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Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Well today's the day, hopefully it won't be too bad though I think I'd rather be out fishing with sue. I'll keep y'all posted

lboehlke's picture
lboehlke
Posts: 17
Joined: Apr 2012

My Thoughts and Prayers are with you.

Lance

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

You'll do fine. The first is always the
hardest. Think of it as "Chemo Crappies" instead of crappy chemo ;).

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Hey Aaron,
Thata a good idea from Jim. You can imagine you are out fishin' with Sue and catching Crappies. ( I think they are a sunfish,but Sue would know for sure)John

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Just about to start the rituxkmab, hope my head doesn't swell up like a basketball.ill keep y'all posted

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

Surely you can find a ten gallon hat there somewhere in Washington?
Just picking on you.

Hope it's going well there...

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron

I am with you as you recieve your infusion. You'll do great.

Attitude is half the battle...

(((hugs)))
Lisha

PS You can hold my hand on Tuesday and when I start chemo...

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron

I am thinking about you this morning as you get your first chemo. I'll be keeping you close in my heart.

I'll look for your update too.

(((hugs)))
Lisha

anliperez915's picture
anliperez915
Posts: 740
Joined: Sep 2011

Hey Aaron,
Hope all went well today! Keep us posted and take care.

Sincerely,
Liz

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Still doing the retuxan, havent even got to the nasty stuff yet

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron,

Did I warn you...
First day is always the longest.
Hang in there, you are doing great.
I was just thinking about you and thought I would check on you. I'll check back later as we are heading to our daughter's for a birthday bbq for hubby. I'll be gone a few hours. You and I are in the same time zone, I'll see how you are holding up when I get back home.
Keeping you close in heart..
Lisha

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Well day one is in the books. Feeling a little tired and foggy headed buy otherwise so far so good. Had a mild reaction to the rituxan but no biggie and so far have tolerated everything ok even though I know the worst is yet to come in a few days. Thanks for all the positive vibes sent my way, I could feel them all day long. Aaron

allmost60's picture
allmost60
Posts: 3149
Joined: Jul 2010

Hey Aaron,
I kept you in my thoughts and prayers today and I'm so glad nothing crazy happened. I also had a small reaction to the first dose of Rituxan, but the nurse stopped the drip, increased my benedryl and 15 minutes later restarted...no problem after that first incident. I was at the clinic for 8 hours on my first chemo day....no fun! Hey...I caught 2 nice steelhead this morning, 8 and 10 pounds. Brutal night in the boat..rain..thunder...lightning..UGH. :) I'm getting ready to post a picture on my expression page. You be sure to rest, listen to your body and drink plenty of fluids..(don't forget the Senekot)...Take before going to bed. :)
Take care...Sue

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

Yay! The first round is over. It will get easier from here, Aaron.

Now if Sue could just email her fish, we'd have "good eatin'" for dinner
tomorrow ;). I haven't cleaned a fish in years. Too easy to buy them
frozen or go to a restaurant.

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

It's going to be over before you know it, listen to your body and rest when you need to...

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 998
Joined: May 2012

You the Mann ! You the Mann !

max

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Hey max, yea I'm the man trying to pace himself. I'm not feeling that bad but I can tell a differance in energy level. Did you experance lower blood pressure ( particularly diastolic ) after treatments? I feel like I might have a mild arythmia going on but nothing major. Anyway I hope your doing well and I'll keep plugging along until I catch up with you in the land of complete remission. Keep in touch. Aaron

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 998
Joined: May 2012

Aaron,

I have hypertension, and my bp stayed high all the way through treatment (sometimes 200/100 when I went in for a wellness check, on bp med). My onc and I/M doc agreed that this was an anxiety spike when I went for results, news, etc.

Adriamycin can affect the heart, but it is a very rare side-effect. If you have had any pain meds, that is a more likely cause for a lowered bp. Dehydration is another possibility, as you lose a lot of fluids.

Any good oncology practice will have a doc or NP on call for questions, 24/7.

Pulling for the Champ,

Max

.

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

I'm not on any pain meds but it seems to have come back up to a more normal range for me this morning. I doubt dehydration is an issue as I've been drinking 80-100 oz of water each day and peeing like a racehorse all day and night. So far so good although I know it's early yet and I'm sure things will get a bit tougher with subsequent treatments. I figure if I stay focused on oral hygene, nausea meds and stool softeners, good hydration and as much exercise as I can manage I should come through this ok. Wife and I are gonna keep a good eye on the heart and lungs and report anything suspicious. Thanks for checking in max. Aaron

forme's picture
forme
Posts: 1158
Joined: Aug 2010

Hi Aaron

I am happy to read that your BP is back to normal. Maybe it was the first time infusion fears that raised it. I also have high BP and take 2 meds for it. One is for BP the other for the enlarged left heart, from the high BP. I am sure mine will shoot through the roof when I get my first infusion.

Hopefully your day and the days to follow will be a breeze. Enjoy spending time with your wife and daughter, loved ones are the best medicine.

Thinking of you
Lisha

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Actually it went low Saturday morning, I think it's the dexamethasone that I have to take twice a day for 2 days after my infusions. Not completely sure so I'll probably talk to the doc about it tomorrow.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 998
Joined: May 2012

Dang ! I was nevr that attentive to my well-being on chemo (or any other time) !

Good job !

max

.

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

Gotta do it that way max, Im going to give it my best effort to minimize side effects throughout chemo and beyond. Besides I'll bet your keeping a good eye on your well being these days, we all have to

ta8631
Posts: 40
Joined: Jun 2012

Glad your doing well Aaron... i was scared out of my mind for my first treatment, now that i got two under my belt i am all about them hooking me up and getting it over with lol. I noticed you are drinking a ton of water, i do the same thing, i tend to think that the more water i drink the fast all that nasty crap will get out of my system and i will get to feeling better :) Keep us posted on how your doing

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

I believe the same thing and my doctor told me the more you drink the more dead cell you can eject quickly(eww). I find that doing 32 oz of water and then 32 oz of water with powdered Gatorade is really good as well because it keeps our electrolytes up as well. My mouth started hurting today so my Onc is giving me some magic mouthwash tomorrow and hopefully that will get it under controll before it gets out of hand. Sennakot and water our 2 best friends for the next few months, I find it quite amazing how this disease complicates and simplifies life at the same time. Thanks for checking in ta and let's talk again soon. Aaron

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

Hi Aaron,

I found that by avoiding anything acidic during and for about a week after my
treatments, I avoided mouth issues. The gatorade might be a little acidic - not sure.
Just sharing.

Jim

Aaron's picture
Aaron
Posts: 237
Joined: Jun 2012

I'll keep that in mind. Just when I thought life couldn't become any more surreal ICHIRO gets traded to the YANKEES?!?! I know it's his last best chance for a ring but this hurts.

po18guy
Posts: 237
Joined: Nov 2011

You will get through this just fine. The strength is there for the asking - just don't forget to ask!

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