Waiting is soooo hard

hwt
hwt Member Posts: 2,328 Member
in Head and Neck Cancer #1
Had my 1st CAT w/contrast today and am suffering that scanxiety that Skiffin talked about. Doctor was to have results on their desk by 10:30 and I have been on pins and needles since. I realize they have patients, appts. etc. but the waiting is so overwhelming. Praying the surgery, rads and chemo took care of the beast. I'm always the first to say "take it as it comes" but that is so much easier said than done.

Comments

  • ditto1
    ditto1 Member Posts: 660
    #2
    Not there yet
    but understand the anxiety, funny how we survived the original shock of just finding out we had cancer and the fight we are going thru or have gone thru. Most everyone including me (just in the middle of treatment) have or will be in your shoes. The good news is so many find the new world of NED and Im sure you will join the club. But I truly agree we just need to know for sure................good luck, God Bless
  • hwt
    hwt Member Posts: 2,328 Member
    #3
    ditto1 said:

    Not there yet
    but understand the anxiety, funny how we survived the original shock of just finding out we had cancer and the fight we are going thru or have gone thru. Most everyone including me (just in the middle of treatment) have or will be in your shoes. The good news is so many find the new world of NED and Im sure you will join the club. But I truly agree we just need to know for sure................good luck, God Bless

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.
  • katenorwood
    katenorwood Member Posts: 1,912
    #4
    hwt said:

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.

    Hurray !
    hwt,
    Did I read this right ? NED....God is good and great ! Warmest regards, Katie
  • hwt
    hwt Member Posts: 2,328 Member
    #5
    katenorwood said:

    Hurray !
    hwt,
    Did I read this right ? NED....God is good and great ! Warmest regards, Katie

    Yes
    Yes, NED...no evidence of disease! I was so worried because at the onset my surgeon said 4 lymph nodes on the opposite side of my neck lit up on the PET scan. He ordered a sonogram and four doctors could not find them so they thought maybe just an inflammation on PET. They decided to do rads on both sides. If those nodes were cancer the rads took care of it. On the original side, one of the positive nodes was no longer encapsulated so that was also a big concern. Rads & chemo work!
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #6
    hwt said:

    Yes
    Yes, NED...no evidence of disease! I was so worried because at the onset my surgeon said 4 lymph nodes on the opposite side of my neck lit up on the PET scan. He ordered a sonogram and four doctors could not find them so they thought maybe just an inflammation on PET. They decided to do rads on both sides. If those nodes were cancer the rads took care of it. On the original side, one of the positive nodes was no longer encapsulated so that was also a big concern. Rads & chemo work!

    Yes, God is good!
    So glad for you!!!!!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #7
    Awesome...
    I knew you had it in you...., and now you don't.

    Best,
    John
  • Laralyn
    Laralyn Member Posts: 532
    #8
    Great news!
    Congratulations! That's great news, and just what we needed to hear, for those of us looking ahead at our upcoming scans in the next couple weeks! :-)
  • Pam M
    Pam M Member Posts: 2,196
    #9
    hwt said:

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.

    Wonderful!
    So glad you know the "it was all worth it" feeling. Fabulous.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #10
    good scan
    Hi hwt,

    Hey you’re giving me scanxiety too. Boy that stuff is catchy, but can’t be helped.

    Good report.

    Best,

    Matt
  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    #11
    hwt said:

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.

    That is wonderful news! I am
    That is wonderful news! I am about 5 weeks from my first scan so I will be in that anxiety mode then.
  • hwt
    hwt Member Posts: 2,328 Member
    #12
    CivilMatt said:

    good scan
    Hi hwt,

    Hey you’re giving me scanxiety too. Boy that stuff is catchy, but can’t be helped.

    Good report.

    Best,

    Matt

    Thankful
    Heartfelt thanks for having such a great group of people to make the journey with. I appreciate the shared joy and am genuinely excited for the next fellow bus rider that get to hear "NED".
  • phrannie51
    phrannie51 Member Posts: 4,716
    #13
    hwt said:

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.

    Woo Hoo!!!
    Great news....God IS good! May you continue to have NED scans forever more.

    p
  • phrannie51
    phrannie51 Member Posts: 4,716
    #14
    hwt said:

    God is Good!!!!!
    Hope you are at this point in the journey soon! NED chest, neck, and lymph nodes. All of a sudden those miserable days in Tx and side effects were worthwhile. As difficult and painful as it was on some days, today it seems like it wasn't quite as bad as I remembered. I'm going to enjoy the moment and pray that each of you gets to enjoy your own moment.

    Woo Hoo!!!
    Great news....God IS good! May you continue to have NED scans forever more.

    p
  • Crazymom
    Crazymom Member Posts: 339 Member
    #15
    hwt said:

    Thankful
    Heartfelt thanks for having such a great group of people to make the journey with. I appreciate the shared joy and am genuinely excited for the next fellow bus rider that get to hear "NED".

    Congrats on NED
    Congratulations! I am so happy for you!
  • buzz99
    buzz99 Member Posts: 404
    #16
    Yipee
    Wonderful news. Congratulations. Now go out and enjoy life. Karen
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #17
    buzz99 said:

    Yipee
    Wonderful news. Congratulations. Now go out and enjoy life. Karen

    Ooops..missed this post ..
    Happy for you !!!!

    That is great news!!! Oh so wonderful news!!!

    Still going to keep you on that other prayer list I had before the "task prayer list" if that's okay? :)

    Best,

    Tim
  • hwt
    hwt Member Posts: 2,328 Member
    #18
    Tim6003 said:

    Ooops..missed this post ..
    Happy for you !!!!

    That is great news!!! Oh so wonderful news!!!

    Still going to keep you on that other prayer list I had before the "task prayer list" if that's okay? :)

    Best,

    Tim

    Thanks
    And yes, PLEASE do!

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