Cancer Survivors Network

I hae PPC. I was diagnosed in June 2010. I was put on a clinical trial COG 252. I had chemo every 7 days after havinga complete hysterectomy and debulking on June 7th, 2010. I thought I had a bladder infection, I saw 5 doctors in one month before they found it! I was demanding...because I didn't feel well! Anyway, I was done with carbo/taxol Nov 2010 and continued on with Avastin maintenance until Oct 2011. I was NED since my first chemo in 2010. I felt good and then was seen every 3 months. At my 3 month check up in April my number was 44 but with clear CT. So had a check up in June to follow up and my CA 125 had gone up to 371. At that time they did a colonoscopy, (not successful, Narrowing of colon) then a barium anema, which was all clear, CT which showed mass by my spleen. We had pretty much decided on surgery again. I asked to have a PET scan to make sure before more surgery and sure enough they found more floating masses by my colon and pelvic. No suregery, we went right into chemo taxol/carbo. My CA125 is higher than ever but only 10 days since my 1st chemo.(872) My doctor isn't concerned. She said without surgery it can take 2-3 chemos before it goes down, lets hope so. This is my third week, I generally feel pretty good. I get double the dose that I got last time...because I go every 21 days instead of 7. I have had bowel issues for months, had cdiff, now cleared. I was really hoping for more surgery....but couldn't removed the tumor and then wait 6 weeks for more chemo on the "floaties", just too risky. So went aggresive with chemo and hope it all works. My doctor always give me hope....she says it is a day to day disease....she calls it a chronic disease that can be managed. I am 62, had to quit my job....first I missed my job and now not at all. I am enjoying life and hoping that I get over this hump so I can do some more traveling.....I try not to have this "thing" ruin my life. I eat healthy, but I am not obcessed with everything. I am getting ready to lose my hair for the second time, that I don't like! But, when it goes, then I hope to know that the chemo is working! I don't know how much more you would like to know...but, lots of people on here with PPC. Don't read the internet so much because they give you no hope....when there is hope. Some of those articles were written years ago and so much has happen