Jul 28, 2012 - 3:42 am
Hi all, sorry its been awhile since my last update but feeling anxious and scared more often, can't sleep and getting very irritable with my wife and nurses, family, etc...it's more my own frustration on being dependent on others to do things for me and not at them. But feeling guilty as well. For the first time I feel less positive and more pessimistic. I don't like it. I am not normally ever this way.
I saw Dr. McGee, the Radiation Oncologist this week. Radiation typically begins 6 weeks post-surgery, so my radiation will begin on August 13th. I will go Monday through Friday for 6 weeks. The dose is 60 ray over 6 weeks, a total of 30 treatments. The Illinois Cancer Center is literally upgrading their equipment right now and it will be ready to use by the time it is time for my radiation.
They will be using intensity modulated therapy which allows them to shape the radiation to the patients need. Because of this new technology, they are most likely going to be able to protect my right salivary glands and not radiate anything that they don't need to. This is good news I think?!?!? When they do radiation they will radiate the incision on my neck, as tumor cells can track there as well. Because lymphatics can drain both ways there is a chance of cancer cells in the right side as well as left, so they will do a little there too. I will still keep my g-tube in until after radiation because I will most likely have sores in mouth and throat at times. I have a planning appointment on August 6th, the week before radiation begins. They will do a CAT scan at that time, which will allow them to better plan my radiation treatment. I will also be receiving IV fluid treatments to help with hydration and overall wellness during the radiation period.
My pain has been unbearable the past few days, and I went out to the IL Cancer Center to pick up some scripts for an increase in one med and another additional drug. That was a nightmare. The additional drug is new and no one in the area carries it except the pharmacy at IL Cancer Center, which his insurance will not let him fill at. Filling all these meds and changing them, dealing with four different docs has been a real pain to get everyone on the same page. Plus the pharmacy feels like they need to lecture me on what schedule the drugs are and that i know what im doing....Ummm yes, I have cancer, thank you, the doctors talk it over.
Sorry about the rant/gripe session tonight but very scared and don't really know if I should go through it at all.
Anyway just looking for advice and/or explanation of what I am facing.