Jul 21, 2012 - 3:57 pm
6 years after having DFSP removed surgically with wide excission, my dermotologist biopsied a spot on my scar and found it had returned. I went to the same surgeon and asked about Mohs. He said since the tumor was on my body (upper chest/shoulder) it wasn't necessary. He said Mohs is for areas where there isn't as much tissue to work with, like the face. Everything I had read told me I wanted to have Mohs surgery, but because I am a 'good patient' (wimp!) I went along with the good doctor. He performed another wide excision. The pathology report came back within the week. It showed I still had DFSP in one spot up on the skin. I also have it at the bottom of where he scooped out the tumor. The problem with wide excision is the sugeon is just cutting out a wide area, but they don't know if they got it all until the pathology report comes back. It's guess work. Mohs is really the way to go. Getting it all out on the spot makes more sense. The surgeon can't see with the naked eye how the DFSP may be reaching out in different directions. My regret that I didn't go with Mohs the first time 6 years ago, or go to a surgeon that does perform Mohs the 2nd time.
The sugeon is referring me on to a cancer center. I am scheduled to have an MRi and a CT scan. I hope they can get a clear view with the stitches from the recent surgery. I am hoping the DFSP is just narrowly missed and it hasn't spread much further. I am realy woried about it spreading to my lungs.