Jul 22, 2012 - 1:28 am
Hello I was diagnosed with stage 1C Ovarian cancer, Stage 1a Uterine Cancer and a 1cm carcinoma on my appendix in October 2009 (I was the only triple primary cancer that year in my area, so the registrar told me ) I had a hysterectomy and had taxol/Carboplatin from February-June 2010. I felt a lump that december in my right groin area, was an inguinal lymph node and between Cts it was growing rather fast so they removed it, it was cancerous, so I had Direct radiation that ended May 2011. April 2011 I started having memory lapses, poor word recall, and absent minded, was blamed on the chemo. Whew sorry long story short, I have been cancer free as far as they can tell since then. April 2012 i was diagnosed with Valley fever and put on antifungals. About the middle of May I started having strange symptoms, headaches that wouldn't go away for days, left a week would come back a week that kind of thing. Tremors in my hands and sort of in my neck. Also I had burning pain in my neck that was almost constant. I had a spinal tap to rule out meningitis, was negative. So the symptoms have gotten progressively worse, about mid June to the present I have had mind boggling fatigue (worse than even on chemo) but this month has been the worst, burning intense pain up and down my back, difficulty concentrating on anything for very long which is totally out of character for me, when I type too much my fingers start to go numb, not needles and pins but I can't feel the finger tips. I have heaviness in my hands and arms and since March I have needed reading glasses (20/20 vision before) EVERY muscle in my body is touchy. I stand for more than 5 minutes my stomach gets that burning that is in my neck. sometimes when I turn my neck a certain way I feel like a knife is coming through my eye. I go up 3 stairs and my legs burn like I have run a marathon. So long story short (sorry i am wordy) My doctor is referring me to a neurologist, so far I have had a CT of the brain, C spine MRI and Lumbar MRI (I guess the neurologist has to evaluate me again to see if he wants a brain MRI which my cancer doctor says I definitely need) So I see my cancer doctor and he says all of this is probably due to taxol. He says we are getting to the point that more women are surviving Ovarian cancer whereas before they didn't, so now we are seeing the prolonged effects of taxol. Don't get me wrong, I am happy to suffer this instead of being dead, part of my problem is I want to know for sure that is what it is, so still following through to rule out MS, neuropathy and the like. I wondered if anyone can relate to the symptoms. I never would have thought my symptoms were chemo related because it has been 2 years since I was on chemo but my doctor claims that is how it seems to come on.