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Blisters

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

So I've been eating normally for about 2 weeks now with the exception of acidic and fried foods because I just can't tolerate them. I'm doing pretty well, taste is definitely not 100%, but it's a huge improvement over where I was just a few weeks ago. Sometimes when I'm eating or shortly afterwards I have little clear blisters come up in my mouth. They are very tiny and I can remember getting them before any of this cancer mess if I accidentally ate/drank something too hot like coffee or soup. They are uncomfortable but I wouldn't call them painful and so far they just go away, they never open into ulcers. I did get one on the tip of my tongue the other day and that one hurt pretty bad, but I usually do a glutamine rinse or two and they go away. Has anybody else had experience with this? Is it something that will eventually stop the further I get away from treatment? Thanks for any input!:)

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Somebody has the same thing......lol
Hi Meaganb, I have exactly the same thing, I'm 13 weeks
out of rads and pretty much doing really good compared
to some. I'm eating pretty much anything ( slowley and small bites)
no bread or crackers, or dry things as I have no saliva but I can
taste most foods. Not like I could before because gums and teeth
feel weird. But yes I have the same problem as you when I'm
eating after a short while little clear ( and painful ) blisters pop up
on the soft pallate at the back and sides, it makes it difficult to
finish eating so I make a smoothie, then after a little while they
are gone. Its fustrating and I don't know how long they are going
to last, so if you find out first please post or I will if I do. Maybe
we are just rushing things and aggrivating it.

God bless
Tonsil dad,

Dan.

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

The great thing about this site is that you are never alone. There is always someone who has experienced something before you. Hope these start to clear up for you soon Dan! Nice to know it's not an abnormal symptom.

longtermsurvivor's picture
longtermsurvivor
Posts: 1792
Joined: Mar 2010

but I had these for a few months after my first treatment. Not with this one, but I keep getting chelitis, the darned cracking at the corners of my mouth, now over four months past rads. The oral environment is pretty radically altered by chemorads, anfpd takes along time to recover.

Pat

phrannie51's picture
phrannie51
Posts: 3690
Joined: Mar 2012

I didn't know those cracks had a name....what miserable little things they are. I spend more time having them than not...

I havent' had trouble with blisters, but then I'm not eating normal food yet...still pouring Ensure down my tube....hoping to start drinking it again as soon as the mouth sores leave my lips....and then maybe on to bigger and better food....gawd I'm hungry...LOL.

p

KTeacher
Posts: 928
Joined: Jan 2011

I didn't know that there was a name for this. I havea droopy side of my lip and a wonky side from the 'lip lift' Always treating the red, burny edges of my lips. Dermatologist gave me a prescription, mixture of creams, to help.

CivilMatt's picture
CivilMatt
Posts: 2930
Joined: May 2012

Hi meaganb,

Are these sores different from the ones we got during radiation treatments? The ones I smeared the Lidocaine gel on?

What intrigues me is the rapid return to eating. Who is your cook, where are you getting this edible food?

Minus the clear blisters you sound like you are doing pretty darn well and if my mouth is any indicator for yours, I can absolutely say they will eventually go away.

Best,

Matt

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

Matt, they are different than the sores I had during Rads. They are not ulcers, just clear blisters. I have been very lucky! Like I said, I stay away from things fried and anything acidic but other than that, eating is not a problem. I only had Rads and no chemo, so that may be the difference. I'm also much younger than a lot of y'all. Don't mean that in a bad way, hope no one is offended, but I am only 27 and a lot of people have told me that my age is a huge help in healing. I never had a Peg tube so I never stopped taking in nutrition by mouth although I was using the heck out of Lidocaine and MM the last few weeks of treatment. I have been very blessed and hopefully these blisters will be a thing of the past soon enough:)

phrannie51's picture
phrannie51
Posts: 3690
Joined: Mar 2012

About 3/4 of the time, when you post I get the giggles...

I went the whole time of rads and chemo without using my feeding tube...but one month out, I haven't used anything but my feeding tube....My husband is getting real tired of me sniffing all his food...icecream to shepherds pie....I have to sniff it, I'm so darn hungry.

p

CivilMatt's picture
CivilMatt
Posts: 2930
Joined: May 2012

Phrannie,

Did you read that, meaganb said I was old, ouch. I don’t feel old, well other than my eye sight or bad knees. I do sleep well, like a young person, but I do require more sleep. I can’t win this one, but I will try to get over it.

Best,

Matt

Your dog picture pulls at my heart (in a good way)

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

I knew someone was going to get offended!;) If it helps, I aspire to be old someday!:)

CivilMatt's picture
CivilMatt
Posts: 2930
Joined: May 2012

Meagan,

Me too.

Matt

Tim6003's picture
Tim6003
Posts: 1495
Joined: Nov 2011

Now when I have a B-day I will never "complain" ....I'm out to collect all the B-days I can get!!! :)

In fact I told my wife (who is 12 years my younger) I intend on living just one day short of her (can't imagine being without her) ..so she better live a long time ...I'm going for 101 years old!!

Tim

Spazactaz
Posts: 15
Joined: Jun 2012

I'm also younger, 24, and I get these all the time. SO annoying!!! Even if I just drink a smoothie. They seem to move all around my mouth too.... always on the palate, but they started only like inner lips, then moved to the left side of my mouth, and now have been on the right side of my mouth for a long time... but keep going further back. Making them harder to pop!! If I don't pop them they get super painful.

meaganb's picture
meaganb
Posts: 226
Joined: May 2012

Spazactaz, I don't pop the ones I get. Maybe I'm too much of a wuss but I'm afraid if I open them up they'll become ulcers. I did think about doing something about the one I got on my tongue the other day but ended up leaving it alone and it too went down. I have noticed I'm now getting them in the very back corners of my mouth now. I'm still able to eat though so I'm not complaining....too much:) I'm wondering if our mouths are just compromised now because of the Rads so there will always be weird things going on? Oh well, I guess it's a small price to pay for getting rid of cancer.

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