updated the best you can as we all care.

Best of luck and praying,

Lex

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I want to say hi and welcome Wags, though I am sorry for the reason. I read your post and I think my mouth fell open. I cannot imagine going through cancer 3 times, just can't.

I understand your being scared, we all understand that feeling. Come back and vent, just post anything you want to. I hope that might help you.

Best of luck and sending prayers,

Diane

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1659
Joined: Jan 2011

Hi and welcome! So sorry this is your third time fighting the beast. Please know you've come to the best place. You'll find a lot of love and support here.

I will keep you in my prayers. I pray you find the courage to fight this again and end up at the end of the tunnel, fully recovered.

I know it doesn't get any easier no matter how often you've been though this. and that it gets tiring...and the fear takes over our minds. But please know and believe that you can beat this again! always keep the faith.

XOXO

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Prayers, good thoughts, strength, courage and anything else I have, is yours! You can beat this Wags!

mollyz's picture
mollyz
Posts: 739
Joined: Sep 2010

I'm am so sorry your having to go through this again,I see your new to the boards but not new to this disease. keep us posted on your decision and with prayer i pray peace for you and your family.hugs ~~MollyZ~~

wags
Posts: 6
Joined: Jul 2012

First I want to Thank you all for your support it means a lot. I went to the doctors again yesterday and we wrote down all the things I wanted to ask. She was really great in letting me know what will happen. Since my case is so different and not being able to get an MRI and having so much Radiation, they are not sure what they will see when they go in. With having Hogkin's in the 80's and Thyroid Cancer in 08, it is hard for them to know what kind of damage the Radiation has done. So surgery is set for Aug 21st. I just need to get of this merry-go-round so I can move on!!

MAJW
Posts: 2515
Joined: May 2009

Holding on, at times, is all we can do....and holding on is what we have to do.....like you've done before, you'll do what you have to do...
I so hate this is on your plate again..but we understand....and we're here for you....physically we can't help but we can give encouragement and support...

Hold on and keep us updated...
Hugs, Nancy

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

We will have to get the pink bus out for you on the 21st! And, we will all be saying prayers for you too!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I am sorry too wags that you are going thru this again. Wishing you good luck on the 21st.

Prayers coming too,

Megan

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

3 times is just too much and just not right. I am so sorry and I am sending lots of prayers to you.

Hugs, Diane

debi.18's picture
debi.18
Posts: 850
Joined: Jun 2011

Once is enough, 3 times is just seems unfair. As the others have said, you have found the most wonderful group here! The support is amazing! I know my walk on this journey was much easier due to the women (and a few men) here.

Keeping you in my prayers. Keep us updated.

Hugs, Debi

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Offering a big warm welcome also to you! 3 times with cancer seems insurmountable. You truly are a warrior! I hope that we can support, encourage and help you in anyway possible. I know we will all try very hard.

I will be praying for you and please keep updating us,

Leeza

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Offering a big warm welcome also to you! 3 times with cancer seems insurmountable. You truly are a warrior! I hope that we can support, encourage and help you in anyway possible. I know we will all try very hard.

I will be praying for you and please keep updating us,

Leeza

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Once is too much, I can't imagine 3 times. I will be praying for you and please keep us updated.

Sue :(

survivorbc09
Posts: 4378
Joined: Jun 2009

Lots of luck and prayers for you!

Hugs, Jan

MsGebby's picture
MsGebby
Posts: 659
Joined: Oct 2011

I just wanted to be here for you, too.

I know it's so hard to wrap your brain around this but I do believe that the warrior in you will fight hard.

It certainly is not fair! My heart aches for you. Sending you the gentlest of hugs and keeping you in my prayers.

AND ... when the pink bus arrives, I will be the one wearing the hawaiian shirt with the pink pelicans on it, a cowgirl hat, white shorts, and cowboy boots. Cuz that's how I roll

:)

Mary

MAJW
Posts: 2515
Joined: May 2009

You and I will be quite the sight on the pink bus for Wags on Aug. 21....you with your Hawiian shirt, cowgirl boots, hat and white shorts....and me in my pink bus, pink tutu! Wags, feel free to pretend you have no idea who or what we are...I think I'll wear my black riding boots with my tutu...that should add the finishing touch!

We're with you Wags...even as tacky as we are..
Hugs and prayers,
Nancy

ps....Mary, you sound like fun....to bad we don't live near each other...we'd probably get into trouble!

camul's picture
camul
Posts: 2121
Joined: Dec 2010

I will be on the bus too. Not only to support you, but I also have to see Nancy and Mary together in their get-ups! That alone should be enough to send us all reeling!

Prayers that all will go well for you, and welcome to a great support group!

Carol

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I will be on the pink bus for you too Wags! Prayers and hugs!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

What did your surgeon say Wags? Along with the other pink sisters, I will be on the pink bus to support you. Like others say, you can act like you don't know us if we get too rowdy.

Seriously, wishing you the best and praying for you wags.

Hugs, Angie

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

Hi Wags,

I too was treated for Lymphoma, Hodgkins, in 1989 with radiation therapy. I had a recurrence in 1994. The 3rd time I heard cancer was in 2007 for IDC when I was 47, my daughters were 11 and 14 at the time. This was caused by the rads for the HL. We are in a whole different ballgame because of our limited options. You may want to check out the Lymphoma and Long-Term Effects from Treatments boards on this site. There you will find many that have had similiar situations.
Our BC treatment choices are very limited. Therefore, it is a good idea to see a doctor who is well versed in treating BC after Lymphoma. I see a LT Effect specialist who has many patients like us. He is at MSKCC. I had 3 opinions, MSKCC, local onc, and Fox Chase. Double mx was the only option with no reconstruction. My docs strongly urged no more major surgery. They don't know how our skin will heal as well as worrying about the potential side effects from additional surgery. As you know radiation is not an option. I could not do Tamoxifen because of a TIA and chemo would have only helped by 1-2%. As you know, our major organs have many LT effects from treatments and they may not hold up well to more chemo.
You may feel very alone right now but please know there have been many of us Lymphoma patients that have gone on to be dx'd with BC.
If you have anymore questions, please ask. Best wishes to you.
Cathy

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I wouldn't miss coming along for the ride on the pink bus to support you. We will all be there, holding hands and praying for you.

Hugs, Leeza

survivorbc09
Posts: 4378
Joined: Jun 2009

The pink bus is reserved for you on the 21st Wags!

Prayers and hugs,
Jan

wags
Posts: 6
Joined: Jul 2012

Thank you everyone!! My eyes fill up with tears just knowing I have your support. Everyday it get closer I flip out!!! I can't stop crying and I feel like I am having a breakdown!! I seen the Plastic surgeron and he is not sure if my breast wall is strong enough to do reconstruction. I am hoping any Praying that it will work. August 21st is coming fast. My surgery is at Noon at St. Joes Hopstial in Ann Arbor. I am so happy you will all be on the Pink Bus!! Please keep me in your prayers while I am just trying to get through this one day at a time!!! God Bless!!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

You sure do have us for support! We will all be riding the pink bus for you on the 21st!

Lots of hugs,

Noel

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I am glad you found this site, only because you know now that all of us understand how you feel and that we will support you whenever you need us!

The 21st is yours!

cathyp's picture
cathyp
Posts: 366
Joined: Dec 2009

Wags,

As I stated before, I did not have reconstruction because of my previous rads for HL. Recently, I asked my LT Effect follow up doctor if it would be considered major surgery to smooth my chest wall out, get rid of the extra skin etc. They were going to refer me to a PS at MSKCC that has operated on lymphoma survivors who were dx'd with breast cancer. (I haven't decided if I'm going to persue this yet.) It may be in your best interest if you could get a second opinion especially if you say this PS hasn't really seen this before.
Good Luck,
Cathy

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I think Cathy has good advice. You might want to check with another PS just to see what his opinion is. Good luck to you!

wags
Posts: 6
Joined: Jul 2012

Hello everyone. I wanted to let you know that my PS did say that he would be able to do something. He had to talk to the Radation doctor. He told me they could put in the lifts if it all works out and my chest wall can take it. I know I am in good hands with Great doctor's. I am just a special case with not being able to get a MRI and having so much Radaition in the 80's. Thank you all so much for your kind words, it helps so much!!!

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

That is great news! I am so happy for you Wags! Thanks for letting us know!

Hugs, Megan

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Our prayers were answered! Good luck to you!

Hugs, Lex

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

This is great Wags that your PS can help you with lifts. It sounds like you do have great doctors! Good luck!

survivorbc09
Posts: 4378
Joined: Jun 2009

When is your appointment with your PS to do your surgery Wags? The pink bus is ready!

Hugs, Jan

Pinky68's picture
Pinky68
Posts: 206
Joined: Jul 2012

Glad your on this site, everyone is here to support you!
Thoughts and prayers,
Joyce

pinkkari09's picture
pinkkari09
Posts: 878
Joined: Sep 2009

Hi Wags, just want you to know I'm on the bus and rooting for you too:-) Praying all goes well and you have a speedy recovery. Be kind to yourself, and let others help you when they offer.
Miles of Love
~Kari

Mittensandmedwick
Posts: 85
Joined: Jul 2012

Hi I just wanted to say hi and to let yu know you are not alone in this battle. We are all here to support each other. I know you have a lot to deal with, but was told we are not given more than we can handle, and I truly believe this. You are in my thoughts and prayers as you go along on this journey.

Hugs
Patricia

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Hey Wags! Just checking on your post to see if you have anything scheduled yet. Thinking of you!

jerry chan
Posts: 5
Joined: Aug 2012

So sadly to hear that,hope be strongly!

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